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Thinking about this: I think I could argue that the time when we can interpret fMRI in terms of efforts, desires, agency or whatever will have come when the technology is good enough to provide legally robust reliable lie detectors. As far as I know nobody is suggesting that we have that now...

The argument in the conclusion of the 2010 paper looks bogus to me. Sense of agency and voluntariness are different things. If an apple rolls off the table I will involuntarily jump to catch it but am fully aware that it is 'me' jumping. On the other hand when I have vertigo I lose the automatic...

And I'm afraid multiple researchers have messaged me to say they wouldn't go near M.E. because they are simply too scared. That is very alarming Yeah, well, presumably these are researchers who haven't researched ME, because they are afraid of the patients? What sort of researcher or medical...

And it's 50% off this week, it says.

By this logic old age is the biggest pandemic of the lot. Something should be done about it!

And Vogt's problem seemed to be tinnitus if I remember rightly, which somehow morphed into the territory of ME. There is something peculiarly circular about these stories. Symington tells us to forget the biomedical model. Yet she got better because of brand new brain research into pain...

I really doubt it. Work on lung function basically means breathing and our brains are pretty good at making sure we breathe enough. Interestingly that does not seem to apply in acute Covid where hypoxia occurs with few symptoms but there are complex reasons for that. I have had scores of...

I don't think Garner ever claimed he was cured by the Lightning Process. He preferred to spend his money on scuba diving holidays. He seems to have bee cured by a mysterious phone call from a psychiatrist friend in the USA if I remember rightly. Although there was something about contacting some...

It reminds me a bit of Peter White's claim that for MECFS there is little or no placebo effect, while at the same time saying that CBT works through a placebo effect (encouraging people to believe they can get better). Which is a bit sad for the PACE trial since it means that CBT should not...

Not sure that muddling your arguments is blameless. It is quite hard to work out what he is arguing about professions. I presume that professionals are much more likely to phone a helpline simply because they are more likely to have got diagnosed. And 'study after study' does not seem to be...

Yes that is the point. Moreover, the acute phase that got labelled a myalgic encephalomyelitis probably has no more to do with ME as we now know it than glandular fever or Q fever. It is a bit like confusing Covid with Long Covid. Covid affects sexes equally and is much worse in the overweight...

This is an important document. I have been thinking that this is perhaps the next big battle that focus needs to be turned on. I am hoping to make a bit of headway but want to keep things confidential at present. NICE made some sensible comments but more is needed. For GET and CBT the Royal...

I think it is a matter of recorded fact that a large number of nurses and less so doctors were hospitalised in the Royal Free case. In those days there were nurses homes and doctors residences and high doses of virus may have spread in the kitchens. And oI think in the 1950s the Royal Free...

Yes that is Melvin Ramsay of the Royal Free epidemic.

So PWME find themselves in the position we hypothesised about on PR ten years ago. Do you keep some services running just so that there is something, or do you scrap the lot. There were differing views then and the dilemma remains.

As far as I know health professional over-representation only ever applied to the acute phase of the Royal Free epidemic. Over-representation in an epidemic with hospitalisation seems unsurprising. Lots of health workers got Covid.

'should not be offered exercise-based treatments, unless the person feels ready to progress. If so, exercise should be overseen by a specialist ME/CFS physiotherapist and include regular review, information about the potential risks, how to recognise and manage a flare-up, and very careful...

Should US PWME be careful what they wish for? I have no idea what pioneering next generation means (except maybe that nobody else has any idea yet either) but might the diagnostics already be in the pipeline with fMRI scans picking up that special effort preference? And might the treatment...

Indeed, this is the sort of parroted empty drivel I got used to from 'pain specialists' thirty years ago. The most salient thing is the lack of any actual understanding of the 'evidence' being presented. A word salad of non sequiturs if you like. And the chairman introduces them as from the...

I suspect this is yet another high profile piece of pseudoscience. I am not aware of any brain diseases being due to accumulation of metabolic waste. Metabolic waste normally is cleared by venules, not lymphatics. It is hard to see which direction synchronised neuronal ion shifts could usefully...