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  1. Kalliope

    #OMFScienceWednesday - collection of the posts

    New Science Wednesday Post from OMF
  2. Kalliope

    David Tuller's new crowdfunding campaign (April 1, 2018)

    I am so relieved and happy!! Thank you big donor, whoever you are!
  3. Kalliope

    Norwegian professor on ME and gender dystrophy

    I wonder if they believe nobody talked about ME until they heard about it for the very first time?
  4. Kalliope

    Norwegian professor on ME and gender dystrophy

    Professor emeritus Ivar Sønbø Kristiansen from the Department of Health Management and Health Economics has written a blogpost in a medical newspaper where he draw parallels between gender dystrophy and ME as fashion illnesses. I post this mostly for its oddity - but feel genuinely sorry for...
  5. Kalliope

    Article and documentary about ME from Finland - Yle Arenan

    It is popular in Norway as well :(
  6. Kalliope

    Article and documentary about ME from Finland - Yle Arenan

    In this documentary Olli Polo was very general. Together with excellent descriptions from patients and carers this documentary turned out very well. I wish it had English subtitles as well. The psychiatrist who believes ME is something you can get by learning about it looked like a fool. He is...
  7. Kalliope

    Article and documentary about ME from Finland - Yle Arenan

    Am watching the documentary now. Anton's mum says: To conquer this disease seems to be as difficult as learning how to fly.
  8. Kalliope

    Article and documentary about ME from Finland - Yle Arenan

    Article (in Swedish): Yle: Mystiska trötthetssyndromet ME/CFS knäckte Anton, 28, efter en vanlig influensa - psykiater tror att sjukdomen sprids via sociala medier google translation: Mystical fatigue syndrome ME/CFS cracked Anton, 28, after a regular flu - psychiatrist believes the disease is...
  9. Kalliope

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Thank you everyone who have voted. I am bumping this thread in case others want give their opinion on which slogan/hashtag preferred. #Justice4ME is in the lead.
  10. Kalliope

    News from Scandinavia

    @mango is there a way we could support Stora Sköndal? A petition perhaps with acknowledgement of their great work which Sweden can be proud of - and other countries should learn from. That they should get all the resources necessary in order to provide the care the patients need.
  11. Kalliope

    News from Scandinavia

    This magazine also had a good article on ME-research. Året runt: Det forskas intensitet på kroniskt trötthetssyndrom google translation: It is researched intensively on chronic fatigue syndrome Prof. Jonas Blomsberg talks about research into ME and mentions mycoplasmic bacteria, other...
  12. Kalliope

    News from Scandinavia

    This is sad news. I remember they had a temporary stop also shortly after they had started accepting ME-patients, because so many patients contacted them. They had to hire more people. Hope more resources and more employees will be the result also this time. Perhaps the closing of the...
  13. Kalliope

    News from Scandinavia

    Very good article in the Swedish women's magazine Året Rundt. A typical story from ME patient Concetta and a bit about the ME-ward at Stora Sköndal and how they are working. Året Runt: Concetta lider av kroniskt trötthetssyndrom: "Jag fick vänta åtta år på min diagnos" google translation...
  14. Kalliope

    ME-conference in Norway - April 18th-19th - RituxME-results will be presented

    Haven't heard much report from the seminar, so don't know if any news regarding RituxME were shared. Apparently there is still some time left until the study is published. ETA - but here is a nice report from the rehabilitation center who took part in organising the seminar (nothing about...
  15. Kalliope

    Turning badmouthing of ME/CFS on social media into something positive - a fundraising possibility

    Sorry @Samuel The poll's limit is ten options and now we have already started voting.. Not sure how to include your suggestion .. :oops: Perhaps I should have waited a few more days to see if others wanted to join in with propositions, but I was at the same time eager to move this a bit forward..
  16. Kalliope

    Rethinking the treatment of CFS — a reanalysis and evaluation of findings from a recent major trial of GET and CBT (2018) Wilshire et al.

    Front news at the Norwegian site Forskningno (Research.no) who provides news on research and science for a general audience. The article is mainly based on a radio segment from Sweden about the PACE-trial, the re-analysis and an interview with dr. Per Julin from the ME-ward at Stora Sköndal...
  17. Kalliope

    David Tuller's new crowdfunding campaign (April 1, 2018)

    70% And an update (also sent as e-mail to donators) Your generosity has helped me close in on my crowdfunding goal, with two weeks left to go. I plan to send everyone an individual thank-you note once the campaign is over. For now, I hope a group thanks will suffice!--David
  18. Kalliope

    David Tuller - Trial By Error: Two Interview Podcasts, and "Conflict of Interest"

    Two Interview Podcasts, and "Conflict of Interest"
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