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Long-COVID symptoms improved after MDMA and psilocybin therapy: A case report Key Clinical Message Long-COVID syndrome lacks effective holistic treatment options. We present a case of a 41-year-old fully vaccinated female with Long-COVID syndrome who obtained significant symptomatic relief...

Does anyone know what WHO article this is?

Brian Hughes discusses this paper in a blog in 2022 Medical haste, COVID-19, and the mythology of “Medically Unexplained Symptoms”

The data is surely going to be messy, with many people in the control group having Covid-19, and many people in both groups having multiple infections. Compared to the control group without infection, people with COVID-19 who were not hospitalized during the acute phase of the disease were at...

More from the rare diseases link Disorders with similar symptoms

More information on Tango2 deficiency here: https://rarediseases.org/rare-diseases/tango2-related-metabolic-encephalopathy-and-arrhythmias/ Very interesting @Andy, thanks for posting. The metabolic crisis has aspects similar to PEM. I get dark brown urine.

Love those ideas, love that ME Poppins clip. And I can definitely hear John Oliver saying 'AT THE SAME TIME'. I reckon Brian Hughes has something of a similar vibe - looking through his blogs, there is good material there. See for example this blog...

Posts on gastroparesis and gastroptosis have been moved to the Symptom Discussion Thread Gastroparesis

May's update: PETITION UPDATE 30 May 2024 Thanks to our supporters Thank you to the more than 11,000 people who have supported the campaign. With the most recent additions from Zambia and Nepal, people from 76 countries have signed. Thank you also to the following organisations for adding...

Yes, that's not to say that researchers in NIH might come up with something useful, Hwang's work on WASF3 for example, which was, I think, a case of smart researchers following up on chance observations. And Vicky Whittemore appears to be battling on to bring some strategy and sense (and...

That's great that there was that additional benefit of providing feedback on the utility of the CPD module. It was a smart idea to link the essay to completion of an education module. However, unless that CPD module has been improved a lot since I last looked at it, there are a lot of problems...

Here's the forum thread on the paper: Developing a blood cell-based diagnostic test for ME/CFS using peripheral blood mononuclear cells, 2023, Xu, Morten et al

That's a good point, new mothers may put fatigue down to poor sleep, and so not say that they have unexplained fatigue, or think of it as a disease symptom.

A number of us get oedema in PEM. If you look at photos of people with PEM, they often have puffy faces, swollen eyelids. So, that's an interesting thought, that the kidney is on a 'go slow', resulting in poor management of hydration. Gastroparesis could be another example of a reduction in...

What an interesting question. The decreased risk of post-infection malaise and cognitive problems is very marked. As far as I can see, PASC is defined as any of these that were not present prior to Covid-19: So, there's quite a lot there that we wouldn't necessarily associate with ME/CFS...

Welcome to the forum Chris @MelbME. It's good to have you here; thanks for the information about the study.

I'm with you on the pedantry @Andy, the different approach to the disease name jarred each time I read it. But, actually, the essay was very nicely done. I can see why it won. Its premise was quite similar to the conclusion from that recent Swedish study that interviewed parents of young...

It's wonderful to have the Minnesota ME/CFS Alliance supporting the campaign. Thanks very much to @Dakota15 for facilitating that. That brings the number of organisations supporting the campaign to an amazing 75. Only 28 signatures from 11,000 now. The petition has been getting some good...

Last one. I've copied the whole 'Implications to practice' section because I think it's a really important conclusion. A diagnosis or a known etiology is not a prerequisite for good nursing care (or for good primary health care in general). If the ill person is listened to, and believed, a lot...