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It got buried in the pages. A UK crossbench peer offering her home to a fleeing Ukrainian family has said the UK’s visa scheme is “unwelcoming” and adding to refugees’ trauma. Lady Finlay is offering space in her Cardiff home to a mother and two children, but has been waiting for three weeks...

But that is not what the German text says. Moreover, my discussions with old colleagues about this when I presented the 'Horrors of PACE' some years back, and also chit-chat over the years, makes it clear to me that cynicism and hypocrisy spill over any half-coherent theorising. The shift of the...

One comes to understand how lucky PWME were to have Ilora Finlay involved: See the account of her attempt to provide shelter for a Ukrainian family...

Sorry @MSEsperanza, but I am now confused as to who is making these comments in response to what? I have lost the plot.

Good questions. And, as an addendum to my post #187, which might seem not quite to fit with what the BPS view is supposed to be, a further thought. I didn't go in to psychiatry, not because the patients did not desperately need help, but because I got the impression that the health...

But surely this is not what the claim refers to. If tinnitus is less intrusive it is less intrusive. There is no need to learn to rate it as such. It just is. Tinnitus is an error of acoustic nerve feedback. Distraction, and the best form is hearing aids, abolishes the tinnitus, it doesn't just...

If flushed appropriately.

I wondered who still used a typewriter.

And of course passing the same virus through another non-human host is an ideal way to create new variants that might be 100 times more lethal. ... Long time passing. When will they ever learn, When will they ever learn?

I am not sure that there is much literature on this. it is just common sense, and the committees that right about scoring systems tend not to get involved in common sense. I don't think it is widely accepted that it is OK to use lower standards - the double-think ensures that those involved...

Politics.

Perhaps further evidence to support the hypothesis that playing with viruses in labs with poor safety standards is not such a good idea.

This statement is preposterous. How does learning to rate your symptoms as less provide any genuine relief? Basically they are saying that if you can brainwash patients to say what you want them to say that is all that matters. This isn't even based on the idea that if the patient believes they...

The most likely explanation to me is that there still aren't that many rheumatologists in rural Scotland and Wales so fewer people get diagnosed. A high proportion of RA is quite mild and very easily missed by GPs following dumb protocols.

Absolutely wrong, for reasons that I do not have time to go into.;)

I don't know the literature but this has been looked at at length. Results with the two systems tend to be similar but not always. The problem is that if even if the two systems correlate 85% the 15% discrepancy might be exactly what makes a difference statistically significant in a study. Most...

Just to add that yes, the ACR grading is still the gold standard 25 years later. This probably reflects the fact that it was put together by a small group of people who, knowingly or unknowingly, had a feel for how real decisions are made. There is another system that exists alongside it though...

Secondly, the merits of the ACR scoring system are complicated, as you suggest, and not necessarily perfectly suited to the ME situation. The multiple threshold structure means that scores of different measures are combined in a way that reflects our normal (and rational) algorithmic decision...

Firstly, let me post this comment from elsewhere to give a bit more background: A similar system for ME would be easy enough. We have discussed it in detail in years gone by. You need one or more subjective endpoints that are the most direct practical indicators of ill health - fatigue is the...

I am not sure about that. When we used penicillamine for rheumatoid a lot of patients lost their sense of smell and taste but they did not get malnourished. They just complained food was very dull.