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Intestinal failure mainly. It's usually considered the last resort when patients cannot be adequately fed enterally.

Social services safeguarding witness, Sarah Leech (now Clarke), joined via Teams. Didn't seem to have access to the relevant documents and a great deal of time was spent reading them out. Originally a registered general mental health nurse, now a community manager of the DCC health and social...

Beth Thompson, dietician. * A lot of discussion about specific calories & nutritional levels at different times. Concerns with inadequate nutritional intake (dropped to 900cal/24g protein at home), intolerance to nutritional supplements. Believed a coordinated MDT approach required & management...

The first witness was Dr Fox. * Was asked if he believes ME was a real condition; asked for clarification on what was meant by "real". Stated there was uncertainty even among experts as to the underlying causes of ME and while he thinks it "exists" clearly the underlying cause was uncertain at...

Thanks for the kind words, Trish & others - I've found if I rest well in advance of these, stay lying down, rest completely in the breaks, do nothing else on the same day and rest a lot afterwards it's just about within my tolerance on an otherwise reasonable day. Inquest now on lunch break...

Inquest now on a five-minute break after the testimony of Dr Fox; will be hearing Beth Thompson next. Also apparently a statement has been received from Dr Shenton (Maeve's GP). Lots of audio/technical problems today. Fox gave a very biopsychosocial explanation of ME and also gave a very...

I actually thought 45 degrees was the typical standard and was puzzled at the talk of 30 degrees! BTW I wasn't well enough to listen in on the day of Strain's testimony but from a question today it was mentioned that Strain had said that more recently the RD&E have been trialling enteral...

Will try and respond to this very thoughtful comment more thoroughly tomorrow, but just a few brief points - I do remember bed-management teams myself but in this case M was promised a bed on what was considered a much more suitable ward & this had been agreed in advance. Bed management teams...

Something that came up in today's testimony from Blackburn (the community dietician): he referenced a document he was familiar with about ME/CFS that had been produced by the British Dietetic Association. I have been trying to find the source of this and I think this is it...

Thanks! Agree that he was brainstorming there and that he was correct in fearing a "tragic outcome", but there were a few things he said that did concern me a bit: the dismissal of special or restrictive intake as pseudoscience and the comment that people may "feel" that certain foods are not...

From my notes (may not be word for word as quickly handwritten; any errors are, of course, mine):

The third witness was Christine Parker, social worker. She could only assist with the Jan-mid April period. * She was asked if any creative thought was given to including Maeve without needing to meet her face to face? She replied that as they hadn't seen her in a number of years and hadn't...

The second witness (Riches) - clinical matron (gastro & diabetes & endo). She described this as a "matrix role", working across wards & services. Lowman came under her "portfolio". Clinical matrons don't take on specific patients, working in more of a backend role. No specific clinical matron...

Firstly, the evidence of Blackburn (sp?), the community dietician: * His involvement stemmed from an urgent referral by the GP (Shenton) - poor fluid intake, unplanned weight loss. He didn't meet either Maeve or SB face to face; spoke to SB on the telephone 3-4 times. The referral made...

The inquest has just taken a 10-minute break after Blackburn's (sp?) main testimony; Maeve's parents are now being given the opportunity to question him. I'm once again taking notes and, although I don't have the energy for a point-by-point, if there is interest I'll try and produce a summary...

Inquest has resumed. They are proposing to ask Dr Shenton (Maeve's GP) more questions about dates etc. Coroner mentions that at no point has anyone suggested that Maeve lacked capacity. Apparently Tori Riches is not coming this afternoon. Confirmation that Friday will be the last day of...

On the specific question of fluid intake in Warren's testimony from my notes (I wish I had the energy to write more of these up into summaries): Something else that I found troubling in that day's testimony that I didn't include in my previous writeups: the lawyer for the RD&E tried to justify...

In my view the reason for it not being "FND" is much simpler: those conditions are mimics of neurological conditions - e.g. pseudoseizure mimicking epilepsy. The same with the others - pseudoparalysis, hysterical blindness etc - they mimic neurological disorders but with no lesion that would...

I don't usually like talking about this, but - as for my own brush with feeding problems the symptoms were entirely compatible with a disorder of motility: early satiety, delayed postprandial nausea & vomiting - notably worse with fatty meals - unrelieved by mebeverine, alverine, PPIs or H[2]...

Not a gift link but I think this will work: https://web.archive.org/web/20240521100143/https://jnnp.bmj.com/content/jnnp/early/2024/02/28/jnnp-2023-332731.full.pdf