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    Why has 'persistent enteroviral infection' been dropped as a research strand in ME/CFS? (Jen Brea asking)

    This might represent one of the problems: Tyrell: In my view, it is only fair that the test should be done in parallel in the laboratory that originally described the results. I have had the experience of sending infectious material to reputable laboratories (even to that pinnacle of American...
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    Michael Sharpe skewered by @JohntheJack on Twitter

    Perhaps Sharpe's problem is in having spent 25 years working with a statustician.
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    Stamina levels before ME/CFS?

    I didn't but could have worked 12 hour shifts. One of the most annoying statements I have come across recently in the old papers is: Treatment therefore must take into account the need to break this vicious cycle of deconditioning by initiating a graded programme of exercise which by small...
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    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    Its much, much worse than manipulating idiots. It is manipulating the desperate and vulnerable. …..or were you referring to Esther Crawley?
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    Understanding the Lightning Process Approach to CFS/ME; a Review of the Disease Process and the Approach

    The first thing I looked for was any declaration of conflict of interest......I am still looking.
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    United Kingdom: National Health Service (NHS) news

    Sounds like another excuse for shovelling loads of cash to companies for systems that will never work, but from which non-patients might profit, to enable them to have an excuse for failing to fund other areas, from which patients would derive immediate benefit.
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    Gay conversion therapy

    Is there a "bondage conversion therapy" to assist the recovery from being bedbound?
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    UK: Contaminated Blood scandal

    https://en.wikipedia.org/wiki/United_Kingdom_tainted_blood_scandal Haemophiliacs were given contaminated blood and many died of Hepatitis C. There has been a lengthy cover up.
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    UK: Contaminated Blood scandal

    Hasn't David Owen already said that many of the files which he saw as the relevant Minister were apparently unavailable and probably shredded, when he requested sight of them.
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    David Tuller: Trial By Error: Professor Sharpe’s Pre-Hearing Briefing for Monaghan

    This gives rise to the question whether all those who "accept" the treatment have given informed consent, or whether they are kept in the dark as to any potential risks, however small researchers and clinicians deem those risks to be.
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    PACE trial TSC and TMG minutes released

    This is one of life's little ironies. One of the things held against ME sufferers is a supposed tendency to obsess about symptoms and to appear for appointments with reams of notes.
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    David Tuller: Trial By Error: My Letter To Fiona Godlee

    I thought it was a reference to the theatre of the absurd.
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    Resistance To Science and Technology by Julian Vigo (Forbes.com)

    Try to be fair to them. It seems only right that third-raters should have a specialism of their own to play with.
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    Video: The PACE trial: a short explanation, Graham McPhee

    Is that a variant of "Simon says"?
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    Investigating the effectiveness ... of FITNET-NHS compared to Activity Management to treat paediatric CFS/ME, 2018, Crawley et al. Protocol

    I noticed that on another page. This looks like an error of judgment. You would think they would wish to conceal evidence capable of causing serious reputational damage. The first talk could possibly be excused as a case of "misspeaking", but not the second one.
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    More Objections to Chronic Lyme Patients

    @duncan I agree about the man being interesting in an annoying way. He says some things with which one agrees, and others which horrify. In his favour is that he at least has the courage to articulate what others may merely think. It is a bit long though. It always helps to understand the...
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    More Objections to Chronic Lyme Patients

    The history of downplaying chronic idiopathic illness is interesting. I was recently looking around the subject of chronic brucellosis, as described by Imboden, and how it came to be dismissed. This led to the following paper from 1988 which seems to describe the views of the gainsayers. It...
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    Resistance To Science and Technology by Julian Vigo (Forbes.com)

    Surely the suggestion that Sir Simon has had any involvement in this matter must be wrong. One feels sure that he would not wish to add to a colleague's difficulties by causing people to recall a Sunday Times article and any videos making reference to it. Just when the furore had died down. That...
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    Medscape: Chronic Fatigue Syndrome Takes Down Doctors, Too

    It would only reconfirm the opinion of those doctors, who do not believe in it, that they are made of sterner stuff and have no cause to be concerned.
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    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    I have been looking through old papers and came to the view that a possible source for the views for GET derived from a paper Edwards RHT 1986 Muscle fatigue and pain Acta Med Scand Suppl 711:179-188 This, at any rate was quoted by Sharpe in 1993 as his source. Strangely I have just come...
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