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  1. Jonathan Edwards

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Enough of those and you'd get a Norwegian guideline...
  2. Jonathan Edwards

    United Kingdom: News from BACME - British Association of Clinicians in ME/CFS

    Therapists come under clinicians I think. Moreover, it would do no harm for BACME to include all clinicians. Therapist organisations are pretty much by definition professional self-help groups. What is needed is an organisation that is centred around learning rather than meal ticket. In...
  3. Jonathan Edwards

    Survey:Improving NICE guidance

    Yes, I did the survey. It is about something rather different but it gives one the opportunity to raise some questions about why NICE feel the need to give recommendations when there is no good evidence base.
  4. Jonathan Edwards

    Articles on NICE guidelines 'pause'

    Something I have flagged up to ForwardME and maybe something to Tweet: Defenders of CBT and GET claim that healthcare workers know these work for some patients. But the PACE results indicate that if there is any real effect it would be too small to distinguish from natural recovery in routine...
  5. Jonathan Edwards

    Articles on NICE guidelines 'pause'

    So now we know that the College of Physicians is involved. That is disappointing but at least it means that the debate will reach people who understand trials. I guess by their experts they may mean L T-Stokes.
  6. Jonathan Edwards

    Articles on NICE guidelines 'pause'

    Breaking news: scientists have discovered that dinosaurs can use email!
  7. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Not that I am aware of. I wonder if this is being hyped by someone along the chain? A huge amount of effort at NICE went into being politically correct and doing everything right for this guideline review. To say they were bamboozled would be pretty implausible.
  8. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    It's the Colleges that matter (RSM is a club). The psychiatrists may well complain but their competing interest would be obvious. Those who have heard of Wessely, Sharpe and White will already know their links to PACE. The GPs might complain but in a way they are not 'experts' here. Iamnot...
  9. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I think O'Neill's logic maybe was to get a positive spin out before SMC pour treacle over everything.
  10. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    An interesting question is exactly which physicians might come out of the woodwork and criticise NICE on this. So far few if any physicians have expressed concern - perhaps with the exceptions of Turner-Stokes and Garner. Perhaps it is high time the College did take a position. Maybe some...
  11. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Sean said he was furious about it and ensured that it was put right for the e-version. Yes, I wonder why the other commentators were anonymous? Like me they were commenting on something already 'known'?
  12. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    That looks like a screenshot of the reply from Sharpe on the Times e-version. If anyone wants to tweet response to Sharpe's: Someone should tell Professor Jonathan... I would love to say: If it was well known that there is no other measure why did PACE set up actometry and abandon it when a...
  13. Jonathan Edwards

    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I am not sure I have seethe whole article? All I have seen is the screenshot on the previous thread page. Is there more? I do not have access.
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