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I am on week one of a five-week trial of alpha lipoic acid (if indeed that's what's in the capsules) for some neuropathic fibromyalgia, pre-diabetes pains. The literature is fairly positive on lipoic acid for neuropathy. The reason I opted to try it because a McGill Uni-trained MD on an...

I (in the Venn between fibro and ME, if there is such a thing) just donated. In 1968 or so, Ed Bayley was the first dean of the UC-Berkeley graduate journalism dept and offered my dad a science instructor post in the department. Poor Dad pooh-pooh my diagnosis of fibromyalgia back in 1996...

I hope your government (or lack of) doesn't adopt our hodge-podge system of healthcare. But troubling to me is how institutional psychiatrists were able, in the NHS, to pull a Crowley, a Sharp, etc. Makes me worried about NHS over here in the USA. Slight change of subject: is there a chance for...

Even moving in a 94 degree warm pool is incredibly fatiguing. Water exerts so much pressure. If you have muscles that are always painful, and you challenge them by moving through water, not pretty. And yes, noisy and crowded. Maybe one could do 5 minutes but why waste all the effort just in...

and in the same issue this: https://www.theatlantic.com/science/archive/2018/11/psychologys-replication-crisis-real/576223/

After reading that article this morning, I will try not reading any more articles about pain in news outlets nor routine publish-or-perish research articles. Ditto for the opioid crisis. I don't need to be reminded that society wants to take away my low dose opioid, the only treatment that...

Why the incessant professional ($$ ?) need to rehash and reclassify all sorts of nonsense in the psychiatric field if not because psychiatry has limited efficacy. They are psychopharmacologists. Oh what luxury to have debates with colleagues about this tripe when patients suffer from mistrust...

Fact: fibromyalgia has been recognized as fibrositis, and previously rheumatism, in the 1800s per Robert Bennett,MD of Oregon Health Sciences Center (myalgia.com) rheumatologist and clinician with 5000+ fibro patients. A poisonous example, yet again, of the fluff (and this is nasty stuff)...

If he had been a woman of child-bearing age, perhaps the doc would have run the full iron-ferritin tests and made the diagnosis. Still, a dimwit of a clinician, what a lack of caring.

Interesting review of current trends in thinking and research about fibro. Useful bibliography. But I am not sado-maso. Of course, it hurts my feelings to read about the emphasis on psychiatric illnesses but then, fibro can drive you mad (in so many ways: OCD, depression, bipolar). If there is...

Yup, central sensitization, which is a theory of how chronic pain becomes chronic, is now going to be a corrupted phrase. It's the big brush-off. They don't like patients who present with symptoms they can't slap a diagnosis on. So wham, in the waste-basket. And of course, the patients are...

Whether the compound(s) that will be developed will be effective (note how much the FDA-approved fibro drugs were over-hyped by the medical community for years before the real-life, rather poor efficacy was teased out) will remain to be seen. I'm not a fan of the one-shot, "take this magic...

There is no evidence in the research that all or even most cases of fibro are the result of physical or emotional trauma. Many many cases arise de novo. There is research by burkhard, et al, about sexual abuse victims in childhood having a higher incidence of fibromyalgia, but I think her data...

In the introduction of the study: "In exploratory correlation analysis in the FMS sample, lower cognitive performance was associated with higher pain severity, depression, anxiety, negative affect, alexithymia and pain catastrophizing, as well as lower self-esteem and positive affect. However...

thanks for the link of the original theory. Interesting reading. there's always a difference between what the originator of a theory states from what subsequent researchers do: simplify and distort the theory. The original theory states: it might or it may increase pain. I found it interesting...

Not much can be gleaned from only the abstract of a study. I did note that David Sherry has done several juvenile arthritis studies, listed on PubMed. I need a way to access the whole study report. Also, in the US clinicaltrials.gov does had ethical review board for each study listed, I...

Hard to know what really went/goes on in this experiment (which is what is was). I was horrified at the mindset of the researcher, as outlined in the NPR article. thanks for reminding me of the nastiness in all this.

This study is only applicable to children with the CRPS (Chronic Regional Pain Syndrome). Need to read the whole study (paywalled) to tease out: 103 patients initially. Two week treatment with intensive aqua therapy, aerobic exercise, not using the word pain, psych trmt. 95 became...