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Medical records in the NHS are dreadful. Doctors will lie if telling the truth will put them in a bad light. If they get something wrong they tend to make it disappear. As a 13-year-old I had a very serious medical issue that is (nowadays) described as a medical emergency. I was in extreme pain...

Wonderful news, @JohnTheJack ! :trophy@:emoji_beers: :emoji_champagne_glass:

I think we can safely say that various members of the BPS brigade are having a bad day. Will they try to brazen it out? How long for, do you think?

Am I right in thinking @Webdog , webdog6 and Jeff Schwartz are all one and the same person?

The garbage about there being over 50% of patients with MUS and/or somatoform disorder must be compounded by the fact that there is no standard way of feeding back an accurate diagnosis to a doctor who found nothing wrong with the patient. Many cases of MUS must be solved eventually, not least...

I assume one of those references to "medical" should be "mental"?

@Diane O'Leary I really, really like what I've read of your writing. I hope you don't decide we're all too prickly and defensive and go off and leave us to stew. We need all the allies we can get. :hug: :thumbup:

Yes, it is in the diagnosis section. But if an FBC is one of the few tests permitted in people suspected of having ME, and an FBC can so easily be misinterpreted if the patient has multiple conditions then it matters a lot. I realise that fixing an iron deficiency and a B12 deficiency won't cure...

From Andy's quote in post #27 : Looking at Serum Iron, Serum Ferritin, Transferrin Saturation %, and MCV (Mean Cell Volume), these are likely to be low in iron deficiency anaemia and high in B12 deficiency anaemia. Looking at Total Iron Binding Capacity (TIBC) and Transferrin, these are...

If doctors decide a patient is a hypochondriac they probably don't tell the patient. They just code the patient's records to alert other doctors. The patient has to guess why they are treated with derision and are given short shrift for every invisible condition they see a doctor with. So, from...

So, someone with ME might develop, for example, heart failure, chronic kidney disease, or liver cancer, and won't have the condition diagnosed and treated because they are deemed to be a hypochondriac. Heart failure, CKD and liver cancer and their effects are initially invisible, so the...

Seeing these two threads right next to each other in the Recent Posts list made me feel quite sick.

How many more ways can the "Powers That Be" make life shitty for vulnerable people, all in aid of increasing profits?

Probably nothing, unless the relatives of the person who dies pay for an independent post-mortem. (If such a service is even available in the UK, and can be trusted to be completely independent - probably rather a tall order...)

My emphasis. When I was at school in Scotland in the 1970s I was expected to play hockey with snow falling and small amounts of snow on the ground. In order to see the ball against the snow it was painted half blue and half red. What we actually wore to play hockey was hockey boots and socks...

For anyone interested in how data from trials can be manipulated and distorted, this book is brilliant and well worth the effort of reading it :

I opted out! I didn't want my data put into NHS databases. And yet my data was available to a hospital A&E when they looked me up last year. I'd never set foot in the place in my life, and yet they had info about me. Don't ever trust the NHS with anything to do with data.

https://www.theguardian.com/news/2018/aug/03/denialism-what-drives-people-to-reject-the-truth http://www.virology.ws/2018/08/15/trial-by-error-the-bps-brigades-score-another-own-goal/

What does that mean? People who loved their jobs were more likely to suffer burnout? Or the reverse? It's completely unclear!

One of the things that doesn't get mentioned publicly very often is that medical records can be stuffed with absolutely shocking mistakes, evasions, omissions and lies. Some people have been told that their records were lost in a fire or a flood or have been lost for unknown reasons. These...