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I remember saying this exact thing to my GP. It would be far more concerning if I was just breezing through, saying everything is fine!

Well it could also be used as a cognitive ability test because I totally missed that warning! Just got confused why I was answering the same questions again. I'm very grateful to you all for explaining what's going on.

I think as much as they are afraid they are also furious and incredulous that someone would have the temerity to question their empire. I honestly think a lot of them cannot conceive of any valid criticisms because they are so far gone on their own theories.

I have POTS and consider dysregulation of water intake/use a major part of my illness. It is a complete failure of homeostasis in tune with my lack of temperature control also. There are many aspects of my illness linked to a lack of homeostasis. I take Fludrocortisone to help with the...

Exactly. A clip of Emma Shorter's powerful testimony would make an enormous difference to the tone of the piece.

They bent over backwards not to mention M.E./CFS. There were questions asked about it that were voted to the top but never asked. Brian Cox seemed to try to steer it that way at one point but the medical panel appeared to deliberately stay well clear. Disappointing.

I think they've badly underestimated the difference between gaslighting LongCovid and M.E. patients. Using the same old tired, discredited arguments against a vast group of people who are largely in contact with each other and all got ill at roughly the same time is not going to work this time...

I had the AZ vaccine nearly 48hrs ago. I was added to group 6 after writing to my GP, which I am very grateful for. The trip to the surgery was my first trip out in over a year, (I was housebound even before shielding), but it was very well organised so I didn't exceed my usual step count...

I don't block many people on Twitter but Henrik Vogt is on that short list. He wrote some unforgivable abhorrent comments about a family that suffered the most horrendous M.E. related tragedy a few years ago. This is like a watered down version of a similar sentiment.

Except when one of the someones in question literally did that very thing in writing in his blog post a few days ago!

I think this is for a different Sally?

I'm not sure how much help this is but when I went through the UC assessment approx 2 years ago my GP told me that DWP sent them a form to fill in about me as part of the assessment. I have no knowledge of what was in it. I can't help with question 1. Not much information but maybe it's useful...

Well Jo Gideon MP wants to treat brain fog with walks by the River Trent! Her whole speech was nonsense. They cut off Carol Monaghan due to short time limits but she spoke well. There have been a couple of good mentions of M.E. Andrew Gwynne spoke well of his own experience of Long Covid.

Thank you to everyone who has worked so hard on this. It is an incredibly impressive submission and I am very grateful to S4ME for achieving something which I am currently unable to do.

Gary, if you see this I would like you to know that you are such an amazing person. The energy and commitment you have put in to both M.E. and serving the people of the Channel Islands whilst also dealing with this terrible diagnosis is truly admirable. You are a brilliant writer and presenter...

Ditto

Exactly, it's such a complicated issue that needs proper research. My first bout of mild illness caused hypersomnia; I slept 18 hours a day but could function at a tolerable, albeit slow and quiet, level in between. This time I have more severe symptoms and had dreadful insomnia initially which...

Medecins Sans Frontiéres (sp?) are on the ground in Europe for the first time because of this - according to a podcast I listened to. They are working in many countries, focusing on the areas the governments aren't managing. They are such a good charity. ETA: Done some quick research and they...

And if they'd been doing contact tracing they would have a lot of this information...

Yes, I submitted a general account of a typical day to show how limited I was, on a separate sheet in addition to the ESA50 form. The (very understanding - which was a pleasant surprise) nurse doing the assessment said it was very useful to help them understand. This was for ESA and I got put in...