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  1. Yann04

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Can’t access WAPO. But this dude would be a disaster for Long COVID. Looks like he’s a “herd immunity” anti-masking advocate who was anti lockdown and downplayed the deadliness of COVID. https://en.m.wikipedia.org/wiki/Jay_Bhattacharya
  2. Yann04

    Long Covid drug BC-007 research news

    Honestly I doubt companies will shy away from doing clinical trials on drugs they have patented, just because the funding they receive from governments is conditional on publishing results. I do think they’d put a lot of pressure on government officials through their lobbyists though. At the...
  3. Yann04

    Long Covid drug BC-007 research news

    But doesn’t the public health system end up atleast partially funding a lot of these trials done by private companies? If that’s the case, I don’t see why they couldn’t require a public release of anonymised data or even a publishing of negative results.
  4. Yann04

    Long Covid drug BC-007 research news

    Soundis like a problen with our medixal system if health companies have no incentive to publish negative data even if it is useful for figuring out things about a condition.
  5. Yann04

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Thanks for the detailed reply. You know a lot more than me here, but since congress doesn’t have a strong republican majority, they’ll probably need to convince more moderate GOP senators too. I could see a major NIH shakeup, and I could see RFK getting nominated, but in my intuition, it’ll...
  6. Yann04

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    I don’t see a good way forward here. I mean too be fair, it’s not like we don’t get shit research all the time anyways, so perhaps on the off chance kennedy would fund something good it isn’t the worst idea.
  7. Yann04

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    I’m debating whether to do the same. I’m just not so sure whether it’s worth bringing his attention to us. I don’t want him to fund a whole new batch of “healthy diet and exercise” type research which seems to be what he’s into.
  8. Yann04

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    He thinks money is wasted on things like COVID and infectious diseases because their impacts are overblown while chronic health issues caused by “chemicals and bad foods” and natural remedies like healthy food and exercise are ignored. I think he also thinks reckless research into infectious...
  9. Yann04

    I don’t understand ”subgroups”

    Someone probably has a better explanation than me, but the way I understand it ME is defined quite losely, fatigue and symptoms that get worse with exercise, and we don’t have strong data of biological issues. On top of that it has so many different symptoms that can present in some people but...
  10. Yann04

    Daridorexant - treatment for insomnia

    I can’t tell you much but I have a very sensitive digestive system and occasionally taking small daxidorexant pills when I wake up in the middle of the night and can’t fall back asleep again has not seemed to impact my gut at all.
  11. Yann04

    What can wage development before and after a G93.3 diagnosis tell us about prognoses for myalgic encephalomyelitis?, 2024, Kielland et al

    Interesting (and a little depressing) study. I’m actually suprised more people diagnosed with “postviral fatigue” didn’t fully recover. I couldn’t find anything specific in the article but it doesn’t sound like strict criteria. Nice to see a critique of the rehabilitation model Also really...
  12. Yann04

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Wallitt is one of the more “alternative health friendly” people out there. I could see the opposite happening, him getting a promotion.
  13. Yann04

    Long Covid drug BC-007 research news

    This is a common thing. I see almost as much people saying papers chose the wrong outcome measures for what should have been a positive effect, than the opposite. And as most of us on this forum can attest to, understating findings seems far less common than overstating. People want to...
  14. Yann04

    Impacts of the 2024 change in US government on ME/CFS and Long Covid

    Axios Article goes over changes Kennedy has proposed: https://www.axios.com/2024/11/14/maha-movement-federal-health-agencies
  15. Yann04

    Opinion Sex differences in postacute infection syndromes, 2024, Julio Silva and Akiko Iwasaki

    Don’t understand much of this but it looks interesting.
  16. Yann04

    Perrin Technique

    On this weeks episode of, “Things people who recover are attributing their recovery too, even though blinded studies show no benefit”…. (note I have no clue if there are any studies of the Perrin technique specifically.)
  17. Yann04

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    I think there’s a loophole for budget bills (which this would probably be part of) where a 51 vote majority is needed instead. There is near zero chances the democrats take back the senate before 2028. The 2026 map doesn’t allow the 4 flips needed without a crazy D+10ish environment. Though...
  18. Yann04

    Incompetence and “Useless” Research into ME and Long COVID

    This is more of a “my person experience” rant then a high quality discussion as I don’t have the energy for the latter right now, but here goes: Why do a chunk of published studies in ME/LC feel absolutely worthless? Why is it almost easy to find errors in published papers in this discipline...
  19. Yann04

    Blood Volume Deficit in POTS Assessed by Semi-Automated Carbon Monoxide Rebreathing, 2024, Kulapatana et al

    Haven’t read the paper but is it not slightly problematic to have a very different proportion of sexes in control vs test group?
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