Search results

  1. shak8

    Placebo effect discussion thread

    Which electrical therapy--I'd like the author to come out with it.
  2. shak8

    Feasibility of therapeutic music listening in fibromyalgia: a randomised controlled pilot study 2022 Raglio et al

    Their music as "complementary treatment." Complementary = alternative = integrative = quackery (unless definitively proven otherwise). My n=1 as a PwFM is this: music is no longer pleasurable, except for classical guitar. It is simply too much sensory input. Also, in the pilot feasibility...
  3. shak8

    Longitudinal association of sedentary time and physical activity with pain and quality of life in fibromyalgia 2022 Gavilán-Carrrera et al

    I haven't, couldn't access whole report. However the number of subjects measured at five years (185) were greater than the ones measured at two years (175). I assume that the folks measured at two years were then measured at five years, for comparison's sake. But then, where did the extra 10...
  4. shak8

    Effect of herbal cake-separated moxibustion on behavioral stress reactions and blood lactic acid level and muscular AMPK/PGC-1α signaling.. 2022 Xu

    Even Mao didn't use Chinese traditional medicine because, he said, it didn't work.
  5. shak8

    Holistic or harmful? Examining socio-structural factors in biopsychosocial model of chronic illness,‘MUS’& disability, 2022, Hunt

    Neoliberalism is an economics concept and is: shrinking government, including its responsibility for taking care of people in need. Espouses privatization of everything. Associated with the Libertarian Party and conservatism in general. https://en.wikipedia.org/wiki/Neoliberalism
  6. shak8

    Covid-19 vaccination experiences

    Got both the flu vaccine and the Pfizer hybrid yesterday. Transient feeling feverish, aching on top of FM ache, sore arm muscles. Wired. Better this morning. The woman giving me the shots here in California was from Hertfordshire/Oxford and she consciously tones down her accent, running her...
  7. shak8

    Covid-19 vaccines and vaccinations

    I apologize for that. I should have warned. I forget that others are affected bigtime (because I'm not, though I hated the visuals).
  8. shak8

    Measuring dietary intake

    I was or still am a participant in the Harvard Nurses Health Study and we had a dietary intake questionnaire for several years (I questioned its accuracy by recall of the participant to the researchers and they assured me it was "valid.") They might give you some info on setting yours up...
  9. shak8

    Covid-19 vaccines and vaccinations

    https://www.science.org/content/article/how-sars-cov-2-battles-our-immune-system If you are interested in the virus, this is a pretty spectacular article in Science (the magazine).
  10. shak8

    Opposition to exercise therapy & psychotherapy for fibromyalgia?

    Interesting points. I think the advice given to FM patients is to do some form of exercise, whatever is tolerated. Sometimes GET is mentioned. But it is assumed that FM patients, in general, have much more tolerance to exercise (however mild) than ME patients (in general). CBT is the answer to...
  11. shak8

    The Costs of Long COVID, 2022, Cutler

    Back in the day (1999-2000) when I finally applied for US social security disability, I first had to exhaust 6 months of state disability. And prior to applying for social security disability (federal), I also went through a vocation rehab program run by the state to exhaust all possible...
  12. shak8

    Effect of Pain Reprocessing Therapy vs Placebo and Usual Care for Patients With Chronic Back Pain an RCT, 2021, Asher, Gordon et al

    Great if you can be taught to ignore chronic pain (mostly used on chronic back pain). The trick must be to convince yourself that you are the cause of the pain or the pain continuing. If your nerves are churning out aberrant pain signals and won't stop doing it, though drugs mask that effect...
  13. shak8

    The Chrysalis Effect

    Copyediting problem or maybe it's the Chrysalis copy editing effect: M.E. is how E.l.a.i.n.e. punctuates it.
  14. shak8

    International, multidisciplinary Delphi consensus recommendations on non-pharmacological interventions for fibromyalgia, 2022, Kundakci et al

    Wow, oracle! Seventeen experts said yes or no to the surveyor's choice of non-pharma modalites such as magnetotherapy, cupping, acupuncture, and the usual suspects: the memes of aerobic exercise, mindfulness (don't you love it), and sleep hygiene. why the emphasis on non-pharma? Got a...
  15. shak8

    Cognitive Behavioural Therapy to Optimize Post-Operative Fracture Recovery (COPE): Protocol for a Randomized Controlled Trial, 2022, Busse et al

    @Hutan Interesting career trajectory this Dr. Jason Busse. Undergrad degree in microbiology. Masters in molecular and medical genetics. Chiropractic professional degree (why?). Then a Phd from McMaster's in epidemiology (these are on his Linked-in account). On the Chronic Pain Network website (...
  16. shak8

    A Mobile Application to Help Self-Manage Pain Severity, Anxiety, and Depressive Symptoms in Patients with Fibromyalgia Syndrome: A Pilot Study 2022

    Bottom line is that fibromyalgia contains much more complexity than CBT can begin to work with. CBT believes in Santa Claus or that they are Santa Claus. That all the symptloms and sequelae can be overcome.
  17. shak8

    A Mobile Application to Help Self-Manage Pain Severity, Anxiety, and Depressive Symptoms in Patients with Fibromyalgia Syndrome: A Pilot Study 2022

    Purpose of this loose pilot study seems to be to compare to in-person CBT vs this app (called Fibroline, originally developed in a pediatric pain department). Not a lot of subjects. No detailed knowledge of subjects (whether or not they were using other pain control measures, for example)...
  18. shak8

    San Francisco Chronicle (opinion): Biden says the COVID pandemic is over. He could have fooled me

    I've planned my snappy comeback if I am ever reproached about my mask: "I'm immuno-compromised."
  19. shak8

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    I must have been tripping. You're right it's caregiver. I knew I was 'off' with the caretaker mention.
  20. shak8

    What items/documents would you like to send to GPs/primary care physicians if you were doing a mail-out?

    Yes, a dialect thing: in the US, it is "caretakers." Those who take care of someone. We'd have a "custodian" take care of the furnace in a school. But there is "custodial care" also, which I'm not sure means what except that it is caretaking.
Back
Top Bottom