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  1. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I never you knew you were that much of an optimist. It's nice to dream, though. I will be watching for flying pigs, if anyone asks. They're just a little airborne, they're still good.
  2. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I have confidence in the IAG. Precisely because it's independent, and relative to how independent it will show itself to be. Choosing Bastian is the only good decision Cochrane has made in this entire mess. But Cochrane did not put in the resources for it to succeed, and I don't trust what they...
  3. rvallee

    Ed Yong: Health-Care Workers With Long COVID Are Being Dismissed

    Another fantastic article by Ed Yong, on the abysmal experience of health care workers dealing with gaslighting and denial from their colleagues. Very similar to Royal Free and other outbreaks, just on a much larger scale. It seems that health care workers do not like being treated like they...
  4. rvallee

    UK - NHS England online tool and clinics for long Covid.

    They don't have a clue. They genuinely don't have a single damn clue. Medicine will have to be dragged kicking and screaming to simply begin doing the right thing. Long Covid: Sick and suffering face long wait for help...
  5. rvallee

    United Kingdom: Kings College London; South London and Maudsley NHS Trust

    Not sure where else to post this but I think it's the same unit:
  6. rvallee

    Expanding Access to Specialty Care Using Video-Telehealth: The Case for Functional Neurological Disorder, 2021, Perez

    Interesting that they did not name or reference them. I assume one of them is the CODES trial, which if anyone remembers had null results. A null result is evidence, if one does not care about things like substance, and accuracy, or even relevance. I still do not understand why the alternative...
  7. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Uh. Also, haven't seen much of this, glimpses, but tomorrow will be a LC awareness day for some.
  8. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    One possibility is that Cochrane is the new battleground and lots is happening but none that we will hear about. Clearly far easier to influence than NICE. It would be nice to know what's happening behind the scenes, but I assume a lot is. Especially with Paul "Scuba" Garner on board. Both are...
  9. rvallee

    UK: Guardian: "NHS to give therapy for depression before medication under new guidelines"

    I'm sorry but the idea that millions of people, in the UK alone, live with mild depression needing "cognitive rehabilitation" or therapy is absurd. It's a complete misunderstanding and/or misinterpretation of the underlying data. It's equally absurd that no one seems to question the validity of...
  10. rvallee

    Long covid after breakthrough infection

    I have yet to see recognition that vaccines make some pwLC and pwME worse, or may have triggered LC (although it could be more in the "making worse" category). This is very bad for vaccine messaging, it will be used, and rightfully so, by the anti-vaccine movement. Hiding the truth breeds...
  11. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The contrast between patients almost universally condemning the useless clinics and the smug overconfidence of the clinics that they are nailing it looks gross. They seem to think that all that's needed is to scale the useless clinics and everything will work out. Blind and deaf, almost...
  12. rvallee

    Is Cognitive Change Necessary to Alleviate Symptoms in Patients With Functional Somatic Syndrome?, 2021, Maroti and Johansson

    Clearest historical example of this. Some people saw a face in the first picture, where they wanted to see a face. Psychiatry sees thoughts and beliefs using technology that is probably far cruder by comparison. Especially as those beliefs started before electricity, when we could see nothing at...
  13. rvallee

    The Times: My Mother, Munchausen’s and Me by Helen Naylor review — the tyrant in the sick bed

    Garbage article from The Times that uses ME as a punching bag and misrepresents everything. https://www.thetimes.co.uk/article/my-mother-munchausens-and-me-by-helen-naylor-review-7v8ts3w77 However, starting abruptly in 1991, when Elinor was in her thirties and Naylor was seven, her mother...
  14. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Good article from a GP with Long Covid. Other than not naming ME but mentioning PEM... But I think she knows since she tagged Doctors with ME on Twitter, so it's odd that the article does not mention anything about this being an old problem. Focuses mainly on dysautonomia and neurological...
  15. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Today in tales from dystopian nightmares, a discussion of Long Covid between health officials in the Netherlands and patient advocates has been pushed back to next year... because of the high number of infections. Which will increase the problem further. When you don't understand the problem to...
  16. rvallee

    News from France

    French medicine continuing to push very hard for psychosomatizing Long Covid. The narrative is pushed everywhere.
  17. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thread on LC with many sources. Good overview of the issue so far.
  18. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This is probably a very nice public health message but the audience that needs to hear this is not watching this on television and will not care for this message. It's medical professionals who need to hear this, and also for those empty words to have substance. Health care is completely...
  19. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Many annoying things in this article, including people musing how many will need cognitive rehabilitation. Going 2 years into this and they can't even move on from their delusions, they still cling to their failed models no matter how much reality punches them in the face. It's a shame that the...
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