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  1. shak8

    Lack of curiosity

    I am not an M.D., but am a former nurse and now patient. I think docs think according to an inner medical algorithm and according to their specialty. And some docs aren't as curious or as intelligent or emotionally empathetic as others. And they have to practice under strictures: the medical...
  2. shak8

    Service based comparison of group cbt to waiting list control for cfs with regard to symptom reduction and psychological dimensions - Heald et al 2019

    They used a four-point fatigue scale, with terms like "more fatigue than usual" "less fatigue than usual" something like that. Only four points for a fatigue scale is disqualifying as bona fide ME/CFS research. Oh, and individual ICBT (carrot bullshit therapy) versus Group CBT, oh boy. Now...
  3. shak8

    Article in Bella magazine - 'Please Believe ME' 26 Sep 2019

    Incredibly cruel and selfish of them. I want to scream.
  4. shak8

    BBC programme You and Yours: Are you dependent on prescribed painkillers?

    What I like about methadone for chronic pain is that it is long acting and one doesn't develop a tolerance as much as one does with morphine-type opioids. German engineering. It has other actions besides on the opioid receptors in the brain (some glutamate thingie). It's cheap and is used in...
  5. shak8

    Shooting Pain in Leg and Finger Tip on Left Side

    I've recently started to have startling new shooting pains in my shins and thighs and a couple of times in my arms. The legs I assume are my fibro hot spots -central sensitization. I tend to do more than one or two leg muscle exercise reps. I just don't think and then I pay for it. Over and...
  6. shak8

    US - ME/CFS Benefit Concert with Marian Call Saturday, October 5th, 2019 at the Mystic Theatre

    I'd go if it were a matinee (driving problem); I could take the train.
  7. shak8

    Flower Arranging Helps Reduce Fibromyalgia Pain

    No, I think that Israel is a big exporter of flowers. Perhaps some relative of the researchers was looking for a new market for leftover and wilting flowers from the Negev flower farms. (https://www.israel21c.org/business-is-blooming-for-israeli-flowers/
  8. shak8

    Flexibility exercise training for adults with fibromyalgia Cochrane Systematic Review 2 Sep 2019

    I can personally attest to a large increase in pain with certain mild stretching exercises. Because of central sensitization in fibro, certain muscle areas are always problematic and any eccentric muscle contraction will result in increased pain, sometimes severe. I've had episodes where...
  9. shak8

    Flower Arranging Helps Reduce Fibromyalgia Pain

    Hehe:heart_eyes::heart_eyes::heart_eyes:, but there were a lot of potheads as participants.
  10. shak8

    Flower Arranging Helps Reduce Fibromyalgia Pain

    According to this Medscape report https://www.medscape.com/viewarticle/916994 Unfortunately for me, lifting my arms is never therapeutic. Strong floral odors can be unpleasant also. Surely the more severe cases (who couldn't reliably turn up at the venue) dropped out.
  11. shak8

    What does fold change mean?

    Start at zero, or baseline of whatever you are testing about. "Fold" means x or multiplied by x. So starting at zero, increase by 0.6x.
  12. shak8

    Fibromyalgia "Conference" via Jarred Younger email touting it

    I did write him a quick email reply saying exactly that.
  13. shak8

    Fibromyalgia "Conference" via Jarred Younger email touting it

    https://www.conqueringfibromyalgia.com/encore?r_done=1 This webpage has the interviews. Mostly chiros, alternative (quack) MDs, reverse fibro? Right. That will hook a person.
  14. shak8

    Fibromyalgia "Conference" via Jarred Younger email touting it

    I got an email from the Jarud Younger Lab today touting a email conference led by a Dr. Aviles. So, out of journalistic curiosity, I signed up for the newsletter and started to get a series of daily emails by quacks who are doing their fall promotions. These are cash businesses. There's no...
  15. shak8

    Does anyone use Topical Capsaicin Cream?

    I use capsaicin cream for my arthritic knees and back pain, as well as for fibromyalgia muscle areas in my mid-back. It is recommended by arthritis doctors because it is effective and has been studied. It doesn't work instantaneously though. Get the highest strength for the best effect It works...
  16. shak8

    Basic questions about metabolism

    Just eat. A balanced diet, lots of vegetables. Food is meant to be enjoyed, savored. It is nice to know that your pooh is from food ingested 48 hours ago, roughly. So if you're constipated, you didn't eat enough fiber and water or took an extra dose of opioid, two days prior...roughly. Simple...
  17. shak8

    Mast Cells, Neuroinflammation and Pain in Fibromyalgia Syndrome, 2019, Theoharides et al

    I hope this is a pretty important avenue for more research. Sounds promising to me.
  18. shak8

    Psychological predictors of fatigue, work and social adjustment, and psychological distress in rheumatology outpatients: A short report. 2019 Chalder

    What a screwy skewed schema. (Psychology is a recent little brother of philosophy and in this case, completely irrelevant and a huge waste of tax money.) So-called objectivity? Where? Because they use phrases? Da-da-ga-ga has more meaning.
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