Search results

A lot of Russian space research was translated by NASA; I think some later studies were conducted jointly. Searching for the term "deconditioning", however, may not find it; try looking for studies that mention "hypodynamia", "bed rest" and "hypokinesia" in the volumes that NASA translated - the...

There is apparently going to be a BBC Alba programme (in Gaelic, with English subtitles) about Long COVID on Monday (19th August) at 9 PM: https://www.bbc.co.uk/programmes/m00226wp

I generated an English PDF with DeepL and had a very brief skim. From the physical exercise section: This is just absurd, as there are reports of negative effects from physical exercise in the literature. In fact I think even some of the psychosomaticians acknowledge that. In the "offer...

The FINE trial manual also spells it out quite bluntly, with statements like these: Together the slipping of the body rhythms, muscle and cardiovascular deconditioning result in the feeling of overwhelming tiredness and other symptoms of CFS. Symptoms may increase again causing fear of...

In the Times today - "I was picked for Team GB. Then long Covid dashed my Olympic dream", about Oonagh Cousins: https://www.thetimes.com/uk/healthcare/article/link-long-covid-me-dzdxtp206 https://archive.is/20240816080129/https://www.thetimes.com/uk/healthcare/article/link-long-covid-me-dzdxtp206

Abstract Long COVID is a debilitating, multisystemic illness following a SARS-CoV-2 infection whose duration may be indefinite. Over four years into the pandemic, little knowledge has been generated from clinical trials. We analyzed the information available on ClinicalTrials.gov, and found...

Unable to sleep much tonight, I've been having another look through the literature and found this paper; two of the authors are associated with a number of the supposed EDS-III patients that have been heading to Germany for surgery. It's a case series of 169 patients who had 196 operations for...

SNTG is right about "medicalisation"; medical students are taught to guard against so reinforcing "psychosomatic" symptoms. (In the past I also heard the term used in another unrelated context: end-of-life care, when interventions can become increasingly burdensome and/or distressing for the...

Actually references to medicalisation or over-medicalisation were made by a number of different clinicians in the notes and questions were asked about such remarks. It seemed to have been a theme and had nothing specifically to do with Roy's gut disuse-atrophy argument. Line sepsis risk was...

Intrigued by this reference, I spent a few minutes looking in to this. The reference to ECT altering aperiodic activity on EEG appears to be this exploratory study (n=9) in Nature Translational Psychiatry. If it replicates it might bring us a little closer to understanding the mechanism; it...

In yesterday's Guardian there was a double-page feature:

Thanks. We thought the value was probably based on the Streeten paper (J Lab Clin Med 1988; 111(3):326-35) which I eventually tracked down. The results are in Table 1 - as you can see the upper end for the healthy population is +27 BPM.

There's something else that I noticed while sitting through the coroner's remarks: she referenced Strain's testimony about Weir being able to trial potential treatments on the basis of "anecdotal" evidence & that he would not have the same freedom in the NHS. She then essentially conflated the...

"Forgotten faces of ME", in the Mirror; a very good piece. Covers Maeve's case & the stories of a number of other pwME including Merryn Crofts, Alice Barrett, Millie McAinsh and Whitney Dafoe; in fact, this is the first time that I've seen a number of cases documented alongside each other in a...

For anyone who would like to read them: Media coverage - with the exception of the execrable Alastair Miller in the Observer - has been excellent throughout. I also hadn't realised that Andrew Gwynne (new Labour Public Health minister) had suffered from Long COVID; perhaps he will take things...

By Sean O'Neill ("Reliving my daughter’s death was relentlessly heartbreaking"): https://www.thetimes.com/uk/healthcare/article/reliving-my-daughters-death-was-painful-now-lessons-must-be-learnt-d0g6c50fk Archive link, for those without access...

A coroner's inquest isn't a civil trial; there aren't carefully chosen expert witnesses for each side. It did seem to me that the structure of British inquests puts the family at a considerable disadvantage (for instance, the RD&E, DCC & GP lawyers were allowed to make submissions as to the law...

Channel 4 News segment:

Good Times article here ("ME sufferer ‘fell through cracks of dismissive’ NHS, says minister"): https://www.thetimes.com/uk/healthcare/article/me-sufferer-fell-through-cracks-of-dismissive-nhs-says-minister-gqntzznkf Archive link for those who don't have access...

I listened to it all. A great deal of time was spent summarising testimony already given. I once again took extensive notes if anyone has specific questions. She made a small number of findings relating to Dr Weir's testimony; she rejected his view over blood volume (preferring Prague on that...