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This is 2011. http://www.dsq-sds.org/article/view/1375/1540 2006 https://www.researchgate.net/publication/236995755_Reliability_of_a_Chronic_Fatigue_Syndrome_Questionnaire

When he presented his opinions at a meeting (was it to the CFSAC or CDC? it was a group listening to a room full of advocates and researchers) he seemed to be very upset he could not convince them to go against their leanings towards IOM and not go with CCC. IMO, IOM is the way to go. No doctor...

Exactly. The US Medicare system and most health insurance companies, including BCBS, are using the test. I am on BCBS but the HMO won't cover it although all other plans will. And, of course, I have the HMO plan.

It may turn out to be like an SED test. There can be any number of things wrong with the patient, and further blood tests and even a whole body scan can be done. When a patient is diagnosed with the Fibromyalgia criteria (yes, Fibromyalgia has criteria too) and then they are positive with the...

Fibromyalgia: A Short Commentary Frederick Wolfe and Brian Walitt Walitt is at the NIH working on the NIH Post-infections ME/CFS Study who thinks ME/CFS, Fibromyalgia, and Lyme Disease are psychosomatic. This "commentary" was the beginning of the end for Fibromyalgia patients. Fibromyalgia...

I was wondering if there had been any input from Fibro orgs. as I know patients, patient orgs., and others had all given input for the ICD on ME/CFS. I think they must be intimidated trying to go up against Fred Wolfe. I know he wrote a paper along with walitt working on CFS at the NIH. I...

Still booting back e-mails with a permanent error. :nailbiting::(

@Kalliope Thanks for posting! :thumbsup:

I love SEID criteria. It is very important in getting a clinical diagnosis. Because clinicians just will NOT use CCC or ICC and that's all there is to that. It's a bit much to bother with and I know I don't have doctors that have time to use them. In research, I do wish they would use ICC and...

Qualitative code questions: I don't think this came out as well. I did not Crash, I got worse. And it certainly wasn't Zero Energy and I didn't Feel sick. But I think people with differing severity are involved in this. For many years, even now, it is more Exhaustion and Symptoms Worse. I was...

I also think the responses by Judy Hamilton and Veronica Jones are vert good. So, Prolonged worsening of symptoms more than 24 hours after exertion or physical, mental, stress, or social activity.

Thread merged Here are the results on the phrases portion that describes PEM posted by @Tom Kindlon via Twitter. I think if number one said Prolonged worsening of symptoms more than 24 hours after exertion or physical activity he would have really nailed it. But who knows. Number 1 is pretty...

Here are the results on the phrases portion that describes PEM. I think if number one said Prolonged worsening of symptoms more than 24 hours after exertion or physical activity he would have really nailed it. But who knows. Number 1 is pretty good. If it is called Post-EXERTIONAL Malaise...

I have often thought that the inoculations you need to get when traveling to some countries may have been a trigger for some.

Yes. :thumbup:

Merged thread Low-dose Naltrexone (LDN) - Dosage; Compounding Pharmacy Info.; Fast-release Fillers Only; When, How To Take; etc. All you need to know about Low-dose Naltrexone (LDN)

ICD-11 Fibromyalgia - MG30.01 Chronic widespread pain

@Dx Revision Watch I went through and liked all your posts forgetting you are going to get a bunch of "like" notifications.:facepalm: Anyway, thanks for all your hard work. :thumbup:

Fibromyalgia drugs are a good example of this. Cymbalta is only helping about 6% of Fibromyalgia patients, many have MORE pain using it, and is causing horrific withdraw resulting in lawsuits. How this drug ever became approved and marketed for Fibromyalgia is beyond me.

The FM/a® Blood Test and Participation in Fibromyalgia Vaccine Study by Celeste Cooper via ProHealth (July 18, 2018)