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thanks for the link of the original theory. Interesting reading. there's always a difference between what the originator of a theory states from what subsequent researchers do: simplify and distort the theory. The original theory states: it might or it may increase pain. I found it interesting...

Not much can be gleaned from only the abstract of a study. I did note that David Sherry has done several juvenile arthritis studies, listed on PubMed. I need a way to access the whole study report. Also, in the US clinicaltrials.gov does had ethical review board for each study listed, I...

Hard to know what really went/goes on in this experiment (which is what is was). I was horrified at the mindset of the researcher, as outlined in the NPR article. thanks for reminding me of the nastiness in all this.

This study is only applicable to children with the CRPS (Chronic Regional Pain Syndrome). Need to read the whole study (paywalled) to tease out: 103 patients initially. Two week treatment with intensive aqua therapy, aerobic exercise, not using the word pain, psych trmt. 95 became...

Well maybe if Medicare for All is adopted here in the US, we'll have to shuck out this psych-fraud research funding. I do love the idea of exposing the waste of money given to this type of research. Hmmm....how to approach that?

In another article, perfectionism (studied for 50 years!) is associated with anxiety, depression and self-doubt. In other words, it's a close synonym to STRESS. The article https://www.tandfonline.com/doi/full/10.1080/10615806.2017.1384466?src=recsys

I think these "researchers" suffer from ethical-basic intelligence-and obsession with finding fault disorder, a perfectionism pathological and menacing.

Seems to be confusion in the medical literature about the MUPS definition. It is a very broad category whose reason for being seems to be cost-containment and what to do with the patient. The result is always: refer to psychological treatment. Woe to said patients who receive less than optimal...

Yes, this is the most useful role of the survey. The causative factor(s) aren't precisely known. So, at least the wide-ranging definitions of PEM are an opening to reasses and redefine PEM with an eye to discerning differences clinically which may point to different causative factors or innate...

Droste's cocoa with skim milk and no sugar. Elevates mood and cognition (for me). Makes for some happiness whenever swallowed. Yum.

Previous and current research study has self-selected participants. So folks with mild ME sign up as they show up as scheduled. Certainly not generalizable to all ME people.

There was a previous pilot study done. Guess those "research subjects" were self-selected. In other words, they had minimal to mild ME and could get to the pool as directed and on schedule.

Found this today, see pages 49-51. Veterans Administration (USA) Therapists' Manual of CBT for Chronic Pain. https://www.va.gov/PAINMANAGEMENT/docs/CBT-CP_Therapist_Manual.pdf Sure, there are people who need some nudges to help themselves. BUT, pages 49-51, the same old crap take by non-pain...

I hear you. Point taken!

No, not a rectocele. A surgically made pouch because of getting rid of much of the rectum due to the severe inflammatory process there (and elsewhere in the colon).

I perused the transcript of the Australian video. It's the same rubbish: you can train your brain to stop feeling pain. that the brain is plastic therefore you can change pain. Again, show me proof that this works. My pain has been the same annoying, life-changing deal since 1998. Just like ME...

I can and have (yesterday in 13 degree C induced pain) cheerleaded myself through some tough pain moments. "Don't focus on it." "You'll be home soon and can get heat to the area, rest, take meds." I would submit that every pain patient already employs CBT cheerleading to herself. Sure, there...

Friend of mine (ex-friend really) has ulcerative colitis (belongs to the chronic inflammatory, crohn's family). Her risk of bowel cancer is 37x normal. She has immune attacks on leg vessels, random, who-knows-where next attacks. So, not well controlled. Also has scar tissue in rectal area which...