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  1. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    In Post #3442 by Mango having read this sentence "Emma suffers from long-term covid: Feels like her head is going to explode" I wondered if anyone with Long Covid has had the pressure in their heads and spines measured with a Lumbar Puncture? Perhaps sufferers are developing intracranial...
  2. Arnie Pye

    ‘I can assure you, there is nothing wrong with your kidney’, Keith, 2021

    I don't think that can be relied on by anyone in the medical profession. I wonder if the fact that the sufferer in the following link and in the link in post #1 were both female has anything to do with it. Lisa Steen: The wilderness of the medically unexplained I think it probably depends on...
  3. Arnie Pye

    Management of functional gastrointestinal disorders, Fikree and Byrne, 2021

    I've been diagnosed with IBS over and over again by various doctors and under various circumstances. As well as the IBS diagnosis, I was also told, a long time ago, that my problems were functional - this was before I knew what it meant, although I remember being deeply suspicious because the...
  4. Arnie Pye

    Nickel allergy?

    I have never been tested for nickel allergy or metal allergy or any other allergy or intolerance, but I think I have this problem. In my case I had my ears pierced as a teenager. I was okay for the first ten years, but then things changed and every time I put earrings in, my ear lobes would go...
  5. Arnie Pye

    Lightning Process study in Norway - Given Ethics Approval February 2022

    From the quote in post #510 above... Are the people writing this stuff completely brain dead? Nobody thinks that cancer and fractures should be left untreated. But it is considered perfectly acceptable to not treat any disease that the insurance companies and the government don't want to deal...
  6. Arnie Pye

    "Sitting up straight does not prevent or treat back pain, study finds"

    My husband has suffered from back pain for over forty years. He refuses to take painkillers, however he does do exercises he's been taught by physiotherapists over the years and also uses an exercise bike at a setting which makes it difficult to turn the pedals. He also walks several miles about...
  7. Arnie Pye

    Patient Involvement in Medical Education Research: Results From an International Survey of Medical Education Researchers, Moreau et al, 2021

    I have a couple of comments on this... 1) I would love to know how much input pharmaceutical companies have into MER. 2) I don't know exactly when it started, but medicine seems to have given up on curing a vast number of diseases and illnesses. Instead doctors only try to mitigate symptoms...
  8. Arnie Pye

    Ian Harris: "Surgery, the Ultimate Placebo"

    I care very much about the quality of healthcare, because I find it so hard to get any. Suppose a patient has been given various derogatory labels that have been on their records for decades. If the patient has always found it hard to get taken seriously with any health problem they could go in...
  9. Arnie Pye

    Ian Harris: "Surgery, the Ultimate Placebo"

    I've never understood why tonsillectomies are now derided as a waste of time and money, and totally useless. It was one of the few surgeries I've had that was, in my opinion, an absolutely amazing success with no obvious drawbacks since it was done. I used to lose a week off school about 3 or 4...
  10. Arnie Pye

    Making the biopsychosocial model more scientific—its general and specific models, Smith, 2021

    From post #16 So if a patient visits the doctor they get pre-judged as being mentally ill before they've even said hello? That sounds about right to me actually - anyone who sees a doctor probably is mentally ill these days for being so deluded as to believe a doctor would help them. Why...
  11. Arnie Pye

    Sleep trackers

    I used to get stressed about not getting enough sleep, having been an insomniac since I was a child. Eventually I reduced this stress by covering up my clock with a flannel so I can't see the clock unless I want to. It didn't actually help my insomnia but at least I was less stressed about it...
  12. Arnie Pye

    Making the biopsychosocial model more scientific—its general and specific models, Smith, 2021

    Isn't this like trying to put lipstick on a slug to make it pretty?
  13. Arnie Pye

    Continuous pain report demonstrates time delay of pain ratings in Fibromyalgia, Kharko et al, 2021

    I just read the first paragraph in the wiki article on "Sensitization". https://en.wikipedia.org/wiki/Sensitization The first thing that came into my mind after reading this is that torture often involves repeated administration of a painful stimulus e.g. whipping someone on the back. I just...
  14. Arnie Pye

    CADENCE study: to assess whether raised CRP is associated with probable depression in children and young people with CFS/ME, Loades, Crawley - ongoing

    To the best of my knowledge, CRP is an inflammation marker, and it will be raised if there is inflammation anywhere in the body. So it could be inflammation in the gut, the muscles, the lungs etc. If someone wants to blame CRP for depression, why don't they find the inflammation and then try...
  15. Arnie Pye

    A Qualitative Study of the Views of Patients With [MUS] on The BodyMind Approach®: Employing Embodied Methods and Arts.., 2020, Payne and Brooks

    I find it impossible to believe that this ever really happens. Apart from anything else, if I ask for an appointment to see a doctor I get given one that can be 3 - 6 weeks in the future. It will never be "tomorrow". Edit : I'm talking about getting an appointment pre-Covid. I have no idea how...
  16. Arnie Pye

    Michael Sharpe: Mind, Medicine and Morals: A Tale of Two Illnesses (2019) BMJ blog - and published responses

    @Kalliope Can you tell me what the last line of O'Leary's article is, please? I can't tell if I'm seeing the whole thing or not. The last line as far as I'm concerned is "When we find ourselves in a framework that suggests the possibility of medical need is somehow beside the point for medical...
  17. Arnie Pye

    The prevalence of psychiatric and chronic pain comorbidities in fibromyalgia: An ACTTION systematic review, 2020, Kleykamp et al

    This strikes me as being just a fishing expedition. They haven't said why they want to do clinical trials, so they probably just want to test CBT and GET on people with fibromyalgia, and possibly increase the use of psychiatric drugs on patients.
  18. Arnie Pye

    Cochrane Review: Psychological therapies for the management of chronic pain (excluding headache) in adults, 2020, C De C Williams et al

    My problems with pain are caused by delayed and botched gynaecological surgery for a life-threatening condition in my teens. The damage caused by the delay and the poor surgery has been mentioned in some of my later medical records but the original cause has been obfuscated and I am always...
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