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  1. rvallee

    Blog: The Science Bit by Brian Hughes

    While literally describing belief. This is belief, literally the opposite of evidence. Because this is all a con, people merely expressing confidence that this works is what gives the illusion that it does. It's a Big lie. All because they are thoroughly convinced. It's quite amazing to...
  2. rvallee

    News from Canada

    It's getting more absurd with time that hardly anyone seems to be troubled by the fact that medicine hasn't even bothered giving this a proper name and formalize it. As if no one even expects that someone will. It's hard not to conclude that the whole point is to minimize and ultimately erase...
  3. rvallee

    Screening of a Small Number of Italian COVID-19 Syndrome Survivors by Means of the Fatigue Assessment Scale, 2021, Serafini

    Off to a very rough start that makes many assumptions. And it doesn't get much better from there. It's so obvious how so much research out there is done just for the sake of putting their name to something, don't even bother giving it any effort.
  4. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    The big question over this is how to root this out entirely, instead of having to fight it piecemeal. Needless to say that this is complete dereliction of duty of candor, but that's nothing new so I don't know how much weight this has. Apparently none, honestly, given the incredible display of...
  5. rvallee

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Not sure if someone is keeping track as he's finding a lot. Keith Geraghty is poring through the submissions and it's basically like shooting quackery in a barrel. Honestly this may just about be the most incompetent set of contributions ever put together by professionals in an official...
  6. rvallee

    Benefits outweigh the risks: a consensus statement on the risks of physical activity for people living with long-term conditions, 2021, Reid et al

    Seems like a very weak claim, made mostly to shift responsibility away from medicine. If it really were that simple, if it really did have massive health benefits that could be measured economically, hell even fiscally, if it were actually worth it to get people active as a health measure, this...
  7. rvallee

    Covid-19 vaccines and vaccinations

    I'm not sure how reliable the data would be considering the significant % of vaccinated people who had a prior infection without them realizing it, compounded with the vaccines making some pwLC and pwME worse. How much of that effect overlaps is impossible to tell because we have no way to know...
  8. rvallee

    The micro-clot finding in Long Covid — implications for the possible aetiology of ME/CFS

    I've been wondering about that, whether it could account for it. Stuff that gets stuck in clots and breaks down over time, maybe reigniting the process. I don't know, pure speculation since this is way out of my league but interesting to think about. This could actually explain some of the...
  9. rvallee

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    Some news and discussion about new funding, some claims, seemingly not quite accurate. A large grant was awarded to University of Alabama, where Jarred Younger works. Does not appear to be involved. In fact either the NIH is deliberately avoiding ME researchers, or their claims for many years...
  10. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It also turns out that building a clinical model on the basis of an ideology is also a very lousy way to do public health. Who knew? Somehow, very few people in medicine. I think that's a problem. I would readily suggest this is a serious problem. Tweet because of author and paywalled. And as...
  11. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It turns out that ideology is a very bad basis to make public health decisions. In order to avoid children getting Long Covid, thinking it's anxiety, they argued making sure as many would be infected, the cause of it. There really needs to be a sort of media campaign equivalent to "this is your...
  12. rvallee

    Intuition and evidence--uneasy bedfellows? 2002, Trisha Greenhalgh

    That's experience, not intuition. Does it? It aspires to, whether it does is very debatable and leans on no after decades of failing at it. This seems very meandering and self-important.
  13. rvallee

    Supporting patients with long COVID return to work, 2021, Madan, Briggs and Chew-Graham

    Mostly just-world fallacy. Healthy person = good person. Sick person = bad person. With a few extra steps.
  14. rvallee

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Indeed he would not know about that, no matter how common. The idea that if the patient doesn't come back it means the problem is gone has done enormous damage. Especially as it's almost always wrong, instead people simply accept that medicine still has a lot to learn and usually can't do much...
  15. rvallee

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    That's my take on it. They are OK with junk pseudoscience because they believe ME is a junk pseudodisease. They all understand it's quackery, they think it's OK for us, because that's how low they think of us. Nothing mysterious about this, to them it's like a tea party with dolls, don't need to...
  16. rvallee

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Honestly I think this argument should be made but this has been very revealing of just how scientifically illiterate most physicians are. This is a serious issue that can't be left hanging, it's clear that ideology plays a major role in medicine, almost a more dominant one than science and it...
  17. rvallee

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    There is a very strong aristocratic "did you touch me? You put your hand on one of a superior class?!" vibe to it. They speak of us as abstract things, not as people.
  18. rvallee

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Thing is they already are evaluated differently, with the lowest possible standards. This is evidenced by the fact that many of them do point out the very same flaws on research they do not favor, the very same they dismiss when they do. And they explicitly want to lower it further because even...
  19. rvallee

    NICE ME/CFS guideline - Stakeholder submissions to the draft and NICE responses - published 29th October 2021 - discussion thread

    Honestly I think there's a good case to make that neurology is far deeper into woo than psychiatry. Which is saying a lot since most psychiatric concepts are very vague and filled with woo. Freud was a neurologist. 150+ years later and he has completely fried the brains of the entire specialty...
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