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mood

For reference to how unserious LCAP is, I posted a social media post [not linking for privacy reasons] which got pretty big, which was basically outlining my concerns with LCAP. I got a response from the founder (which he spammed 16 times), it claimed my concerns were “hateful and false” did...

I wonder if the persistence is the cause of immune dysregulation and such. Or the initial infection dysregulates the immune system which leads it to not fully eliminate covid-19.

I looked through their website and nowhere could I find listed who the founders/ceo/employees are. The closest I could find was: This website is being developed by people with Long Covid who are journalists, professors, scientists and experts to serve as a blueprint for a documentary production...

That is a good shout. Given this is on their front page: “ANTIVIRALS NOW” a new short film ️ directed by @JoshuaPribanic on SARS2 viral persistence reveals a destabilizing truth about Long Covid. Researchers, patients, activists & science illustrate how no one is safe from the threat of COVID...

What if that money went into confirmation of the WASF3 findings. Like I can see so many ways this money can have hundreds of times more impact than this.

LCAP has started a campaign to try and push Sander’s long covid moonshot bill, to only allow research funding to go into viral persistence. Senator Sanders' suggested legislation for Long Covid lacks direct focus on viral persistence of SARS-CoV-2, allowing for it to be combined with various...

Hi I wanted to create a thread on the organisation long covid action project to keep up with what they are doing. (A lot of which worries me.) This organisation says and claims as fact that long covid is a single disease caused by viral persistance. From their front page: Long Covid is a...

That honestly sounds like a good way to give cognitive pem

I always assumed that Wessley and co. genuinely believe in their theories and that they are correct. But seeing this number of inconsistencies in their own theories almost makes me think they might have malicious intent. (I’m sure they don’t but it is not hard to imagine).

Thank you for the very detailed and helpful answer. Much appreciated:)

Wow scrolling through that made me so angry. And the number of contradictions are crazy!

Hahhahah that is brilliant. My bad I updated the original post to clarify “Medically unexplained physical symptoms”.

Hi. Since the MUPS (medically unexplained physical symptoms) crowd often like to classify ME as MUPS. I’m wondeting if there is a review or any type of research explicitly arguing against the classification of ME as MUPS?

If anyone has been wondering why ME/CFS is getting so much more attention in Austria in the past few years, a lot of it is due to the fact that two members of one of the richest families in Austria became sick with ME/CFS. This family has been using its influence and money to fight for ME...

Wow I read your amazon review of the book and it is really well done. Thanks for writing that.

You might benefit from reading the NICE guidelines. Specifically section 1.17 to give you an idea on severe ME. :) https://www.nice.org.uk/guidance/ng206/chapter/Recommendations#care-for-people-with-severe-or-very-severe-mecfs

Yes, just so you know: many of the most severe sufferers, of ME, are unable to hold a conversation at all.

Thanks Dave for the explanation. And I’m not sure I can say it here, but thanks so much for everything you do for the ME/CFS community, you are an amazing person. :)

I think it would be important to mention in this study that you are already self selecting a cohort of less severe ME/CFS patients. For many people with severe ME, or even moderate, participating in a long conversation on potentially emotional topics is not possible due to Post-exertional...