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Is there any chance It’ll be voted on before the change in government. While the Democrats have a senate majority?

Somehow even though I’ve had dozens of bloodtests over the past couple years only a single one measured CRP. And it was the tiny level of >0.3 mg/dl. Note that I was very mild back when this test was done and even though I got PEM, only aerobic exercise or partying would trigger it. And...

Given there seems to be a societal and medical bias towards ailments that affect “healthy” people. As opposed to lifelong disabling ones, perhaps having an institution focusing on “chronic disease” isn’t the worst idea. Though RFK is one of the last people I’d choose to create it and run it.

And already are through loopholes and skirting the rules. The alternative medicine industry is ever growing, and “wellness” influencers (many of which have messaging ripe with ableism) tend to be extremely good at selling products.

A possible Long COVID ally who is an outspoken RFK supporter (meaning she would be likely to pass vetting process) to nominate for a cabinet position could be Dana Parish.

RFK Jr. Is Crowdsourcing Cabinet Picks for Trump Just days after former President Donald Trump won the presidential election, his onetime-opponent turned supporter, the anti-vaccine superstar Robert F. Kennedy Jr., has set up a website to solicit suggestions for key Cabinet roles. Anyone can...

Here are two others: https://www.linkedin.com/in/rory-preston https://www.linkedin.com/in/jaime-seltzer

RFK’s only reference to Long COVID I can find.

Exactly. I really hope some of our advocates who have enough energy are willing to bite the bullet and try to get us what the funding we deserve, even if we fundamentally disagree with the views of the person we are pleading to.

Obviously the mental health impacts of the COVID lockdown have led to people becoming overweight and unequivocally explain the sudden high percentage of disability. (sarcasm)

Well I don’t know exactly how to say this. But despite the fact he’s an anti-science conspiracy theorist who will make things worse in general, if ME advocates effectively reach him and lean into his message a little too woo him and his aides, we might be able to get a boost in funding out of...

Kennedy seems to see HIV as a sort of “manufactured” culprit for AIDS, apparently there is a broader movement behind this called “HIV denialism”. Kennedy thinks that research funding was then wrongfully nearly solely invested into HIV and therefore marginalising what he calls “non-HIV AIDS”...

Relevant extracts:

I’m skimming through Kennedy’s book right now, but he seems to use the neglect of ME as an argument for his hatred of Anthony Fauci. He seems to see ME as a biomedical illness, and says it’s chronically underfunded, but also spouts baseless claims about it being “HIV negative AIDS” and being...

A quote from RFK’s anti-fauci Book

Found a very interesting quote from someone’s book description: ““Neenyah Ostrom's reporting on the Chronic Fatigue Syndrome epidemic from 1988-1997 is getting increased attention thanks to Robert F. Kennedy Jr. He discusses her work extensively in his best seller, The Real Anthony Fauci” I...

That’s a shame, it seemed like advocacy was starting to influence her, and that long COVID was atleast “on her radar”.

The chronic disease stuff sounds promising until you realise he thinks most diseases are caused by environmental factors such as bad food and not enough exercise and random chemicals. (Don’t get me wrong some of them are but this generalisation would be very harmful to ME/LC patients)

Warning, the following is possibly negative, but I think it’s fully backed by the facts: I don’t have the exact numbers, but with 1.65 billion invested in Long COVID (most of which has been used up) the US government must have contributed over 50% possibly over 80% of all research funds ever...

Perhaps I shouldn’t have voted in this poll? As a very severe person the answer is obviously no. But maybe you aim to ask only mild people?