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Yes, I'll try to remember that. Usually I think it is posted first on Facebook, and after a while on their website. But I agree both links should be added :-)

She also initiated a Facebookgroup for ME-patients and alternative therapies. This while she was still an employee at the ME/CFS-centre in Oslo. She does not work there anymore. She seems very angry with the patient organisation and patients that are sceptical of undocumented treatments and...

This is written by a psychologist called Nina Andresen. She had ME herself and has now recovered (I think with diets and alternative remedies). Once in a while she writes articles claiming that the ME Association and ME-patients aren't willing to be open enough for undocumented treatments thus...

I see your point. Regarding Troll.. I don't know how constructive it is to characterise people/meanings with that label in the ME-debate. I'd like the message to be pro science for ME and a way to calm waters rather than heating things further.

True - we can use whatever words we want and make is super simple. The Refugee Council needed a campaign (and to spend a lot of money) to get across what #Trollmelding indicates. We don't have such resources, so a hashtag which is easy to understand, like and support is important. There are so...

Yes. I see your point. Using PWME will result in two things to get across instead of one. #Donating2ME ...perhaps..

Yes, I agree that right now the focus is on Tuller's fundraising. But I am thinking that a more general hashtag might be better instead of creating a new one when Tuller's campaign is over. The campaign is donating to research (and Tuller) as a response to tweets/articles etc from the...

Exchange between Julie Rehmeyer and Michael Sharpe concerning Tuller's crowdfunding

I like it as well. I hope more suggestions will come though. Perhaps we can give this a couple of days and see how the thread and suggestions develop, have a poll among our favourite hashtags and then launch?

I like it. I was thinking that IF we can start a campaign, perhaps it can live on also after Tuller's crowdfunding is over? So perhaps the hashtag should be more general?

Love the brainstorming! keep them coming! I am completely out of further ideas myself right now, but will keep pondering.

Yes! Also I want it to be something non aggressive. Simply a support for research, which anyone can agree with.

Thanks. Didn't know that.

Agree. Short hashtag is good. #Science4ME is a good suggestion, but perhaps a bit confusing if it refers to two different things. #PwME&Science perhaps?

I made a thread about this campaign idea here. Come join!

I am sure many of you saw Michael Sharpe's latest tweet about Tuller's crowdfunding. That spurred a lot of response and, even better, donations to the crowdfunding. Could this actually be a resource for us? Can we turn badmouthing and negative characteristics of ME-patients and biomedical...

Wow. Michael Sharpe's tweet certainly backfired :) The Norwegian Refugee Council recently created the hashtag #Trollmelding (Trollmessage). If you see something infuriating on social media on racism, negative characteristics of refugees etc then as a response you can donate to the Refugee...

This made me LOL

And this was Michael Sharpe's comment. It prompted me to give a second donation to Tuller

Peter Tatchell tweeted a support for ME-patients today Which was noticed by among others Michael Sharpe who responded with Edit To Add: