Search results

The US had 'Unrest' on PBS for free in early January. But I watched it on Vimeo prior to its airing as I wanted to see it ASAP. It was purchased by Independent Lens but it still allows Jen to distribute through video platforms. This is probably why US campaign is continuing.

I watch documentaries on youtube all the time. Now, I do believe they have been out for some time and those that have the license are not impacted as may be the case with 'Unrest'. I did pay $4.99 for the rental on Vimeo and I thought that was a bargain. My friend saw it on iTunes for 99 cents.

I'm only guessing here, but they probably had to make a choice on what campaigns to cut short not realizing they had money taken from them in this pirated youtube post.

Too bad that none of us saw this sooner. We could have reported to Jen and she could have had it taken down then. It has just been taken down so I am thinking she just saw this.

Thank you! I know nothing about hard research except for what is explained to me here and other ME organizations but I knew these "researchers" have been on to nothing from the get-go. And one of the most important clues to is the silence of the researchers here in the US about their "marker"...

I just tried the recommendation of inhaling and holding my nose closed and mouth shut and "exhaling" and I felt my left ear, the one where I feel the hurt, and it did make a little pop and feels a little better. I only have this in my left ear. Tinnitus is in both ears and I just had VNG testing...

I had a light case and it was not constant. I also have Fibromyalgia and knew it was often a symptom of this. However, I went on Minocycline and Vertigo which I never had and Balance and Unsteadiness, which I had every now and then and not bad, set in. The Vertigo lifted when I went off the...

That is why you show proof and keep proof you sent a letter. They cannot discard any communications and at the very least microfilm it or scan into computer files. And that is also why you "cc:" to the media. "cc:" to QMUL and any number of culprits. And don't underestimate what they would brief...

Here, just write a 2 sentence cover letter introducing a printout of this PDF: https://www.s4me.info/threads/science-for-me-pace-briefing-document.3140/

I found this link so far: https://content.iospress.com/articles/neurorehabilitation/nre172245 I just went through VNG testing and I am waiting for the results. I am definitely having balance and unsteadiness issues and I think I have stumped them. They were supposed to get back to me a week ago...

I have sent the ALL the Royals and their "people" the information and I have done so for years. Don't underestimate me. And it is my opinion that all the ME organizations in Britain and any country that comes under the "crown" should be informing her of Simon Wessely by writing to her. Just get...

They know of the controversies. They aren't bright but they are aware of his involvement in ME/CFS. It is the cornerstone of his work. Don't let those scumbags off the hook.

Poor Kate nothing. She knows about the PACE trial and the issues surrounding it. The entire Royal Family and their people know and support this Knight. Don't think that the whole Royal establishment didn't just take a crap on you. They did.

WHY DOES EVERYONE USE THE TERM "RECOVERED"? How about, I got better and have gained back some functionality but never returned to my former level of pre-sickness health. I think we need to get that message out next. Clearly, "recovered" is not the correct word. And they keep saying "Chronic...

I am thinking the first one, NIH Budget, is correct for the US Federal government overall. In 2018, it will be $34B. Yes, the US Government does fund AIDS to the tune of Billions and Billions and Billions. $2-3B is for NIH research. Every year. And for that much money, you would think we would...

Really great program.

@oldtimer I found the 4 million number and have seen it elsewhere. Here is one of the places I have seen it stated as possibly 4 million in the US. "Roughly 17 million people worldwide (1 million to 4 million in the United States) have ME/CFS."...

Here is one of the places I have seen it stated as possibly 4 million in the US. "Roughly 17 million people worldwide (1 million to 4 million in the United States) have ME/CFS." http://stanmed.stanford.edu/2014fall/immune-system-disruption.html IOM report stated 836,000 to 2.5 million...

IOM report stated 836,000 to 2.5 million. http://www.nationalacademies.org/hmd/~/media/Files/Report%20Files/2015/MECFS/MECFS_ReportBrief.pdf 1 Million seemed to be a "safe" number, I guess. I have also seen the number of 4 million but I don't know what is backing that up.

CNN has missed the boat on ME/CFS for many, many years. And they really aren't risk takers. Not even close. Oh sure, we have another Kennedy documentary, 6 parts. Yea, there is that new Sex doc series by Christen Amanpour, and who knows where Anthony Bourdain will eat next. All pretty lame...