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It's terrible. The word "recovered" is always bad in relation to ME/CFS. Maybe "doing better" or can "do more but not healthy". Really, these people that get better because of what they did do so much damage to millions who have tried everything for decades.

I am also diagnosed with CFS as it was 2003 and I was disabled with CFS. I think Fukuda was used and then CCC was applied a little later. I believe I can meet ICC. I became progressively worse and if SEID had been available back then I would have been diagnosed using it and then as time...

I was going to post this with the information below but then saw you already did. I realize that every patient deserves their voice, but I really hate it when they find what works for them and their mild case of ME/CFS (most likely mild enough to be categorized as SEID) and plasters it all over...

@Peter Trewhitt My BP was low normal, 110/70. The doctor put me through a Tilt Table test and I fainted. Many years later my BP began dropping and then sat at 80/50 and I am on Fludrocortisone where it is in more normal ranges but now I experience lightheadedness and dizziness although not severe.

Not on every day objects or on a regular basis. Lying in bed looking at my computer screen when I am streaming can cause this when I look away and at my wall, I will see an image of the light of the screen and dark of the computer's border of the screen but that is about it. I think that is...

Social Media would explode if a treatment comes about so spending money, time, and our oh so precious energy really isn't necessary. When I first read it I was like, Oh, no. But I got over it within seconds and remembered there were those on Twitter not believing it would be effective...

Oh, and if you do edit that page just remember that the Primers are basic and simple so people can get through them easily. If they want to know about Chronic Fatigue Syndrome or Post-exertional Malaise they can just select the links. Unfortunately, the Myalgic Encephalomyelitis page is a...

I don't know. Do you edit? Anyone and everyone can jump in.

Primer for family, friends and care providers - WIKI MEpedia This Primer helps family, friends and care providers learn about ME/CFS in an easy to read format.

Fibromyalgia - MEpedia MEpedia is a WIKI for ME and CFS

Here is the Q & A link, it is #4. http://naviauxlab.ucsd.edu/wp-content/uploads/2016/08/Metabolomics-QA-for-CFS.pdf?utm_content=buffera881a&utm_medium=social&utm_source=twitter.com&utm_campaign=buffer Also, there is a page for the Naviaux Study 'Metabolic Features of Chronic Fatigue Syndrome'...

Agree.

I agree. @Jonathan Edwards, this has the full quote of user @Joel's conclusion.