Search results

  1. Keela Too

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    I saw that on Twitter, and thought it was not the angle I was expecting to get picked up, but you know it might get people to look..
  2. Keela Too

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    All told I think this went very well. I've just sent an email to Jim Shannon to thank him for his contribution and to express optimism for the future. I think the Minister's response at the end was as much as we can expect at this stage. He did seem sympathetic, and hopefully he will now go...
  3. Keela Too

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    All these different speakers, each with a different style, each with a message supporting the patient perspective, is VERY powerful.
  4. Keela Too

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Is MS back-pedalling? Look what he's tweeting now (okay 2 hours ago, so before this debate)
  5. Keela Too

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Probably typical of most of us in N.Ireland. LOL We don't do gentle drawl. :)
  6. Keela Too

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    I can't take credit for that event as I am no longer on the Hope committee, Joan McParland organised it. She is phenomenal and deserves huge credit.
  7. Keela Too

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    I have to say Jim is not missing and hitting the wall here. I appreciate what he's saying.
  8. Keela Too

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Oh wow... Jim Shannon mentioned me by name.... LOL..
  9. Keela Too

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    This is going well. I was expecting some resistance from other view points, but they don't seem to be starting yet??
  10. Keela Too

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Wow ... Sharpe wrote to Carol Monaghan MP telling her that her behaviour was not becoming of an MP! Crikey. Her response got a hear hear from the room.
  11. Keela Too

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Oh... my tears in my eyes after Carol read Merryn's words.
  12. Keela Too

    Kelly McLellan seeks feedback on his draft Edinburgh ME Scale

    This - totally this. It is the potential that we now lack. When I was well, even if I had done very little for a month or two, I could still go out the next day and walk 8 miles, chatting all the way, without a problem and zero after effects - bar perhaps a slight blister or minor muscle...
  13. Keela Too

    Michael Sharpe skewered by @JohntheJack on Twitter

    @Adrian I've sent you a few more files with screen captured tweets. File nos now go up to number 15 (let me know if they have all arrived) that will take the series up to post number 1500 on this thread. Many thanks also to a @large donner who kindly sent me an Amazon voucher as a thankyou for...
  14. Keela Too

    Michael Sharpe skewered by @JohntheJack on Twitter

    How did I miss this earlier! This is just what it seems like isn't it!
  15. Keela Too

    Kelly McLellan seeks feedback on his draft Edinburgh ME Scale

    In truth, there are so many sliding variables along which each of us can be at different places, that a scale of descriptors is always going to be clumsy. I'm not sure any of the descriptive scales I've read work any better than this one. However this is the first one I've seen that is...
  16. Keela Too

    Michael Sharpe skewered by @JohntheJack on Twitter

    I emailed them to Adrian, who has put them on here somewhere, and linked them up thread. I have got as far as post #600 in this thread. I've been putting screen shots of all the tweets in each batch of 100 posts into a document at a time. Does anyone else want to do a few too? Maybe some...
  17. Keela Too

    Kelly McLellan seeks feedback on his draft Edinburgh ME Scale

    Thinking about this statement "2,000 steps a day, everyday, is a struggle. Surprisingly, they can still walk 8 to 10,000 steps in a day, as a one off," I monitor my steps, and at no point would I go much above a doubling of my average number of steps, even for a single special occasion. For...
  18. Keela Too

    Kelly McLellan seeks feedback on his draft Edinburgh ME Scale

    I like that this scale drops down to half of the previous each score time. This way giving more detail at the lower ends. I'm a bit confused by the numbers after the % scores - would it be better to state what each one represents with the main descriptor of the level? It seems on first...
  19. Keela Too

    Michael Sharpe skewered by @JohntheJack on Twitter

    Okay... Wonder should I abandon the mission I started last night.... and try this instead? Sounds like a new skill I need to learn. Although with so many sub threads, this may still lose a pertinent tweet by accident?
Back
Top Bottom