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(post has been copied to the Qeios Management of Nutritional Failure, Edwards thread) From the perspective of another potential paper on this subject I think there are several points raised by the inquest, in addition to the context of the RCP working group document, that might be worth...

Copied post From the perspective of another potential paper on this subject I think there are several points raised by the inquest, in addition to the context of the RCP working group document, that might be worth considering (there are undoubtedly more but these are the ones that come...

There were several occasions on which witnesses were asked to read from contemporaneous notes, then tried to backtrack on the obvious implications of what they had written. The "manipulative" comment that Prague made in her notes, and her backtracking explanation of what she had meant by that...

https://archive.is/20240727060407/https://www.thetimes.com/uk/healthcare/article/killed-by-me-the-terrible-illness-that-divides-doctors-9mkzk7rxx

Ah - I wondered if some of the journalists hadn't been able to get back in; there was a disconnection part-way through; after I rejoined, the session was locked about 30 seconds later - I had expected them to wait for 5 or 10 minutes to ensure everyone could rejoin.

Media coverage of today's testimony. They only seem to discuss Patel's testimony, rather than the more problematic testimony of Prague; perhaps we will see other stories about that...

Another observation from Roy's testimony yesterday: when mentioning that Maeve could not tolerate the feed that they have tried her with through an NG, he suggested that was probably because of "visceral hypersensitivity". I picked up on that immediately as the term's usually used in the...

Worse than that: in the notes she read she had clearly made an insinuation that Maeve's report that she was having difficulties with sucking fluid from her cup was linked to a specific event & was emotionally mediated. Again, she backtracked, saying it was necessary to record events that had...

I managed to get back in after the disconnection, and started jotting down notes again. I'll just make three brief observations: * Dr Prague kept talking about encouraging Maeve to progress with "small incremental achievable goals each day". There did not seem to be a recognition that such...

Dr Patel has been released. Inquest now on a lunch break. This afternoon's witness will be Dr Prague (sp?) Something I picked up on not mentioned in the Tweets above was that he had tried to "encourage" Maeve to sit up over a period, trying smaller increments such as 10 degrees with a view to...

One point I forgot to make is that one of the reasons Maeve didn't tolerate a particular NG trial was because the feed they tried her with was the same as one she'd been given & didn't tolerate orally. I would have expected trials of a much wider range of feeds to find one that was most...

I'm going to have to draw this to a conclusion as I'm struggling, so I'll just give the most salient points from my scribbled notes, which I'll keep in case anyone has questions, but this will be my last post on the subject otherwise. I've concentrated more on the technical details that I think...

(Part 3/Roy. There is a lot of highly simplified anatomical discussion & explanations which I did not try to jot down. Again, I won't offer commentary.) Weir's recommendation of an NJ was discussed. Roy gives his views as to potential progression of interventions that can be used, from NG to NJ...

(Dr Roy's testimony, part 2. Not going to express my opinions of this in these posts; just reporting.) The coroner mentions that the family had concerns that many consultants at the RD&E did not believe that ME is a physical illness, and asks his views on ME. He replies that, while he is not an...

(Part 1) Dr Roy - consultant gastroenterologist at the RD&E - was the first witness. Worked in Colchester, New Zealand, then in Exeter and now as a gastroenterologist and intestinal failure expert in Bath. His subspecialty is nutrition and IF. He states that he has an additional interest in...

The inquest has ended for the day and will resume tomorrow, with Drs Prague and Patel scheduled to attend. At the end there was a discussion about scheduling issues and when various witnesses would attend, a discussion about the possibility of a regulation 28 report being made and a discussion...

I'm not on Twitter but I think some of the Tweets posted above are muddled. The psychological support statement is taken out of context. The discussion of the lack of NICE guidance regarding nutrition in severe ME - the reference I heard discussed was to the old NICE guideline that was in...