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  1. shak8

    The biology of coronavirus COVID-19 - including research and treatments

    I'm wondering: omicron is to become endemic, say most all, but what if and when another powerful variant comes along...will it/could it displace the endemic omicron, do you think? Probably no one can foretell.
  2. shak8

    How individuals with low back pain conceptualise their condition: A collaborative modelling approach, 2022, Hodges et al

    I think it best to go back walking on all-fours and relieve the fascinating researchers of their subject matter.
  3. shak8

    Can the long term using of pregabalin in fibromyalgia affect the choroid and retinal nerve fiber layer? 2021, Biçer et al

    I have a smaller optic nerve on one side. And history of having increased ocular pressure during menopause years, which reverted to normal pressures. Guess I won't be doing a trial of pregabalin anytime soon. I tried gabapentine, did nothing but make me dizzy and I'm already blonde (or...
  4. shak8

    Subjective Cognitive Dysfunction in Patients With and Without Fibromyalgia: Prevalence, Predictors, Correlates, and Consequences, 2022, Wolfe et al

    I am not fond of the first author (Frederick Wolfe) of the referenced study above. Here is another paper he contributed to: (re: Somatic Symptom Disorder, Body Distress Syndrome and Fibromyalgia) https://pubmed.ncbi.nlm.nih.gov/32305723/ For the record, Frederick Wolfe decried giving PwFM that...
  5. shak8

    Proteomic Investigation in Plasma from Women with Fibromyalgia in Response to a 15-wk Resistance Exercise Intervention, 2022, Wahlen et al

    Wow, resistance exercises, especially in the upper body. As person with moderate to severe FM, I could NEVER participate. I have tried too many times, making myself worse for a week or more. Exercise is NOT the first option of treatment though that meme has been forced down doctors' throats...
  6. shak8

    Complaints from patients with [FND]s: a cross-sectional UK survey of why patients complain and the effect on the clinicians..., 2018, Bolton

    A huge chunk of a doctor's job is to show compassion. Or at least interest. Bedside manner. The relationship counts. That said, if the doctor finds being compassionate a problem, then he/she needs to make the time to yell and scream at the squash ball or punch pillows (and call patients names...
  7. shak8

    COVID-19 pandemic and exercising: a cross-sectional study with 1156 patients with fibromyalgia, 2021, Martins et al

    The FIQ and later revised of FIQ-R (fibromyalgia impact questionnaire) was developed at OHSC (univ of oregon health science center) by the group led by London-trained rheumatologist, Dr. Robert Bennett, recently deceased, a compassionate and excellent scientist/clinician who discovered the low...
  8. shak8

    Systematic reviews do not (yet) represent the ‘gold standard’ of evidence: A position paper, 2022, Moore et al

    Some researchers (a relative term) have built their careers developing 'valid' instruments (like the Chalder fatigue scale, the FIQ {fibro impact questionnaire) that are 'validated' to be accurate no matter who administers the test, or who the patient is. One problem is that the instrument is...
  9. shak8

    The Social Course of Fibromyalgia: Resisting Processes of Marginalisation, 2022, Brown

    The abstract's wording is a little misleading. Although the author states early on that fibro "is neither an illness nor a disease" (I would differ and say simply 'etiology{cause} unknown'). Still, the 26 women and 2 men, or at least some of them, were extensively quoted as to how the...
  10. shak8

    Systematic reviews do not (yet) represent the ‘gold standard’ of evidence: A position paper, 2022, Moore et al

    To me, a systematic review is just a literature review, the first thought before embarking on a tentative project for research, before an hypothesis. Unless you can hack off every bit of each study to figure out whether they tested what they say they tested and see that all the parameters (like...
  11. shak8

    Social Support and Subjective Health in Fibromyalgia: Self-Compassion as a Mediator, 2022, Brooks et al

    Social support in fibro: a husband and friends who stick with you when you get sick. Friends who take you on outings to places you love on a regular basis. A doctor who expresses compassion whenever you mention your FM. He/she asks: how are you doing with your FM these days and lets you speak...
  12. shak8

    Creation of a Multispecialty Clinic for Patients with Central Sensitization–Based Chronic Pain Conditions, 2021, Loftus et al

    Mayo Clinic...who else would simpleton this. What on earth could a patient with FM learn from an approach that isn't specific to FM (though many FMers do have IBS). I am for specialized clinics with intelligent, compassionate, and dedication MDs and staff. Talented human beings to relieve...
  13. shak8

    Neural correlates of the attentional bias towards pain-related faces in fibromyalgia patients: An ERP study using a dot-probe task, 2022, Mercardo

    Here's a research report about attentional bias regarding chronic headache in which they conclude: "It is concluded that both hypervigilance and sustained processing are critical factors for the maintenance of chronic pain." my bold The 2010 research report...
  14. shak8

    Neural correlates of the attentional bias towards pain-related faces in fibromyalgia patients: An ERP study using a dot-probe task, 2022, Mercardo

    A painful grimace like a three-year-old about to tantrum. My neighbor uses this expression to express sympathy. A most annoying grimace and I hope that type of painful expression wasn't used in the study. Why would a painful expression in an image evoke attention to pain itself in a FM patient...
  15. shak8

    Study protocol ... phase III trial ... of low-dose naltrexone (LDN) in patients with fibromyalgia (INNOVA study), 2022, Younger, Luciano et al

    It's been several years since the pilot study of LDN for FM by Younger. I'm glad they got funding to scale this up, even though the results of the pilot study (if pilot is the term) were over-hyped, perhaps. This is good news. Younger thinks that the glia (in brain) are instigators and...
  16. shak8

    Closed Uni of Edinburgh: Irritable bowel syndrome (IBS), chronic fatigue syndrome (CFS) and fibromyalgia in those aged 45 and older – the impact of emotions

    I wonder what the impetus for this questionnaire was in the mind of the student PhD candidate Perhaps the student met one person or even several with one of said conditions whose emotions seemed over the top, or was depressed or despondent. Life circumstances (a break-up of a romance, the...
  17. shak8

    A Mobile Health Application for the Fibromyalgia-Like Post-COVID19 Syndrome: Study Protocol … (2021) Blanchard et al

    I doubt whether all the long covid patients targeted will have had extensive testing to rule out organic (autoinflammatory and organ damage.) This is because health care for long covid is lacking and there is no national insurance program in the US, and that so many have lost their jobs and...
  18. shak8

    Use of Dietary Supplements and Perceived Knowledge among Adults Living with Fibromyalgia in Norway: A Cross-Sectional Study, 2022, Kvael et al

    At least these aren't some arcane supplements. Magnesium if skin absorbed and by-passing the gut (diarrhea, cramping) may be useful for pain.
  19. shak8

    Covid-19 vaccination experiences

    Yup. Shringrix ain't fun.
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