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  1. Jonathan Edwards

    United Kingdom: Independent SAGE

    I wasn't aware that Greenhalgh had anything to do with Independent SAGE? From the outset they were far more sensible than SAGE and their advice would have prevented the whole pandemic at least in Western countries. They may not be that good on LC but I had not heard of any comment on that.
  2. Jonathan Edwards

    University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

    So what on earth are they going to do with the fact that I said I was unhappy or depressed several days this week - which I was, because of having Covid, coming back from holiday and reading the news. It reminds me of those automatic telephone conversations when it says 'I didn't quite catch...
  3. Jonathan Edwards

    University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

    I emphasised that it is unethical to set up any integrated care pathway until they have some EVIDENCE that it is beneficial.
  4. Jonathan Edwards

    University of York, UK - STIMULATE-ICP - Online questionnaire based study about Integrated Care Pathways for chronic illnesses

    Moved post Oh dear me, I answered that very honestly indeed and told them what a lot of bullshit it was. Quite enjoyed it. Presumably NIHR funded. I am wondering who this Lyth Hishmeh guy is - I guess a psychologist?
  5. Jonathan Edwards

    Nutrition and Rheumatoid Arthritis Onset: A Prospective Analysis Using the UK Biobank,2022, Camillia Barbero Mazzucca et al

    Biobank cohorts are probably quite useful for genetic studies but for this sort of environmental factor study one would need to know that there were no various confounding associations. The lower rates of RA reported in Wales and Scotland versus England is odd for a start. The association with...
  6. Jonathan Edwards

    Mitochondrial Mass of Naïve T Cells Is Associated with Aerobic Fitness and Energy Expenditure of Active and Inactive Adults, 2022, Alley et al

    I wouldn't get too worried about what they say. It bears no relation to immunology as I know it. If you are physically active the T cells going and out of the blood are likely to be a bit busier just cleaning up mess. Mitochondrial mass is probably a measure of activation. It is quite normal for...
  7. Jonathan Edwards

    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    The best place to counter White's article may be in the next HealthSense Newsletter. I am surprised they published this but they have a 'right of reply' policy. We may be able to do something but this is such old ground it is hard to know what more to say. Carson has been asked to explain his...
  8. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I was well enough to go to Sainsbury's today so I expect to survive. (For those not in the UK the cryptic reference to Sainsbury's is an increasingly downmarket supermarket store that when I was a lad had sawdust on the floor and separate counters for eggs and bacon when we still had ration...
  9. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It's alright, I often do and the moderators are very good at erasing things.
  10. Jonathan Edwards

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Actually, faulty ideology did try to distort NICE's procedures by means of a text message or email to Gill Leng, but it didn't work out. Caroline and I (also with Covid again) have raised our eyebrows in the HealthSense chat room.
  11. Jonathan Edwards

    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    Actually, faulty ideology did try to distort NICE's procedures by means of a text message or email to Gill Leng, but it didn't work out. Caroline and I (also with Covid again) have raised our eyebrows in the HealthSense chat room.
  12. Jonathan Edwards

    Long Covid in the media and social media 2022

    This is just voodoo, apparently written by a junior level psychiatrist - and it sounds like it. This is really what is meant by person-centred care - in the same sense that a sausage machine provides sausage centred care.
  13. Jonathan Edwards

    COVID-19 patients require multi-disciplinary rehabilitation approaches to address persisting symptom profiles and restore pre-COVID QoL, 2022, Faghy

    Well at least is its bespoke one should expect the male therapists to be in made-to measure pinstripes and the ladies in the very best Cashmere.
  14. Jonathan Edwards

    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    Yes, the discussion of the response from therapists that they don't do his GET anyway suggests a certain peevishness has set in. Even the handmaidens turning against.
  15. Jonathan Edwards

    Health Sense article: Why deny patients with chronic fatigue syndrome treatments that can help?, 2022, by Peter White

    That article is billed as summer2021 but I did not know of its existence. Did @Caroline Struthers ? Edit: No it seems to be current in the April 2022 Newsletter. Same old tired non-sequiturs.
  16. Jonathan Edwards

    Fatigue and Exercise Intolerance as Initial Manifestations of a Nonsyndromic Mitochondrial Disorder Due to the Variant m.3243A>G, 2022, Finsterer

    If I remember rightly it is actually only a proportion in many mitochondrial problems because the cells form a mosaic of abnormal and normal ones.
  17. Jonathan Edwards

    Fatigue and Exercise Intolerance as Initial Manifestations of a Nonsyndromic Mitochondrial Disorder Due to the Variant m.3243A>G, 2022, Finsterer

    Interesting case. They say: Fatigue may be present already without any physical activity or only in association with physical exercise. The latter is also known as exercise intolerance or exhaustibility. That does not immediately sound like exercise intolerance as understood in the context of...
  18. Jonathan Edwards

    BMJ Opinion: The Illusion of Evidence Based Medicine, 2022, Jureidini and McHenry (and some doctors' opinions)

    Yes, I found it a bit dated and lacking practical insight. The senior author Leemon McHenry I know from my philosophy world. A very nice guy, interested in Whitehead, Leibniz and such people but I was not aware of an interest in medicine. There is a muddling up of science and evidence too...
  19. Jonathan Edwards

    BMJ Opinion: The Illusion of Evidence Based Medicine, 2022, Jureidini and McHenry (and some doctors' opinions)

    The other thing is that 'evidence-based' is nearly always rolled out when things are suspect - 'but we can assure you that our treatment is evidence-based'. It is mostly used precisely in those situations, like psychotherapy, where the evidence is rubbish.
  20. Jonathan Edwards

    Chronic fatigue syndrome and subsequent risk of cancer among elderly US adults, 2012, Engels et al.

    They acknowledge this but I am not convinced they have guarded against it well enough.
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