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  1. Hutan

    Unrest film - Jen Brea

    On reading this thread (currently with posts only up to Nov 2018 - we might merge some related threads into it) I see that there is no negative commentary about the film, which I don't think accurately conveys the range of reactions. I think there has been some discussion on other threads...
  2. Hutan

    Melinda Gates resigns from Gates Foundation

    Well done @Yann04! (Just on Unrest, and not wanting to take this thread off-topic, there are different opinions about the film. It may not be the best thing to recommend when advocating; I personally think it can be counter-productive. I'll find a thread that discusses it and link it here.)
  3. Hutan

    Comments on energy conservation treatments for MS-related fatigue and a new proposal, 2024

    I think distraction might be different concepts in the two papers? In the one here, the idea seems to be that people with fatigue can think about other things and that distraction will result in less fatigue. Whereas in that linked paper about MS and LC, I think they are suggesting that...
  4. Hutan

    Fatigue acts as a distractor in monotonous and dual attention tasks in patients with multiple sclerosis but not with LC, 2024, Helmut Hildebrandt

    I think that ambiguous title just means that the reported level of cognitive fatigue negatively correlates with performance on a couple of specific cognitive function tests (more reported cognitive fatigue = a reduced performance) in MS but not in Long Covid. However, I don't think it can be...
  5. Hutan

    A mystery illness stole their kids’ personalities. These moms fought for answers.

    From the article: From what is written the article, I have a bit of doubt that miracle cures have been found, but at least now people are looking for them.
  6. Hutan

    United Kingdom: Invest in ME news

    From the Quadram Website: As far as I can tell from an internet search, red light penetrates at most 2 mm into skin. From the picture in the tweet above, the participants are fully clothed, and there is just one light shining onto a masked face. The description of the therapy is that the...
  7. Hutan

    People with Inflammatory Bowel Disease Prefer Cognitive Behavioral Therapy for Fatigue Management: A Conjoint Analysis 2024 Emerson et al

    Coming back to this, this morning, I'm still incredulous. Very nice examples @rvallee. I loved the jam one. But what these people did is actually far worse. It's like the participants in the food company test don't actually get to see and taste and smell the jams. Instead they only get a...
  8. Hutan

    People with Inflammatory Bowel Disease Prefer Cognitive Behavioral Therapy for Fatigue Management: A Conjoint Analysis 2024 Emerson et al

    I haven't read the study. But the first point is the bias in the selection of respondents. 'International online' suggests a lot of self-selection. The second point is that if I had to do this and the options were A. CBT or psychotherapy B. Short or long C. Online or in a clinic I too would...
  9. Hutan

    Prevalence and co-occurrence of cognitive impairment in children and young people up to 12-months post-Omicron, 2024, Foret-Bruno, Chalder+

    They are actually calling for more objective measurement of cognitive dysfunction: So, all up, this paper could be worse. I'd go so far to suggest it is an anomaly :) - a paper with Chalder as an author that is not dreadful. Of course, a big problem, and they acknowledge this, is that they...
  10. Hutan

    Prevalence and co-occurrence of cognitive impairment in children and young people up to 12-months post-Omicron, 2024, Foret-Bruno, Chalder+

    Gosh, there is entertainment of the possibility of physical damage: But, of course, it could just be due to the behavioural issues: Interesting that the words 'deep phenotyping' are used: An acknowledgement that their data collection approach needs improvement:
  11. Hutan

    Prevalence and co-occurrence of cognitive impairment in children and young people up to 12-months post-Omicron, 2024, Foret-Bruno, Chalder+

    That must have challenged Chalder's story-making ability. Somehow the young people who developed brain fog on reinfection had managed to not develop brain fog during the first Covid-19 infection. 75% of the first positives are female; 66% of the reinfected are female Index of multiple...
  12. Hutan

    Epstein-Barr virus reactivation is not causative for post-COVID-19-syndrome in individuals with asymptomatic or mild disease course, 2023, Hoeggerl+

    Out of the 163 people with a pre-pandemic sample, 82% had no post-Covid syndrome. 10/163 (6%) had fatigue at 6 months after infection; 5/163 (3%) had fatigue at 12 months after infection
  13. Hutan

    Mitochondrial DNA Missense Mutations ... Identified in a Caucasian Female with (ME/CFS) Triggered by the [EBV],2024,Tang-Siegel

    That's a confusing long sentence, but there is a good point in there - that DNA sequencing of family members of the patient would be interesting. I have the feeling that mitochondrial DNA has been looked at, and nothing of significance has been found. But, perhaps it is worth looking again...
  14. Hutan

    Mitochondrial DNA Missense Mutations ... Identified in a Caucasian Female with (ME/CFS) Triggered by the [EBV],2024,Tang-Siegel

    It's a clear read, so far. It's certainly not the first time that it has been proposed that problems with complex IV and complex V of the electron transport chain. The onset following a triggering EBV infection seems quite clear. That association of elevated EBV antibodies with ME/CFS crashes...
  15. Hutan

    Chronic Lyme disease, post-treatment Lyme disease syndrome (PTLDS)

    Imaging glial activation in patients with post-treatment Lyme symptoms; pilot using CDPA-713 PET, Pomper et al, 2018
  16. Hutan

    Sex and disease severity-based analysis of steroid hormones in ME/CFS, 2024, Westermeier et al

    (paragraph breaks added for readability; it is just one paragraph) Some comments about the introductory paragraph, because papers so often mess this up, and there should be a movement towards nailing it every time. There's plenty to like about this introductory paragraph. I like the focus on...
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