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  1. rvallee

    Covid-19 vaccination experiences

    Seems reasonable but seeing behind the curtains how medicine works for the last several years makes a strong compelling case that it could be just as common with other vaccines, medicine simply has no way of knowing and probably doesn't even want to know, given how problematic it would be for...
  2. rvallee

    BPS attempts at psychologizing Long Covid

    More incoherent ramblings from people who are themselves the problem, arguing the problem as a solution to itself. Medicine has refused to apply science to this problem despite having decades to do so, and so the solution can only be more of the same pseudoscience that is reaching a crisis...
  3. rvallee

    News from France

    Still the framing of fatigue... ugh. Medicine seriously has to deal with the fact that sick is a perfectly acceptable word and that often it's the only one that applies.
  4. rvallee

    Is Cognitive Change Necessary to Alleviate Symptoms in Patients With Functional Somatic Syndrome?, 2021, Maroti and Johansson

    See also: "lie detectors". They detect something. It's an actual objective measurement. Does it detect lies or honesty? Of course not. An effect is irrelevant, it's easy to have "an effect". "The book moved on its own" is an effect that can be argued to be a ghost. Means nothing at all, people...
  5. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I wonder how the people at Cochrane are handling it, especially those involved with decisions about us. What do they think of one of their section editors and major figure promoting blatant quackery and basically bigotry against patients? I'm not sure I'd like the answer to that. Especially...
  6. rvallee

    Social position and functional somatic disorders: The DanFunD study, 2021, Signe et al

    And obviously large puddles on the ground lead to large clouds. And famine is what causes crops to die in the fields. Are these people aware that being sick as a young adult leads to exactly this? Again they are looking at the very obvious and normal outcomes of a situation and simply can't...
  7. rvallee

    UK - NHS England online tool and clinics for long Covid.

    What is it when a "clinic" chooses the easiest, most likely to "recover" patients, regardless of what they do? A sham, is what it is. They want the salary but they don't want to do the work. Document here:
  8. rvallee

    Factors related to educational adaptations and social life at school experienced by young people with CFS/ME: a qualitative study, 2021, Similä et al

    They hear patients saying that health services don't understand anything about the disease, that it's the main obstacle to improving things, and their conclusions seems to be that they are unable to understand it any better that and therefore nothing more can be done on their end. How are these...
  9. rvallee

    More Than 100 Persistent Symptoms of SARS-CoV-2 (Long COVID): A Scoping Review, 2021, Hayes et al

    If it's not done systematically I don't see how it could be useful. If it were done systematically it very likely would, but it wouldn't be obvious until it's done systematically for long enough, and it isn't done since it hasn't been done yet and therefore not judged to be useful, since the...
  10. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Nothing groundbreaking or new but an interesting quote to follow up on. Here of course we meet the problem of denied disability. It's not that they aren't disabled, it's that they aren't recognized as disabled. The outcomes for both scenarios are of course vastly different. Long Covid’s...
  11. rvallee

    More Than 100 Persistent Symptoms of SARS-CoV-2 (Long COVID): A Scoping Review, 2021, Hayes et al

    Many of those symptoms are present in the acute phase. But they wouldn't know that because it would require listening to the patients and taking their reports as useful information outside of the specific context of in-patient admission. In the acute phase of an infectious illness, medicine has...
  12. rvallee

    NHS England Long Covid collaboration: Assessment Tool Testing - call for beta testers

    Lots of bad comments about this so far, looks heavy on the BPS.
  13. rvallee

    Requests for information/papers/sources/documentation

    Easy to notice here how few people are asking for such information...
  14. rvallee

    FOI Documents relating to NICE response to the US IOM report on ME/CFS in 2015

    It's pretty shocking to see a frank admission that there has been no progress in decades, no prospect of helping anyone or changing the situation any time soon, followed immediately by: "let's not do anything, though". This is criminal neglect, knowing that people under your responsibility are...
  15. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It's a genuine fact that the word has been so thoroughly distorted of all meaning that it's effectively useless going forward. It's not something that can be improved, it would take too long and be too confusing, not even counting how many would simply refuse to adapt. The psychiatrists who...
  16. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Would be interesting if someone looked into this. Of course this was predictable but since it's a private industry it all happens with extra secrecy.
  17. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Understanding Long COVID: The Unseen Public Health Crisis November 19 @ 2:00 pm - 3:00 pm https://www.hsph.harvard.edu/event/understanding-long-covid-the-unseen-public-health-crisis/ Many familiar names: Introduction Michelle Williams, Dean of the Faculty, Harvard T.H. Chan School of Public...
  18. rvallee

    TikTok Tics: A Pandemic Within a Pandemic, 2021, Olvera et al

    Looking forward to when this group discovers planking and warns of an epidemic of mass depression reflecting a call for help. I do wonder how long will the ridiculous trope of "people are talking on the Internet, the thing invented to facilitate mass communication and reaches over 50% of the...
  19. rvallee

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    Not exactly what one would call a deep thinker, uh? Did the virus not get the memo, that they are restricted to the lungs and are forbidden from moving elsewhere?
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