Search results

  1. C

    Merryn Crofts - media and inquest

    Could inflammation of the ganglia cause the parasthesia which were part of Ramsay's criteria?
  2. C

    Psychiatry Advisor: Addressing Depression in ME/CFS

    There looks to be a problem with their suggested prevalence rate. It looks to me to be at least ten times too high. If that is what they believe the condition to be they will include all sorts of symptoms and belief states. And we know exactly why so many depressive and psychiatric symptoms are...
  3. C

    World ME Alliance, was previously IAFME: International Alliance for ME

    Given that an S.I.W. is a clear indication of a desire to leave the battlefield, perhaps that is what members of Forward-ME have done. Although shooting oneself in the foot is the common metaphor, unexplained injuries to the right hand could also be an indication.
  4. C

    Europe’s open-access drive escalates as university stand-offs spread

    That makes it sound as though the reviewers ought to be on the list of authors. It makes one wonder who might have been reviewer for early papers by Wessely and White. The role might have been attractive to someone with a media image to protect.
  5. C

    Patients with Chronic Fatigue Syndrome needed for new study - Keele University UK

    How could any reasonable clinician or researcher think this method could possibly elicit information about the needs of those most in need? We know who will not be attending. One wonders what the screening process will be like to eliminate people with chronic fatigue.
  6. C

    Blog: Murky matters involving conflicts of interest

    I am not suggesting that it necessarily involves deliberate fraud. I just believe that people often did not do what they thought they did or what they intended to do. That's what it is to be human.
  7. C

    A series of PACE funding FoI requests

    One must probably start with the assumption that those currently responding are stating accurately what the accounts appear to show. Can afurther FOI be made requesting further and better particulars of the £1.6 million payment, specifically the dates and method of payment. It has to be...
  8. C

    Blog: Murky matters involving conflicts of interest

    Is that information available separately to what was said to have been done and found?
  9. C

    Esther Crawley's contribution to #MEawarenessweek

    Who is it again that is ill with the dissociative disorder?
  10. C

    World ME Alliance, was previously IAFME: International Alliance for ME

    One can test the seriousness of this project. Has there been agreement between the international members as to the likely costs budget needed, and the division of those costs between members? If not, is Afme picking up the bill in return for the use of the names of the others? How often would...
  11. C

    Jeremy Vine (BBC radio2 discussions)

    If we hear more of him, how long do we expect it to be before the name undergoes a reversal?
  12. C

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    What do we presume the procedure would be? BBC contacts SMC. Does SMC then contact the duty psychiatrist and ask for a stock a see, or do they have the stock response on file? So who wrote this? Which of them cannot distinguish between infer and imply? Do they then go to the trouble of...
  13. C

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Investigative reporting at its best. ....evidence that these treatments are safe and useful for some patients. I suspect that the average twelve year old could spot the potential follow up questions.
  14. C

    Ideas For Marketing ME More Effectively...

    I presumed that the "living dead" suggestion wad an Aussie wind-up. Apparently not. Does no-one remember the sketch-perhaps it was "I'm sorry I'll read that again", which ended "and he joined the ranks of the living dead....yes,he became a Chartered Accountant." Apologies to chartered...
  15. C

    World ME Alliance, was previously IAFME: International Alliance for ME

    It is worth mentioning that although the language here is of "linked organisations" the Welcome page of the Forward MEwebsite talks of membership. It also says that members are free to opt into activities. That is not much of a freedom unless they are informed what the activities are. If...
  16. C

    World ME Alliance, was previously IAFME: International Alliance for ME

    We must all have been ill that day.
  17. C

    Patients with chronic fatigue syndrome do not score higher on the autism‐spectrum quotient than healthy controls, 2018, Bileviciute‐Ljungar et al

    I once came across a comment which may have general application. The comment was to the effect that the only people with the skills to understand and interpret answers to questionnaires have no need of them. Edit. Questionnaires, that is, not skills.
  18. C

    'I'm not looking for pity, just a cure' - NZ article

    I realise that this was not the object of the post but what immediately struck me was how readily reference to the heart can be seen to be metaphorical. In contrast the concept of mind is rarely seen in the dame way, despite the explanations of Gilbert Ryle.
  19. C

    UK - The Young ME Sufferers (TYMES) Trust

    It is revealing when one discovers the history of those whose judgment one trusts on the subject of ME. Strange that they all turn out to be people the "experts" would have us believe cannot be relied on.
  20. C

    Esther Crawley's contribution to #MEawarenessweek

    Is online treatment what "kids" receive when they've been hung out to dry?
Back
Top Bottom