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I think she is taking on a British ME patient issue from the viewpoint of an American ME/CFS patient. We do have doctors that will still run tests and listen to us and not completely shut us down. I am on Fludrocortisone and it at least worked for the Hypotension and had full Thyroid panel tests...

I noticed that she is better at getting the correct message out ever since the disease got a strong grip on her kid. She is now facing its realities and is putting out a correct message as opposed to when her son first became ill and she still couldn't get the messaging straight as it hadn't...

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That's the end of the CNN Hero nomination. They will go through her Twitter Feed and decide not to nominate her. They want squeaky clean nominees. Back to Alem Mathees for nomination.

It may be that they have to all meet CCC, but it is so easy to meet FUKUDA and REEVES that my fear is they want to prove them as valid and really, they are not. Then what could happen is they believe FUKUDA and REEVES can be used by clinicians to diagnose ME/CFS and they really can't and if they...

Additionally, although it is a positive step getting rid of Esther Crawley, what else could they do? You can see she is absolutely NUTS! She is going around pushing the Lightning Process which is garbage even for mental health issues. So I wouldn't look at it as this being the CMRC recognizing...

As a matter of fact, @dave30th (I believe this is David Tuller) I think you should ask these two questions of the CMRC. "Do you believe the unproven BPS model or any mental health issue or thought process is driving the ME or CFS Symptoms?" "What definition/criterion will you use to define ME...

Big deal. Disparaging. JUST ASK THEM!

ASK THEM! "Do you believe the unproven BPS model or any mental health issue or thought process is driving the ME or CFS Symptoms?"

None of those words or expressions is used for the term "underpin" or underpinning. https://dictionary.cambridge.org/dictionary/english/underpin I think we need to look at the word and all its meanings as defined in a dictionary and thesaurus. This is how they get us every time. They word their...

"biological mechanisms that underpin CFS/M.E." That word, "underpin" is what concerns me most. They are telling everyone exactly what they are doing. All they are looking to do is find the biological mechanisms that support what they believe they already know, that CFS/ME is a mental health...

I am not buying it, guys. Sorry.

Thanks for your efforts. Very good job.

I have the disease and I can only take so much of this dead-end research crap. He's a guy who wants an interesting career that produces results with great money. Who can blame him? I think this was always a stepping-stone for him even if he still has a toe or two in ME/CFS and Fibromyalgia...

Although most of these are a daily issue they all increase after exertion. Laundry, grocery shopping which my friend has to drive and push cart and help me take groceries into apartment and this is only fresh/frozen items every 6 weeks as dry goods and toiletries are delivered, walk to my...

Glad you are here, @dave30th!

I liked the brain temperature elevation theory but I am not sure if he actually did the study or not.

Memory Foam nearly killed my body creating more pain and was very hot. However, the Purple brand is made differently so I don't know how it will perform. I was thinking about it but it only comes in a LONG Twin and would not fit my bottom mattress so when I get another mattress I think I will...

Happy they did this. I was uncertain he even had ME/CFS but if he did then it should have at least been stated as CFS. And a hockey player with ME, CFS, or ME/CFS is a stretch.

In 1932, 100,000 people in Los Angeles became ill. 5% had Polio but others were ill with other diseases and illnesses. In 1934, blood serum from the victims of the outbreak was used on the staff of LA Hospital. Although some who never had this serum injected into them did get sick, MUCH MORE...