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  1. Kalliope

    Merryn Crofts - media and inquest

    The Times has an article today. One needs to register to read the whole article. ME sufferer who was dismissed as hysterical vindicated in death
  2. Kalliope

    Australian news article: “What causes chronic fatigue? What we know, don’t know and suspect”

    Sciencealert has picked it up: Here's What Science Knows So Far on The Causes of Chronic Fatigue Syndrome ETA: They have over 9 million followers on Facebook ..and 68 K followers on Twitter
  3. Kalliope

    News from Scandinavia

    Yes, you are right, @andypants That was an excellent article. I completely forgot to post it here! ME-patient Ragnhild recently turned 30 years old. She wished for donations to OMF as birthday presents and raised over 35 000 NOK (4 300 USD, 3200 GBP). She explains life with ME very well. Linda...
  4. Kalliope

    News from Scandinavia

    Absolutely, and I wonder if part of the explanation is that the documentary maker spent two years making the film and that some of the journalists at TV2 have some knowledge about ME from before. That is why it is so crucial to get more science journalists and other journalists to attend...
  5. Kalliope

    News from Scandinavia

    ME has been the first topic on Norwegian TV2's main news broadcast two days in a row. Tonight we met a family with a daughter with severe ME. They have been reported twice to the child welfare authorities. The contact person in the Norwegian ME Association for carers was interviewed as well as...
  6. Kalliope

    News from Scandinavia

    Another news section about ME from Norwegian TV2. 2 mothers to ME-sick children in the studio, as well as professor Ola Didrik Sagustad and the creator of yesterday's documentary, Pål Schaatun. Prof. Saugstad says that the knowledge about ME varies a lot, but is improving. However, many...
  7. Kalliope

    News from Scandinavia

    Agree! I noticed however that Lightning Process coach Live Landmark is complaining on Facebook that she and several others with a biopsychosocial approach had been in contact over a long period with the journalist behind the documentary. Several of them were filmed/interviewed, but were cut...
  8. Kalliope

    News from Scandinavia

    The documentary about ME and RituxME that was sent tonight on Norwegian television was amazing. No big news revealed, but presented the disease very respectfully, had a lot of information and gave good insight to the researchers and their work at the cancer ward at Haukeland university...
  9. Kalliope

    News from Scandinavia

    Article about ME in connection to the documentary tonight about RituxME and ME on Norwegian television. TV2: Emilie (18) har ligget i senge sammenhengende i ti måneder google translation: Emilie (18) has been lying in bed for ten months Includes statements from prof. Wyller who actually...
  10. Kalliope

    OMF creates new Harvard ME/CFS Collaborative Research Center

    This #OMFScienceWednesday post definitely deserves its own thread :emoji_confetti_ball::emoji_clap::party: OMF creates as new Harvard ME/CFS Collaborative Research Center and expands Stanford Data Center We are proud to announce that OMF has funded $1.8 million for the establishment of a new...
  11. Kalliope

    News from Scandinavia

    Trailer for tomorrow's ME-documentary on Norwegian television. The documentary has followed some ME patients and the RituxME trial for two years. It will be aired on TV2 tomorrow at 21.40. Here is the documentary's Facebook page.
  12. Kalliope

    News from Scandinavia

    Thanks once again, @Andy for helping out. I keep forgetting that there are alternatives to google translations..
  13. Kalliope

    News from Scandinavia

    Article in the Swedish newspaper Aftonbladet about 13 year old Irma who has ME. It explains very well her isolation and the family's frustrating meeting with the health care system who lacks knowledge about the disease. Aftonbladet: Irma, 15, lever med obotliga sjukdomen: "Det är så jobbigt"...
  14. Kalliope

    The Canary: An ex-professional ballet dancer is using his art for the ‘millions missing’

    - I’ll be damned to see another few generations of promising dancers, artists, athletes etc. being wasted merely because of politics. It needs to stop. My hope is that patients and allies will have the strength to keep telling the truth about this disease until we need to do no more. We are...
  15. Kalliope

    News from Scandinavia

    Excellent opinion piece from Sweden Metro: Agnes Arpi: Okunskapen om ME-sjuka är tragisk google translation: The ignorance about ME patients is tragic The fact that the body and the brain is connected is true, but the statement "it's in the head" is terribly misused. So many patients, meeting...
  16. Kalliope

    News from Scandinavia

    They already did :laugh:
  17. Kalliope

    Denmark - Manifest to health authorities from 85 ME-patients

    Yes, I think it is safe to assume they might have been somewhat ... eclectic... in whom they've reached out to. :whistle:
  18. Kalliope

    #MillionsMissing today, 12 May - post news, tweets, etc. here

    Found it and it was a breeze! Just click here and find the location of your event on the list, click on the link and upload. They want pictures from physical events, not virtual. SmugMug City Upload Links (#MillionsMissing 2018)
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