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    A general thread on the PACE trial!

    Who in the patient community had evr heard of "adaptive pacing therapy"?
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    Persistent fatigue following SARS-CoV-2 infection is common and independent of severity of initial infection July 2020 Townsend et al

    Is it made clear what is meant by 33 had not returned to work at the time of study participation? Does this include, or not include, those who had returned to work but then discovered they were unable to continue and were taking further time off?
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    UK - NHS England online tool and clinics for long Covid.

    It is an appalling indictment that people are still having to learn for themselves that "pushing themselves" only causes harm, if suffering from this condition. It is not as as though people have not been highlighting the fact. Oh well, you can cure your effort syndrome if you really want to.
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    For anyone struggling to understand what Brian Inglis (editor of the Spectator and TV producer) was on about in his letter this part of a review of his book The Hidden Power: science, scepticism and psi (taken from Amazon) might assist. Or might not. In this fascinating and remarkably clear...
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    New draft NICE guidelines for chronic pain emphasises exercise, CBT and acupuncture over medication

    Is this not an example of "abnormal illness behaviour". It is just that it is the doctors who suffer it. Obviously there are difficulties faced by both sides. The problems faced by doctors in these circumstances clearly need to be examined without "circling the wagons".
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    Horton refers to Alice James. Wiki says of her In 1866 James traveled to New York to receive "therapeutic exercise". Plus ca change
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    It is interesting that apparently a Registrar Psychiatrist was able to diagnose hyperventilation due to anxiety in patients he had never examined when a team including infectious diseases consultants was unable to do so over a number of weeks. Here is a passage from Alexis Shelokov's NIH...
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    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Well, if an expert in the field said it, it must be true. If the charge is to be made, let us have some specifics. Do journalists no longer believe in Who, What, Where, When, Why?
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    The follow up on the last snippet will be this These findings do not support the hypothesis that any specific metabolic abnormality underlies fatigue in this syndrome although abnormalities may be present in a minority of patients. https://dx.doi.org/10.1136%2Fjnnp.56.6.679 Skeletal muscle...
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    Apologies if this seems off topic, but, whilst we await further informative tweets, I came across fascinating background reading whilst researching that strange article by Alfred Friendly which told us something important but is not clear exactly what. McE hardly makes much of the Chestnut Lodge...
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    There is something odd about the publishing history of the three M and B papers. The third paper is clearly necessary in order to make any sort of evaluation of the first two. There seems to be little difference in their readiness for publication. However the first two papers were published on 3...
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    Occupational therapy consensus recommendations for functional neurological disorder, 2020, Stone et al

    "...a biopsychosocial aetiological framework". But, which one? Or doesn't it matter?
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    Claire Fox (Fiona's sister)

    If only the climate were conducive to growing bananas. We could set up a republic.
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    One might almost ask whether the errors were innocent or fraudulent, and, if innocent, whether or not they were negligent.
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    That letter from 1958 looks to be damning evidence. The first M and B paper indicated that one patient had been ill for up to a year. This letter says that following this "some nurses had to leave on medical grounds, a small number are still off sick and many have had long periods of sick...
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    Pathogens associated with triggering ME/CFS - discussion thread

    The opportunity to ascertain whether ME could be caused by flu was, of course, wasted by Imboden, Canter and Cluff in their 1961 and 1966 papers on the Asian flu epidemic, which studied either 600 or 480 people , depending on which paper you believe. However the follow up period was far too...
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    Pathogens associated with triggering ME/CFS - discussion thread

    I think the problem was that people referred to the recurring symptoms, after the original infection, as being "flu-like". They never intended to indicate that the original infection was flu, although it was sometimes interpreted as such. So much is based on miscommunication.
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    Review of case definitions for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS): Eun-Jin Lim July 2020

    Yes. The difficulty arises when some people conclude that it is therefore unnecessary to counter the suggestion that the "post-viral" effects of epidemic ME were hysteria. The lesson of the RFH was that there was an unidentified and possibly unknown pathogen which, even by McEvedy's data, led...
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    Twitter account will provide headlines & quotes from the 1955 Royal Free Hospital outbreak to the day when each headline appeared - 65 years later

    Thanks for the correction. It would be interesting to know the daily rate of discharge of patients. Presumably by 6 weeks with no admissions, other than staff, the patient population would be down to the long term stays. I noticed something else about that article by Friendly. It is strange...
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