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I suggest that caution is required before too readily attributing unprofessionalism to other charities. The words mote and beam spring to mind. Now that it is apparent that MEAction is also a member of Forward-ME you will readily appreciate that my criticisms, on another thread, of the...

Are we sure that a representative has not already been selected? Someone seems to have been attending Forward ME meetings, or giving apologies for absence. There seems to be a sudden proliferation of paid employees in this field. It must be becoming fashionable. EDIT I would not wish it to be...

We should be comforted by the fact that the Countess of Mar's new advisor is happy to see further psychiatric research provided it is accompanied by her speciality of bioethical research. "To ensure that patients receive optimal care for MUS, we must pursue not only psychiatric research, but ...

I suspect that we should all agree with Sharpe's last quoted tweet about the implicit meaning of calling an illness "mental". What I fail to understand is why we should feel differently if he calls it "neurasthenic" or "functional".

There are times when Afme looks more like a Quango than a patient charity.

Thanks for that response @Russell Fleming . I understand the constraints. In the interests of clarification I did start a post enumerating the various issues which have arisen, but I abandoned that as it started to look like a letter before action, which seemed unhelpful, if that were to be your...

I don't see the problem. We don't believe the results, do we?

As an afterthought, one wonders whether the membership of Forward ME has considered how damaging might be the perception that they have no power over, or responsibility for, the contents of the website of the organisation of which they purport to be members. This at a time when the organisation...

@Russell Fleming @Action for M.E. It is now a week since questions were first raised, which seems to be ample time in which to have obtained instructions, or at least to acknowledge that the matters are under consideration and that a reply will be forthcoming. There is of course no obligation...

Brings back all the old doubts , doesn't it? Is there any evidence that they have reformed?

Personally I think we are all being wholly unreasonable with all these expectations of good governance. Even reasonable governance would be an improvement.

No. I'm not assuming that at all. I presume that they do. What interests me is that they would not wish to have the matter discussed in public meeting and minuted, so that everyone knows what is happening. What sort of representation is it if the charities, accountable, supposedly to their...

It is instructive to analyse the timing behind this encounter. Let us, for the sake of argument, assume that @Webdog had this meeting with the Afme member on 7 June. It may have been earlier. The plans are then sufficiently advanced for the member of Afme, we do not know of what status, to...

Strange that none of this was mentioned, or at least minuted, in the briefing of Forward-ME. Why the apparent secrecy?

At least the use of these questionnaires provides an answer to the old conundrum: is medicine an art or a science? Now it often seems to be neither.

That is useful. I think that what I was trying to show is that this problem was known to the creators of this whole house of cards, and should not now come as surprise.

Perhaps a distinction needs to be drawn between those doctors who talk to people with the illness, and those who listen to them.

Language provides such traps. We recognise mischief when we see it.

I fear that I may not be able to give this matter the attention it deserves so will make some inadequate comments for others to pick up, if they wish. In construing documents there is what is known as the "eiusdem generis rule", which means that, in case of uncertainty, general terms should be...

The drafting of the document appears to be seriously incompetent. It starts out by giving the impression that it is about anxiety and depression, goes on to say it deals with LTC's when co-morbid depression or anxiety are present, and then says it is about, inter alia, CFS. It needs a serious...