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  1. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Sadly, there are lots of people who are continuing to dismiss, reject, disparage, disbelieve and troll anyone who mentions Long Covid, ME, CFS, and PVFS. I found most of the opinions on this thread horrific. It's a public thread so it is not necessary to have a Twitter account to read it.
  2. Arnie Pye

    'The dementia that can be cured' - Guardian article about autoimmune neurological diseases, 2020

    From personal experience I would suggest that gluten can cause this problem. My brain fog/ability to think gets worse if I eat gluten despite testing negative for Crohn's disease. My balance, which is also affected by the NPH I mentioned in my previous post, is also affected badly by gluten...
  3. Arnie Pye

    Coronavirus - worldwide spread and control

    That is weird. In the UK the government was blaming almost every death on Covid-19 for several months. Since I don't keep up with Covid news I'm not sure if this is still true.
  4. Arnie Pye

    'The dementia that can be cured' - Guardian article about autoimmune neurological diseases, 2020

    There is another kind of dementia that can be cured, or at the very least deterioration can be slowed down. It's estimated to be the cause of about 5% - 6% of cases of dementia. That condition is Normal Pressure Hydrocephalus (NPH). It is a condition that is normally associated with the elderly...
  5. Arnie Pye

    New Name For "Brain Fog"?

    Could you describe your brain fog? I'm curious. I know at my worst that I struggled to read a recipe, prepare the ingredients and cook. I often found myself trying to do things in the wrong order, and found that, for example, if a recipe had 6 ingredients I might be able to read the 2nd, 3rd...
  6. Arnie Pye

    New Name For "Brain Fog"?

    I've come across the term "foggy brain" in a thyroid research paper quite recently. I don't like it. I prefer the term brain fog. Once someone has suffered from it it can't be mistaken, in my opinion.
  7. Arnie Pye

    The peri-menopause in a woman’s life: a systemic inflammatory phase that enables later neurodegenerative disease, 2020, Raval et al

    Maybe that explains why I have no energy and a rapidly deteriorating brain. I had my estradiol measured last year and it was so low that it was just reported as < 18 pmol/L - Range < 100 pmol/L. I got the impression they couldn't measure any more precisely than that when levels were so low.
  8. Arnie Pye

    UK Petition : Stop gaslighting chronic illness patients

    Thought this might be of interest. ME/CFS gets mentioned. https://you.38degrees.org.uk/petitions/stop-gaslighting-chronic-illness-patients It appears to be very new. It reached 10 signatures only yesterday, and at time of writing has 649 signatures.
  9. Arnie Pye

    “I must have contracted swine flu, bird flu or Ebola.”: How patients and general practitioners negotiate liminality during consultations, 2020, Bank

    For those people (like me) who don't know what liminality means : Edit : I started reading the article, but even finding out what "liminal" means hasn't helped me to understand it.
  10. Arnie Pye

    Keith Jarrett Confronts a Future Without the Piano

    If you delete cookies and site data for just the NY Times you can read the article.
  11. Arnie Pye

    Suicidal ideation in non-depressed individuals: The effects of a chronic, misunderstood illness, Devendorf et al, 2018

    This particular statistic can't be trusted. In 2003, when Cavanagh et al published it, the vast majority of researchers and doctors took it for granted that ME was a psychiatric condition. Just like at one time the vast majority of doctors and researchers believed women with MS were hysterical...
  12. Arnie Pye

    Suicidal ideation in non-depressed individuals: The effects of a chronic, misunderstood illness, Devendorf et al, 2018

    Can anyone translate? Does this mean 1) "Chronic illness is often explained with depression" ? 2) "Chronic illness is often explained by depression" ? 3) "Suicide is often explained with depression" ? 4) "Suicide is often explained by depression" ? I hate it when I can't understand what is...
  13. Arnie Pye

    The biology of coronavirus COVID-19 - including research and treatments

    But not me. I use as my yardstick the vaccinations I got as a child or young adult. I don't hear of outbreaks of (for example) diphtheria and whooping cough in the UK, and I was vaccinated against those. Before Covid-19 the fastest development of a vaccine from beginning to end was the one...
  14. Arnie Pye

    The biology of coronavirus COVID-19 - including research and treatments

    Title : Covid-19 Vaccine Protocols Reveal That Trials Are Designed To Succeed Link : https://www.forbes.com/sites/williamhaseltine/2020/09/23/covid-19-vaccine-protocols-reveal-that-trials-are-designed-to-succeed/ If this article is true then having a covid vaccine is unlikely to prevent...
  15. Arnie Pye

    UK: NICE Longcovid guideline 2020

    @Esther12 The quote in your post #4 is absolutely appalling! Turner-Stokes is utterly delusional.
  16. Arnie Pye

    Coronavirus - worldwide spread and control

    Title : Police raid homes of French officials in coronavirus probe Link : https://uk.reuters.com/article/uk-health-coronavirus-france-probe/homes-of-french-health-minister-other-officials-raided-in-covid-19-probe-idUKKBN2701DL
  17. Arnie Pye

    The critical attitude in medicine: the need for a new ethics, 1983, McIntyre & Popper

    The BMJ article referred to can be found here : https://www.bmj.com/content/bmj/287/6409/1919.full.pdf
  18. Arnie Pye

    BPS attempts at psychologizing Long Covid

    Title : 'Long COVID' may affect multiple parts of body and mind, doctors say Link : https://uk.reuters.com/article/us-health-coronavirus-long-covid/long-covid-may-affect-multiple-parts-of-body-and-mind-doctors-say-idUKKBN26Z3AB Author : Kate Kelland [A cheerleader for BPS if I remember...
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