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On the difficulties of knowing how much to push the child: I'm not sure that Long Covid is in fact rare in children/young people, nor that rarity is a reasonable explanation for health professionals to accuse people of exaggerating or imagining symptoms. Similarities with ME/CFS...

That excerpt is quite telling. You can see the vulnerability of people to the ideas of health care providers who at least appear to understand. An interesting anecdote about a girl's body growth stopping. I think this is an understudied aspect of the illness in young people; I'm convinced...

Yes, it seems to be a sympathetic study. Some excerpts that describe the study, or that people might find useful or interesting: This was a qualitative study with an inductive and exploratory approach employing thematic analysis (Braun and Clarke, 2006, Braun and Clarke, 2019). The study was...

The Introduction: I don't know what 'determination' means in this context. 1.5% of people with ME/CFS? The reference is the Canadian Community Health Survey statistics for 2015-2016. So, that's not quite 2017 data. I looked very quickly at the 2024 survey. It doesn't refer to ME/CFS, it...

That's hilarious. This whole things does explain some of the weirdness we have seen here. But, quality assurance systems? What systems?

Donated

Long Covid Switzerland Long Covid Kids Switzerland Added, thanks to @Yann04 If anyone else is aware of other Long Covid support groups in their country, please note them here or let a moderator know.

That's a great thought. There are currently 20 UK LP coaches with photos (including Parker) on the LP website. I can't work out the map - according to that, there looks to be 41 coaches in the UK, but it changes depending on how zoomed in you are. That certainly is not a very high yield...

Your comments @bobbler remind me about Lightning Process practitioners who are the parents of people who underwent the course. e.g. Jenny Oliver, as quoted in a Stuff article There was a Facebook thread that I read in the last couple of days, where a mother and daughter had been very public...

There's nothing particularly special about being a scientist, it really just means observing, questioning things and carefully evaluating the evidence. 'Being a scientist' shouldn't be reserved for people in white coats in labs with test tubes. Everyone should be a scientist, although no one...

Ah, good, your stance makes more sense if you were unaware of that. See these posts upthread: (I made a transcript of the part of the BBC audio with Rachel Whitfield because I thought it was so problematic - it's there in the post - and that was before reading Rvallee's post noting her COFFI...

But Dave, you do understand that the person they used as an example of someone recovering from LC because of the Lightning Process is a member of COFFI? And she was an NLP Life Coach before getting Covid-19? As others have said, there are two compelling reasons why anecdotes of recovery...

It just goes on and on. Only 5% of patients are found to have cortisol levels lower than a reference range. Here's guidance on establishing standard ranges for tests: So, it is likely that the cortisol reference range has been set so that 2.5% of the healthy population have a cortisol level...

Indeed. Dosage, morning and night: Treatment arm 1: 4 Valacyclovir + 1 celecoxib Treatment arm 2: 2 Valacyclovir + 2 placebo +1 celecoxib Treatment arm 3: 4 placebo +1 placebo If I was a drug company wanting to sell valacyclovir into a new massive market, this is exactly the type of trial...

Yes, and just to underline the point. Only 33% of the people had a good quality of life after 12 months of care at the rehabilitation clinic. That suggests that the clinic was not being very successful in either curing people or helping people find a new way of living that was not crap...

Prevalence of mental health conditions and brain fog in people with long COVID: A systematic review and meta-analysis - link Christina van der Feltz-Cornelisa,b,c,*, Fidan Turka,1, Jennifer Sweetmana,1, Kamlesh Khuntid, Mark Gabbay e, Jessie Shepherd a, Hugh Montgomery f, W. David Strain g...

Just heard an inspiring interview on RNZ about the Mātai Institute. Gisborne-Tairāwhiti is where I grew up, it's a small city in a remote part of New Zealand (population 38,000). That it has world class infrastructure for medical research is almost incredible. And yet it really seems it does...

To clarify for those of us not up with UK Parliament operations, this also from that AfME article So, there's no suggestion there of Carol Monaghan or others currently on the APPG not standing for re-election, although of course re-election is not assured. What a shame about the Severe ME...

Indeed. What has got into the MEA lately? There needs to be a change in the Trustees, or in the level of effort the existing Trustees apply to governing the organisation.