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  1. rvallee

    Interventions that manipulate how patients report symptoms as a separate form of bias

    Which may explain the shock of researchers in the field and the ridiculous level of media coverage they are pushing. This bias is everything, without it there is nothing. Not surprisingly, as this is exactly what they think is the problem and therefore seek to influence, they just know they...
  2. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    The sheer amount of press this failed study is getting is seriously absurd. Especially ridiculous given there have literally been hundreds of such experiments already done. It's cult-like obsession. Though it's good to hear the right side in this debate, as long as this remains a debatable...
  3. rvallee

    New Scientist - Long Covid: We have ignored post-viral syndromes for too long, 2021, Le Page et al

    He probably means breathing exercises, for which the evidence also looks weak but it's big business so it must business on. It's a big problem to use such a generic term, it can be used to apply to anything from light stretching all the way to military drill school. Zero nuance or specificity in...
  4. rvallee

    Sunflower therapy for children with specific learning difficulties (dyslexia), 2007, Bull

    Would she say the same of alternative medicine? Because the same can be said. The only difference is belief in the magical powers of the mind, that something must work. The only reason people hold on to that belief is that although every experiment has failed to meet any primary objective, there...
  5. rvallee

    Article series in Guardian, June 2021: The pain that can't be seen. (chronic pain, Long Covid, ME/CFS)

    That's exactly the kind of attitude that keeps them oblivious to it. Just like the bystander phone effect, everyone is out there saying "someone should do something" and they go right back to doing nothing, or sometimes angrily defend a broken status quo that lead us there, or just hustle at the...
  6. rvallee

    UK: Improving Access to Psychological Therapies (IAPT) articles, blogs and discussion

    Honestly at this point just go straight with Amazon's "wellness booths" and be done with it. This is completely beyond parody, it just cheapens everything to a damn tchotchke.
  7. rvallee

    Interventions that manipulate how patients report symptoms as a separate form of bias

    How about science illiteracy? People are frankly too generous here, this is a long-standing problem that has always plagued research of all types. This is just one of the last remaining space where science illiteracy is encouraged and promoted but it's the same: researchers who want to prove...
  8. rvallee

    Investigating the relationship between physical activity and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Franklin, 2021

    GET was always sold as being individualized. Not true but they've been saying this for decades. But it's not as if any of this matters, they can say something for decades, pretend otherwise and nobody cares. Which is why they can lie and fail for decades. Of all the failures, the simple...
  9. rvallee

    NICE ME/CFS draft guideline - publication dates and delays 2020

    Just one example but I'm seeing a lot of agreement from long haulers that post-exertional symptom exacerbation is a preferable term. Even in those who are not quite aware of the context and history of PEM. So, easy to argue this is an acknowledged improvement. Now if only they could understand...
  10. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    That's like asking Uri Geller to use spoons he didn't bring himself. Not gonna happen, they know the illusion doesn't hold up to any scrutiny.
  11. rvallee

    The pervasive problem with placebos in psychology: Why active control groups are not sufficient..., 2013, Boot et al.

    A good exercise for this would be to submit a BPS-ME/MUS paper with the fewest changes possible, swapping everything related to whatever behavioral crap they are doing with healing crystals. It would likely not be accepted and no doubt the methodological aspects would be admonished, but only...
  12. rvallee

    Investigation of Long COVID Prevalence and Its Relationship to Epstein-Barr Virus Reactivation, 2021, Gold et al

    I would assume Leonard Jason's study could answer that question? Rare opportunity to benefit from a prospective study here.
  13. rvallee

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    Also wow is this article being pushed. Already re-tweeted about a handful of times by BMJ by my count, again in the last hour. They are really doing a campaign here.
  14. rvallee

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    Seems likely there is a Wessely connection. Gerada is completely obsessed with patient complaints, believes patients should not even have the right to lodge complaints (because it makes physicians feel bad) and yet again a few days ago in a discussion over physician suicides blamed patient...
  15. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Informative graphic. Those numbers... Although this is for one symptom only so most are not significantly impaired. But it sure would be useful to know more about how symptoms occur, maybe learn something about them for once. The gender ratio is closer to 60:40, not that big.
  16. rvallee

    BPS attempts at psychologizing Long Covid

    It's sad that it's lost on everyone, and I'm mostly talking about professionals here, Gez isn't and is free to believe weird stuff if he wants, that this is literally the way people have always attributed weird magical powers to objects or rituals, that they just happened to correlate with the...
  17. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Fitting that with medicine having politicized this disease category into oblivion, that political leadership bypassing medicine will likely be the way out. Wherever it comes from, this is a problem that requires leadership and with medicine paralyzed by past failures, this is the only way it...
  18. rvallee

    Investigating the relationship between physical activity and Myalgic Encephalomyelitis/Chronic Fatigue Syndrome, Franklin, 2021

    "New" It just never ends, does it? Why do people think superficial understanding of an issue and giving it a few minutes' attention is good enough to deliver something useful?
  19. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Absolutely ridiculous that the article still frames it as a result of "activism" from pwME. And even more ridiculous that those "researchers" are still pretending that this is legitimate research. Even more bizarre that their entire reasoning seems to be that they are just asking questions...
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