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https://community.cochrane.org/organizational-info/people/central-executive-team/evidence-production-methods-directorate/stakeholder-engagement-high-profile-reviews-pilot-1 This paragraph suggests that you are right @Peter Trewhitt, that the ME/CFS rep positions do represent organisations, and...

We have had it confirmed that Hilda remains part of the IAG. I agree we shouldn't speculate, but I also think the full list should be in the public domain. It was made clear that people were appointed as individuals, and not representatives of any organisations they were associated with...

It's a bit like having a trial of gay conversion therapy and saying 'Due to our selection procedure we may have included patients who did not always expect a conversion therapy approach'. Quite apart from whether such a trial would be ethical, it is clearly wrong for mentally competent people to...

Is the full list of IAG members in the public domain? I know we got information about the initial appointments, but there were at least a couple of appointments later.

If patients were included who did not expect a psychosomatic approach then it seems to me that the principles of Free Prior Informed Consent were not followed. This is because the treatment is fundamentally a psychosomatic therapy (the authors acknowledge that in the title), with all the...

Worth noting the patients with later variants were seen earlier (median 4 months). That might have affected severity ratings and recovery rates. Also, most of the patients were infected during the 'wild-type' period (556/804).