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  1. shak8

    Aripiprazole - Abilify

    Tardive dyskinesia can happen at low doses and be hard to detect. There is also fatal malignant neuroleptic syndrome, and diabetes, of course. See the website drugs.com professional section on warnings: https://www.drugs.com/pro/abilify.html Unless you are psychotic, I wouldn't go near this...
  2. shak8

    [FM] as a Heterogeneous Condition: Subgroups of Patients Based on Physical Symptoms and Cognitive-Affective Variables Related to Pain, 2021, Martinez

    Hmm. I wonder if the subjects' responses on the questionnaires were done once or several times over a period of time to capture flare-ups, life stress impacts, sleep time, pain levels, distress levels, which might affect which group one fit into. The aim to to provide better (psychological)...
  3. shak8

    Well-known, famous people with fibromyalgia

    And yet fibromyalgia can arise de novo, in calm waters, as it did for me, except perhaps that I was having lower estrogen levels at the age of 46 and having signs of menopause. But at the time, I was doing exceptionally well life-wise, and mentally. I'd say that I had never felt more stress-free.
  4. shak8

    Good nutrition when energy is very low

    Half an apple covered in peanut butter with walnuts plastered in.
  5. shak8

    Covid-19 vaccines and vaccinations

    My close friend is electing not to get vaccinated. She is in her 40s and read something her friends sent her, which I refused to delve into. I stick to the Twiv podcasts by virologists, immunologists, and an MD, where papers are critiqued on the issues. I feel very strongly pro-vaccination and...
  6. shak8

    Good nutrition when energy is very low

    A dark chocolate emergency bar at my bedside...hmm, in the first five minutes, I'd declare an extreme emergency.
  7. shak8

    ..role of self-efficacy & catastrophizing in .. improvements in disability, pain & fatigue .. patients w/chronic widespread pain.., 2021, Thompson

    Chronic widespread pain = fibromyalgia. Which is resistant to any intervention. So, when you have a relapse you catastrophize a little. So damn what. When you're feeling better, you're feeling better and have forgotten the down time. I need a psych to tell me that?
  8. shak8

    Physical activity in the treatment of fibromyalgia, 2021, Masquelier and D'haeyere

    I've never found that exercise reduced my fibro pain. Improves mood at times, if outdoors, but it leads to activation of the pain generating muscle tissues. The dose of exercise has to be so carefully monitored for that reason and it varies, and it is hard to ascertain if you're doing yourself...
  9. shak8

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    When Pariante says (2:22 in the BBC interview) that it is the same effect on the body, whether you suffer grief or a virus, that is a misleading exaggeration. I've had experiences with grief (divorce because I was ill, death of parents) and it never put me in bed (I have primarily fibro). I...
  10. shak8

    A Noted Pain Psycholgist's Reference Page: not encouraging.

    She has some liason with medical students and departments at UCSF, at least. My quip is that it's only psychologists who take on pain patients unless it's interventional pain practices. And these pain psychologists really inflate their agenda/facts to a degree that blows my mind.
  11. shak8

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    I'm beginning to think that psychology is just a marketing ploy. A pyramid scheme to hook up other psychologists to a 'new' trademarked form of CBT wonderful or revisionist ACT and the workshop & materials and the certifications (! especially those !) cost the participants thousands of...
  12. shak8

    A Noted Pain Psycholgist's Reference Page: not encouraging.

    https://www.zoffness.com/resources/ I was seeking some chronic pain online support group information and ran across this noted pain psychologist. Her resources for patients page did not inspire confidence. The opposite, in fact. To me, this is troubling, akin to the relegation of ME/CFS to the...
  13. shak8

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    The title "...very far from all in the mind..." Is wrong. Very far seems to imply a relationship, a cause and effect. She should have written: it has nothing to do with the mind.
  14. shak8

    Potential mechanisms of the fatigue‐reducing effect of [CBT] in cancer survivors: Three randomized controlled trials, 2021, Mueller, Knoop et al

    Why do psychs think that people need to be led like toddlers through the CBT wicket? Isn't fatigue due to cancer something you can figure out for yourself by trial and error. Must we start eating CBT with every meal?
  15. shak8

    Guardian: Long Covid is very far from ‘all in the mind’ – but psychology can still help us treat it - by Carmine M Pariante, April 2021

    Is there really hope in trying to reason with these people? In my experience as a nurse, yes stress tended to worsen any chronic illness in the short term for some people. So did Christmas holidays and drinking a lot caused an increase in hospital admissions. For me, the problem with the...
  16. shak8

    Mindfulness-Based Program Plus Amygdala and Insula Retraining for the Treatment of Women with Fibromyalgia: A Pilot RCT, 2021, Sanabria-Mazo et al

    Upon more reflection: this mindfulness stuff and teaching about fear and anxiety's effects are incredibly naive a propos decreasing pain in fibromyalgia. Fibromyalgia is not a normal phenomenon where relaxation brings a good deal of relief. Fibromyalgia which is the generation of aberrant...
  17. shak8

    Mindfulness-Based Program Plus Amygdala and Insula Retraining for the Treatment of Women with Fibromyalgia: A Pilot RCT, 2021, Sanabria-Mazo et al

    I think the researchers tried to do something seriously with their data, but as they point out, there is the golden effect of the therapist-researcher on the subjects. They might have explored the placebo response generated by the therapist involved by using different therapists and see how that...
  18. shak8

    Specifics of chronic fatigue syndrome coping strategies identified in a French flash survey during the COVID‐19 containment, 2021, Moncorps et al

    Doctors' inability to say "We don't know", governments stupid cost-cutting in the NHS, and shunting of patients to psychologists and psychiatrists, plus the vacuole, the emptiness of support for lucid research. Disgusting treatment of the truly sick, a measure of how civilized a culture is. NOT.
  19. shak8

    Cardiopulmonary and metabolic physiology during hemodialysis and inter/intradialytic exercise, 2021, McGuire et al

    As a dialysis nurse, I observed the tiny exercycles that a few patients used during dialysis (early in the treatment time). I really didn't think it was a great idea, but whatever.
  20. shak8

    Understanding, is it necessary in every contact or friendship?

    It's a fathomless mystery how to get what you need in a relationship whether a doctor, a friend, a relative or neighbor. I wish a friend or relative would say to me (actually one did once): Wow, I can really see how hard it is to be in your body, to have all this going on. Recently and...
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