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I agree, where is the noise? It looks to clean?

Do we have any evidence for that? Some pwME have specific intolerances but it is unknown if that is part of ME. and it may be correlated with severity, who knows about cause and effect.

Thanks @Trish Annoyingly, I am well enough to have blood tests once in a blue moon, but I am not well enough to have blood tests at 8am. I “sleep” from 11pm—1pm and anything much shorter than that leads to significant PEM. Unfortunately the nursing service in my area only does blood tests at...

I think I’m developing hair loss and I think it’s due to ME. (I’m only 20 and there isn’t much history of significant hair loss in my family). (my hairline used to be straight in the corners and now it forms a sort of inward circle) I guess in general me being very severe was bound to have...

If you don’t mind cloud rap, Sundance by Népal was one of my favourite soothing songs to play before sleep until I lost ability to listen to music due to severity.

Were sequence A and B randomly selected? If so is the difference in response low enough to be due to noise?

Yes. I was enchanted by a privileged position in society until getting severe ME led to a crumbling house of cards and disenchantment. The more I learn, the more the case of ME doesn’t seem particularly rare, systemic injustices are common, they just aren’t very well known.

Wouldn’t anti-inflammatoiry properties would be expected to be linked to worse COVID outcomes because inflammation is part of how the immune system fights COVID? I guess anti-inflammatory properties would help with cytokine storms which may be linked to worse COVID outcomes.

This kind of stuff was deeply engrained in the eugenics movement. Through spurious correlations (that mainly can be explained by socioeconomic factors) they painted marignalised ethnicities, poor people, queer people as “inherently inferior”, for example by using IQ questionnaires.

I found this particularly interesting. And this led me to wonder if there was any link between psychosomatics and eugenics/facism. The reality seems to be really complicated. Here’s my “mini lecture”/ notes I took. Please note these are my notes and sometimes my theories, don’t take unsourced...

We’re talking about 50% of people on the apiprazole facebook group saying the had a short term improvement which eventually led to long term worsening. This isn’t a small proportion.

I don’t have the energy to follow but thank you for doing these literature searches @forestglip it is so important.

It’s hard to not see this personality “research” as similar ableist pseudoscience to what the differences based of race (leading to false claims of white genes being “better”) was during the eugenics movement. A poorely conducted excuse for research that gets funding and attention because it...

The only way this “research” is valuable is seeing how systemic denial of illness, mistreatment by the medical system, and having a disabling chronic illness might affect someone’s personality. Like yeah sure. I did go from a smiling extrovert to a frowning introvert, but the causality this...

I do remember making a week’s worth of minimum wage salary and getting an all paid fine dining lunch in a single day by being a “medical model” for demonstration of some sort of new imaging technology at a conference a couple years ago. Weird experience, money was good thouh.

I digged deep because I was having trouble finding it, and it looked like I had indeed misremembered. They helped recruit and hosted webinars for a dodgy “stem cell” study, but they never funded it. See this thread...

Thanks for the input everyone. I’m going to go with solve ME. According to Charity Navigator, three employees of the OMF (CEO, CFO, CDO) earn a decent amount over 200’000$ (US) per year which feels slightly excessive especially when taking donations from people in precarious situations...

It’s surprising culturally how uncommon it is to participate in clinical research. Blood donation is something we’ve cemented as a way to give back and help, but participation in clinical tests really doesn’t have the same cultural standing.

No Abstract Provided My phone isn’t letting me copy exerpts from pdf. But the reason I’m sharing this is it’s a rather interesting peak into how pwME might be treated in China (it seems a diagnosis of “somatic depression” is likely). LINK (PDF)

(Just to be clear I’m not sharing this because I think cold water immersion helps ME, it probably leads to PEM, but because the impacts of exertion and stressors on the immune system is very interesting and might gives clues towards PEM mechanisms)