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  1. Arnie Pye

    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    One problem (of several) I have with this is that I have no idea what group the NHS will conclude I'm in. Do they think I'm suffering from primary or secondary pain? I have an almost life-long history of completely ignored gynaecological problems, that were then discovered during surgery to be...
  2. Arnie Pye

    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    So is this the finalised version that will go into use? Or just another draft? Because I'm sure I'd read about "no painkillers for pain" before, so I'm confused. Women are going to suffer more from this than men. And I'm positive the suicide rate will go up. And given that women who are...
  3. Arnie Pye

    ME/CFS SKeptic: A new blog series on the dark history of psychosomatic medicine

    Very interesting article. Blame the mother - it makes life so much easier for the medical profession and society in general.
  4. Arnie Pye

    Blog: The Science Bit by Brian Hughes

    You can find MS's slide deck here : https://www.swissre.com/dam/jcr:788aa287-7026-430a-8c14-f656421b6e71/swiss-re-institute-event-secondary-covid19-impacts-presentation-michael-sharpe.pdf Obviously I have no way of knowing whether it is complete.
  5. Arnie Pye

    Functional Neurological Disorders (FNDs) in the media

    The very next video that comes up for me, after the one linked in the above post is this one : https://www.bbc.co.uk/news/av/uk-england-dorset-47961996 The text for that one is more honest about what doctors think FND actually is (my bold) :
  6. Arnie Pye

    Trial By Error: CBT and Irritable Bowel Syndrome

    My bold... Why does CBT have to be prescription-only? It's not as if it is poisonous. I'm guessing it has to be prescription-only so that the NHS can be charged for it. Gotta make sure those profits go to the shareholders!
  7. Arnie Pye

    Effect of Melatonin Plus Zinc Supplementation on Fatigue Perception in ME/CFS: A Randomized, Double-Blind,Placebo-Controlled Trial,2021,Castro-Marrero

    Perhaps the title I suggested is the research they should have done i.e. actually study the effect of zinc and melatonin on fatigue itself, rather than the "perception of fatigue".
  8. Arnie Pye

    CBT and CFT for Chronic Pain, 2021, Hadley and Novitch

    I know the cause of 90% of my own chronic pain. But my medical records have so many omissions, mistakes, obfuscation and lies that nobody would believe me if I told them.
  9. Arnie Pye

    Effect of Melatonin Plus Zinc Supplementation on Fatigue Perception in ME/CFS: A Randomized, Double-Blind,Placebo-Controlled Trial,2021,Castro-Marrero

    Just the title of that paper tells me something about the perception the authors have of ME/CFS, and it has the subtlety of being hit by a hammer. Edit : Added the following... Existing title : Effect of Melatonin Plus Zinc Supplementation on Fatigue Perception in ME/CFS: A Randomized...
  10. Arnie Pye

    Mail Online: Why many of those struck by Long Covid may be suffering from glandular fever: Blood tests on some patients are coming back positive for ‘

    Thanks for the info re : EBV. I've never knowingly had EBV or Covid-19, and I'm just curious. No doubt my curiosity would be diagnosed as health anxiety, because curiosity is apparently a sin or a mental illness. Obviously if EBV can wake up it seems likely that others could wake up too. It...
  11. Arnie Pye

    Mail Online: Why many of those struck by Long Covid may be suffering from glandular fever: Blood tests on some patients are coming back positive for ‘

    This thread makes me wonder about a few things. What is the relationship between Long Covid and EBV? I'm specifically thinking of the statistics, not the biochemistry. Can people have EBV without knowing? What percentage of people have had confirmed EBV? Is EBV always confirmed by testing...
  12. Arnie Pye

    Defining Long COVID: going back to the start, 2021, Alwan and Johnson

    On the subject of nutrition rather than nutrients this article may be of interest. Title : We learn nothing about nutrition, claim medical students https://www.bbc.co.uk/news/health-43504125
  13. Arnie Pye

    Defining Long COVID: going back to the start, 2021, Alwan and Johnson

    I'm sure there are a load of medical conditions for which vitamin D and zinc are not helpful, but I'm equally sure there are plenty of conditions for which they are useful. But I wouldn't trust doctors on the subject of nutrients anyway. They don't get any training on the subject and appear to...
  14. Arnie Pye

    Defining Long COVID: going back to the start, 2021, Alwan and Johnson

    There have been lots of reports during the pandemic of how people with good levels of vitamin D and zinc have had less severe Covid and have had had better survival rates. But I'm not aware of this really getting a mention in the mainstream media. Or at least it isn't emphasised in any way.
  15. Arnie Pye

    Central sensitisation in chronic pain conditions: latest discoveries and their potential for precision medicine) Nijs et al.

    The problem with the bolded bit in the above sentence is that doctors look at medical records and they assume the records are completely right and so they know the patient's medical history and they think that their investigations will determine the extent of tissue damage. But medical records...
  16. Arnie Pye

    Central sensitisation in chronic pain conditions: latest discoveries and their potential for precision medicine) Nijs et al.

    I've lived in my current area for about 35 years. If I haven't found something good in all that time I'm not expecting to find it now. My local hospital, for example, has gaslighted me for decades. I had a truly astonishing appointment there (in a bad way) in 2019 which was the last straw that...
  17. Arnie Pye

    Central sensitisation in chronic pain conditions: latest discoveries and their potential for precision medicine) Nijs et al.

    I won't bother then. I was seen by a pain clinic a few years ago and it was a complete waste of time. They were only prepared to suggest treatments that GPs had already tried which had already failed to make a dent.
  18. Arnie Pye

    Central sensitisation in chronic pain conditions: latest discoveries and their potential for precision medicine) Nijs et al.

    I want to ask a practical question. Do doctors in the UK (specifically England) treat new cases of chronic pain? Or old cases of chronic pain that are getting substantially worse for no obvious reason? Or do they just give out a mental health diagnosis and refer patients to IAPT, CBT and GET and...
  19. Arnie Pye

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Agreed. The NHS has very deep pockets, along with even longer arms. There is no way they would run out of money to defend themselves in a court of law because they just use taxpayers' money. And all they really have to do is have more money than an individual patient, and that would be pretty...
  20. Arnie Pye

    Weird NHS ME clinic referral form

    Sounds to me like the various forms mentioned on this thread are just intended to give the therapists and doctors justification to continue gaslighting the patients. They certainly won't try to actually treat anyone.
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