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    Successful Psychological Strategies of Experienced Chronic Fatigue Patients: A Qualitative Study, 2021, Hall et al

    It is interesting to see the use of "therapeutic nihilism" as though it is some new idea. It seemed to be a mainstay of early Wessely. It was then used in the Festschrift for Gelder by another (possibly Salkovskis) in relation to another condition treated with CBT. It did appear that avoidance...
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    Kickstarter: "The ME Generation (Issue One), A super heroic adventure!"

    What a strange title. Would that be the generation of 1955?
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    News from France

    That takes a very special sort of stupidity.
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I do not despair as much as some. I think something useful might be shown by the process. If you get to choose the judge, the jury and the evidence you may obtain the outcome which you anticipate.
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    UK Action for ME petition: 'Equity for ME' asking UK governments for equity of recognition and research funding with long Covid. closes 26th Nov 2021

    It will be that distinction between "disease" and "illness" again. They will recognise the disease, but may not recognise all the illness which ensues. Aetiology is not important , as someone once said.
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Perhaps having someone who has recovered fulfills all the requirements of evidence based medicine. There need be no question as to what the evidence might be, or what it might indicate. But, at least, it is evidence.
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    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    It would be interesting to know where the initiative for this move came from. Was it Hilda, or is it something imposed upon her? Sometimes those who say they agree with a decision have little choice.
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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Are we to assume that Leda and the swan is symbolic of more than just reframing?
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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I think that we must, at least, recognise the possibility that those who resigned may have found themselves in an impossible bind. How do you put your name to a report which suggests that the evidence for the treatments you have been recommending for many years is flimsy. Insurers might not be...
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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I am not sure it is quite that simple. This should be about interpretation of evidence to formulate national guidelines. There are two aspects. What the evidence indicates and what ought to be done to achieve best practice on the basis of the evidence. It comes down to a question of where the...
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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    You may well be right, but the article states 5 lay members plus a co-opted member of the MEA. We know how scrupulous the BMJ is on matters of fact.
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    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    First we had, supposedly, science based medicine. Then we had evidence based medicine. Now we have individualised medicine. Could it be diluted further? I probably shouldn't ask. It will of course only work properly when there is no residual trace of medicine at all.
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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    It is interesting that the article stresses the number of patient reps, 5, on the committee of 21. Now that 4 have resigned or stood down that leaves 17. In order to obtain a majority the patients would now only need 4 to vote with them CS was a non voting member so his absence makes no...
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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    It seems eerily reminiscent of a previous incident. Was it the 1996 report, when it seemed that progress was about to be made but all the psychs walked out. Garner should remember that when he talks about the need for agreement and unity. At least this seems an altogether more positive...
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    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Presumably Vienna is merely traditional, but there must be a lot of SigInt and NSA people in the UK around various locations. The only surprise is that the Foreign Office pretended to know so little and were prepared to be economical with the "actualite"-I'd put an acute accent on that if I...
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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    I'm not sure I agree. Even if there were time for an appeal, the decision should be allowed to stand. When the final guidelines are published we will see the changes that have been made to the draft and we should also be able to see the representations which have led to those changes. Should it...
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    Havana Syndrome: U.S. and Canadian diplomats targeted with possible weapon causing brain injury and neurological symptoms

    Why do they need a specific Act to deal with these cases? These are cases of people who became ill whilst employed abroad. The eatiology of the illness is unknown. Presumably there are a number of federal employees who become ill from unknown causes when serving abroad. Surely the terms of...
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    NICE ME/CFS guideline - draft published for consultation - 10th November 2020

    Apologies for keeping on with my random thoughts, but will the removal of CS from the committee mean that he does not get sight of the final version prior to publication? That might impede the ability to make a timely response against all those who will be quick out of the blocks. The nature and...
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