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    Forward ME Group minutes 1st May 2018

    Yes, it is beginning to look like a synchronised silence. Perhaps there is a belief that this a matter of interest only to the cognoscenti. How short some memories are.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    This goes back to the point by Wessely et al in the 1989 paper when they said something to the effect that people have said that exercise may cause harm in some, that may be true but...... I have suggested elsewhere that that should have placed upon them a duty to ensure some safeguarding...
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    “It Has Come to My Attention…” How Institutional Complaints Procedures are Being Weaponized (article in Quillette)

    It seems to be a great shame that Elsevier's expert statistical advice has not been made more widely available. Who knows which other papers might have benefitted from its use?
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Not necessarily. Some may regard it as success.
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    Forward ME Group minutes 1st May 2018

    I suspect that many are frustrated by the direction this thread has taken and consider it unhelpful. There are however important issues at stake. What exactly is the organisation Forward-ME which has resolved that it should be the UK representative in an international alliance? I presume that...
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    Forward ME Group minutes 1st May 2018

    These minutes have left me confused as to the nature of Forward ME as an organisation. From its website one would assume that it is a normal, though perhaps poorly constituted, members organisation. It gives the appearance of conducting regular meetings for which minutes duly appear. The...
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    Forward ME Group minutes 1st May 2018

    @Russell Fleming @Action for M.E. I am not pressing you yet to reply to my earlier question. I realise that a position on the horns of a dilemma is not a comfortable one. The above posts have raised another matter which requires the attention of your organisations as members of Forward-ME...
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    Publications that show ME is biological

    Feel free to adopt the Gavin Williamson approach and tell me to shut up and go away, if you wish. By "signalling"I had understood you to mean something much narrower than that. My misunderstanding. When looking through the Wessely 1993 paper Neuropsychiatry of CFS I came across the remark...
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    Forward ME Group minutes 1st May 2018

    There is a fundamental problem in that minutes may be both true and untrue. They may be true in that they record accurately the business conducted at the meeting. They may be untrue in that what was said at the meeting was inaccurate, or at least inadequate. It is a great relief to know that...
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    Publications that show ME is biological

    @Jonathan Edwards I was thinking about your faulty signalling hypothesis. I think the symptoms might be analysed as: 1) symptoms that occur all the time eg parasthesiae or pain. 2) symptoms that occur upon intended to do something eg the feeling that the battery is almost flat and will not...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    It's all in the eye of the beholder.
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    Publications that show ME is biological

    That idea is interesting but I cannot understand how faulty signalling can be the primary problem in the fluctuating, regularly relapsing and remitting, stage that many experience. Does there not need to be something even more fundamental to cause the fluctuations in the signalling?
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    Chris Ponting's project to replicate Mark Davis’s remarkable findings of immune activation in ME/CFS (S McGrath blog)

    Is it known what sort of patients are to be tested? Given the smallish numbers involved it would be interesting, whatever the results, if patients from opposite ends of the spectrum could be identified, say one group with acute onset from an identified virus, and one group of idiopathic slow...
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    Forward ME Group minutes 1st May 2018

    Judging by those minutes it is not surprising that nothing much useful ever seems to happen. I don't think I have ever seen minutes which record that questions need to be asked, without specifying of whom they need to be asked, who will be responsible for asking them, and whether they will be...
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    Re-framing GET as pacing, or vice-versa

    Isn't there something wrong about the symbolism of the apple? Once people have eaten of the tree of knowledge, should they not be cast out of the paradise which is their CFS clinic?
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    Med Students Still Do Pelvic Exams on Women Under Anesthesia

    Isn't that conspiracy to commit rape?
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    NICE ME/CFS Guideline stakeholder scoping workshop, Fri 25th May 2018

    Is that not puzzling? I thought the figure was a million less than that.
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    Esther Crawley's contribution to #MEawarenessweek

    The trouble with organisations like the Revolutionary Communist Party is that you never know who are the double agents, who the agents provocateurs, and who just ordinary members who actually believe.
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    Michael Sharpe skewered by @JohntheJack on Twitter

    As Spike Milligan said, I think: The boy stood on the burning deck, Whence all but he had fled.. TWIT. Edit This was intended to follow the post of Strategist, not Dave.
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