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I understand your sentiments @mango but I am in a bind here. @Hutan kept chastising me for not pointing out that 'FND' is a bogus concept that can only do people harm to believe in. I actually agreed with that in terms of the way Stone and Carson use it but I thought it might be useful for...

I find it hard to take seriously a document that comes out with " A variety of other clinical diagnoses may coexist with POTS, but it is largely unclear whether the presence of one of these other diagnoses defines a unique pathophysiological subset of POTS. Patients with POTS may simultaneously...

I trained with the UK equivalent of Rowe and learnt a lot about how not to learn in medicine. It is not at all difficult for doctors to fail to learn for forty years. We only have to look at the BPS people. And remember that although Rowe produced the first paper on EDS and fatigue it was Knoop...

I actually doubt very much that these guidelines are based on clinical experience. Early on in my career I found myself parroting and even making up stuff that doctors imagined ought to be true because it seemed to make sene to them but was based on no actual evidence from experience. Rowe's...

I am pretty sure all that stuff is just made up. I don't believe any of it has been tested for validity. It is exactly what someone would make up if they thought they knew what was going on and how to deal with it. But nobody does.

My impression was that AISA was an imaginary disease invented by Yehuda Schoenfeld. Since there is no inflammation in ME/CFS I don't see much point in trying to link it to a non-0existent inflammatory syndrome.

Indeed

I am not aware of any official guidelines. There isn't any reliable evidence about what is the best thing to do in the long term so there shouldn't be any guidelines. I think I mentioned in my Qeios article that some serious research into the effects of posture would be worthwhile. Perhaps the...

'Sarcoid' covers two largely distinct problems. Acute sarcoid with hilar lymphadenopathy and often diffuse calf swelling due to oedema tends to remit after a short period. Chronic sarcoid is almost certainly a lifelong condition once it has appeared and so post-sarcoid is pretty meaningless. The...

I think there is a risk of oversimplifying the situation, as has been clear for post Covid illness. ME/CFS type illness may well occur after sepsis but I suspect that most people who cannot work after sepsis, like a small but not insignificant number after hospitalisation for Covid, have major...

As far as I am aware none of the information on that sheet is based on evidence and is likely to get patients involved in unnecessary rigmaroles and potentially dangerous overuse of salt.

Except that people with Long Covid don't get 'the help they need' because there isn't any beyond advice on not trying to push through. The 100 clinics are presumably sending people off for GET and CBT - the post-sepsis patients are probably lucky!

How about the Ninja Turtle Protocol On the basis that Americans call tortoises turtles and the tortoise won the race by taking things steadily.

Interesting to see that these people are arguing in public the case that I was arguing against in my recent piece in Qeios. And they make exactly the mistake I was criticising - basing policy on theory rather than evidence of keeping people alive. They obviously have no understanding either of...

This reminds me why we are no longer members of another place that until recently we were not supposed to mention, and I still won't mention (by name). How we came to be not members.

Memory loss is a well established problem with ECT and informed consent includes explaining that. My wife lost a lot of memory to begin with but almost all of it has returned. Moreover, for things that were disappointing to have forgotten, prompts have brought them back. The argument posed in...

The very best thing would be that DecodeME would find a link to some very obscure but crucial control protein - let us say TWEAK (it exists). Suddenly we would realise that ME/CFS might be mediated by short range interaction between TWEAK and gamma-interferon sensitising nerve endings. The task...

This for me is a key concern. I have had Covid 4 or 5 times based on my own lateral flow tests and those of my daughter who usually gives us the Covid from her school. My 'Long Covid' has been a series of phases each triggered by a new infection. I think there is a very big question mark over LC...

I think that is a reasonable assumption. The problem is that the cells picked up may not be representative of the current response. Moreover, the test requires each antibody species, from a separate cell, to be given a yes/no attribution of 'anti x-virus' or 'anti-y virus' and antibody...

Not sure how the conclusions about herpes simplex are arrived at! The story as told looks unconvincing and over interpreted but it might be that they are showing that PASC is associated with a different and broad anamnestic antibody response. That would fit with an idea Jo Cambridge and I were...