Search results

  1. shak8

    Mechanisms of chronic pain and fatigue [Trial in progress, April 2018]

    As a former RN (I only mention it because I took a research class) with moderate-severe fibromyalgia, I have to say that getting enough sleep is helpful for the everpresent pain. And yes, 5% more or less is the figure of sufferers. Not all of that 5% have severe fibromyalgia, not by a longshot...
  2. shak8

    Well-known, famous people with fibromyalgia

    No, (yank here). Reminds me of the actor Morgan Freeman who was diagnosed with fibro but refuses to do any publicity for the cause. Afraid he won't get more work.
  3. shak8

    Well-known, famous people with fibromyalgia

    Akin to "a form of arthritis" or a form of "mental illness" or a form or forum of fungus, perhaps?
  4. shak8

    Fibromyalgia: 'Like red hot lava radiating through my body'

    My comments (as a fibromyalgia person). The doc states that docs have a deficiency disorder: that they aren't good with illnesses that are not simply, recipe book-like treatments. Doctor deficiency disorder is my new diagnosis for this lack of comprehension/compassion. DDD Ok, fibromyalgia is a...
  5. shak8

    Fibromyalgia: 'Like red hot lava radiating through my body'

    I'm sure all of us are sensitized greatly by the phrase: all in your head. I can't tell you how many times I've heard researchers of fibro say: haha, it's really all in your head because it is a brain disorder, not a somatic-functional psychiatric disorder, but something amiss in the way that...
  6. shak8

    Fibromyalgia: 'Like red hot lava radiating through my body'

    The old adage about fibro that it is "all in your head," meaning a brain disorder, does not encompass the newer research about small nerve fiber abnormalities in fibro, nerves in the hand, for instance. The initial trigger site is not known, nor the etiology nor the progression.
  7. shak8

    Fibromyalgia: 'Like red hot lava radiating through my body'

    who is the target audience of this little broadcast? It features a dancer who got fibro. OK, it is basically an illustration of what fibro feels like and the other crap is just thrown in, a sort of junk-pile effect. It does not give helpful advice (other than gentle movement) to sufferers, but...
  8. shak8

    Netflix "Afflicted" - ME included

    Yes, that's him. My gut opinion about alternative docs is that they are the lazy ones, too lazy to work hard in a busy medical practice. (my humble opinion from 18 yrs of being an observant RN).
  9. shak8

    Netflix "Afflicted" - ME included

    Just wondering, is that Dr. Eric Gordon of Santa Rosa, Calif.? If so, his wonderful IV therapy (thanks to a reused IV needle) gave a CFS suffering friend Hep C. about 10 yrs ago. A cash upfront business. Buyer beware. So much for the risk/benefit of these unproven therapies. I will spare myself...
  10. shak8

    Coat hanger pain - any suggestions for relief please?

    For some relief I use capsaicin cream at the highest dose. It does help moderate pain, at least for me. Muscle relaxants? tizanidine or such. Heat, cold, rest and wait it out, I hope you get better.
  11. shak8

    The Beginning of the End for Fibromyalgia Patients

    And I don't think his research is valid.
  12. shak8

    The Beginning of the End for Fibromyalgia Patients

    I've been a fibro patient since 1996 and my impression of Frederick Wolfe has been very negative. He is a jerk, in my opinion, a nit-picker, a disbeliever. I discount whatever he says. He seems very aggressive and misanthropic in his views.
  13. shak8

    Toni Bernhard - How to Respond to Unkind Remarks When You’re Chronically Ill

    A bit late here replying...what to say to a person to whom you've explained your condition over and over ad nauseum, and she says, of course you can drive over to see me; it's only 30 minutes. You can do it if you try. She's really an ex- friend, prone to bouts of mindreadingness, hostility...
  14. shak8

    The New Yorker: The Neuroscience of Pain

    Yeah, I delved into that article and hope that the compound she is testing sees the light of day.
  15. shak8

    ‘Exercise to me is a scary word’: perceptions of fatigue, sleep dysfunction, and exercise in people with fibromyalgia syndrome.., 2018, McVeigh et al

    Duh, a sense of loss of not only the ability to exercise, but loss of ability to work, to apply oneself, to concentrate. Exercise is the focus of most of the researchers listed (as if exercise is the cure?).
  16. shak8

    Tues 20 Feb: Livestream of post-Unrest panel discussion, incl. Ron Davis, Lily Chu, Montoya, Tuller

    Ah, yes. Homeopathy (homeo pathetic) is now nano-pharmacology. Oh how pseudo, just fling a few greek words, and voila, instant scientific approval, yeah right. Good semimar. Very impressed with Ron Davis and open journal to come.
  17. shak8

    My problem with Jared Younger Lab research

    I've written to his lab at the University of Alabama asking for results of his cytokine levels in fibromyalgia summer 2017 study. Haven't yet heard back from them. Maybe it's too soon. Younger is very adept at communications (YouTube broadcasts) to the patient community. I guess what I am...
Back
Top Bottom