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  1. shak8

    Self-Compassion and Adherence in Five Medical Samples: the Role of Stress, 2018, Sirois and Hirsch

    Limitations of the study: participants have self-reported diagnoses (not confirmed by professionals). The study admits that self-report of compliance measures (of exercise, diet, meds, etc.) is "somewhat reliable." Not a representative sample. Also, the sample is self-selected (includes...
  2. shak8

    Effects of a health education program on cytokines and cortisol levels in fibromyalgia patients: a randomized controlled trial, 2018, Pernambuco et al

    Question the 11 week interval between the assays of cortisol and interleukins. Do individual subjects have the same levels of interleukins and cortisol generally throughout weeks and months? For instance: research on the effect of exercise on cytokines in ME: the chemicals are tested just...
  3. shak8

    Director of Danish Health Authority Letter to the Editor JoPR

    I think this guy is suffering from functionally- low IQ disorder. And FLID is not a complex symptom. Sadly, only a diagnostic marker(s) for ME will make the shrinks abandon their pseudo-science, their one trick pony, their it's-all-in-your-mind obsession. There should be a pathology named this...
  4. shak8

    Cambridge Handbook of Psychology, Health and Medicine (2007) with chapter on CFS from Chalder and Cairns

    Maddening. May those psychs and shrinks or their loved ones get one of our illnesses. Then let's talk. Until then, trust what the patient says. Reminds me of my new primary doc. I describe my pain (thus justifying the drugs that enhance GABA, including one low-dose opioid). To which he nods...
  5. shak8

    Article: Verywell: Exercise for Fibromyalgia and Chronic Fatigue Syndrome

    You're absolutely right. I got confused. I had assumed in the past that she was diagnosed with CFS, but that came from reading her (for years) articles on About.com on her fatigue issues, no doubt fibro-related. I even looked it up yesterday but became confused today. Ach.
  6. shak8

    Article: Verywell: Exercise for Fibromyalgia and Chronic Fatigue Syndrome

    Her articles are many and they are short and generic for the most part. Not very helpful.
  7. shak8

    The Psychologist: "Does psychology face an exaggeration crisis?", article by Brian Hughes

    Finding some cute little things to be grateful for, sure. Takes about a minute out of your day. How on earth does that spillover, have an effect on pain and fatigue. Common sense, people! Might as well say: don't stub your toe if you help it or bang your elbow. I'll shut it up now... I hate...
  8. shak8

    The Psychologist: "Does psychology face an exaggeration crisis?", article by Brian Hughes

    My feeling about Kaiser Permanente (from being an RN and a later a member of Kaiser) is that they will espouse anything that saves them money and puts the burden of getting better onto the patient.
  9. shak8

    Metabolic fingerprinting for diagnosis of fibromyalgia and other rheumatologic disorders (2018) Hackshaw et al.

    Very interesting! Could they be holding back the identity of specifics because of a possible patent on a diagnostic test kit in the future? Or too soon for that...probably.
  10. shak8

    Why does fibromyalgia need a catastrophization scale?

    I can see how the idea of catastrophizing originated: a female patient with fibro, perhaps just recently diagnosed, with overwhelming symptoms of pain-confusion-and the myriad of other associated symptoms, walks into her docs office in tears and wails on about how she can't work, can't sleep...
  11. shak8

    Why does fibromyalgia need a catastrophization scale?

    With fibro and not ME, I don't worrying about showering. Usually. Though I have bouts of vertigo at the mere onset of a cold virus. But I do worry about having an extended (week to months) flare-up where I won't be able to grocery shop due to severe disorientation (driving not possible). Even...
  12. shak8

    Why does fibromyalgia need a catastrophization scale?

    Also, thank the gods, the Sullivan pain-"research" PDF is old and, I hope, out-of-date.
  13. shak8

    Why does fibromyalgia need a catastrophization scale?

    As a fibro-person, I know I will be doing a bit of catastrophizing when I am in a severe flare-up. It's a normal response to extreme pain and fatigue, etc. Suddenly one is having an extremely abnormal human existence! Certainly I've mastered catastrophizing (a lot) over an 18 yr history of...
  14. shak8

    Jarred Younger confirms neuroinflammation in brains of ME patients

    I've been following Jared Younger's research for awhile now. One thing puzzles me: he has an undergraduate degree in psycology, a PhD in psychophysiology (not hard basic sciences, as far I know). And some fellowship in experimental neuro-psychology or something like that. I would rather a...
  15. shak8

    Mechanisms of chronic pain and fatigue [Trial in progress, April 2018]

    As a former RN (I only mention it because I took a research class) with moderate-severe fibromyalgia, I have to say that getting enough sleep is helpful for the everpresent pain. And yes, 5% more or less is the figure of sufferers. Not all of that 5% have severe fibromyalgia, not by a longshot...
  16. shak8

    Well-known, famous people with fibromyalgia

    No, (yank here). Reminds me of the actor Morgan Freeman who was diagnosed with fibro but refuses to do any publicity for the cause. Afraid he won't get more work.
  17. shak8

    Well-known, famous people with fibromyalgia

    Akin to "a form of arthritis" or a form of "mental illness" or a form or forum of fungus, perhaps?
  18. shak8

    Fibromyalgia: 'Like red hot lava radiating through my body'

    My comments (as a fibromyalgia person). The doc states that docs have a deficiency disorder: that they aren't good with illnesses that are not simply, recipe book-like treatments. Doctor deficiency disorder is my new diagnosis for this lack of comprehension/compassion. DDD Ok, fibromyalgia is a...
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