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  1. rvallee

    AMA Journal of Ethics : The Importance of Listening in Treating Invisible Illness and Long-Haul COVID-19

    Great article. My only gripe is this obviously false statement: Although that's easy to miss for any one person, thousands of people did anticipate it, including some scientists, even left a record of it. This must be recognized, the pretense that this caught everyone by surprise needs to end...
  2. rvallee

    The Epidemiology of Insomnia and Sleep Duration Across Mental and Physical Health: The SHoT Study, 2021, Sivertsen et al

    Considering the unreliability of mental health diagnosis, this tells us nothing. Strong chances this has nothing to do with mental health and everything to do with mass misdiagnosis. Or nothing at all.
  3. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Hmmm... unlikely that someone for whom GRADE is so central to her work will be able to acknowledge the massive flaws that lead to very low quality "research" to be judged arbitrarily to fit a pre-sought outcome by teams biased for that purpose, how easy it has been to manipulate it simply based...
  4. rvallee

    Passive transfer of fibromyalgia symptoms from patients to mice, 2021, Goebel et al

    Setting aside that anything from KCL is unlikely to be good on this issue, not specifically for these findings, but reading long hauler reports for the last year it's pretty clear that a % of those would normally fall under the fibromyalgia diagnosis without the context of Covid. Very few seem...
  5. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Collaboration intensifies Iwasaki is an immunologist running a study on Long Covid prevalence in vaccinated people (and I think also the effect of vaccines on long haulers?) and also been cited many times in the last year in articles, seems motivated to research beyond LC.
  6. rvallee

    Quality of life in functional movement disorders is as altered as in organic movement disorders, Gendre et al., 2018

    Well, yeah. Just like discriminated communities labeled as "naturally criminal" tend to have more crime, because of overzealous policing and socioeconomic circumstances feeding the cycle, planting of evidence, prosecutorial misconduct and other enforced errors. But if they understood that they...
  7. rvallee

    Well-known, famous people with Covid-19 and Long Covid

    Oops, that's the one I meant. Corrected. Also: What a mess. And dozens of new acronyms are being added and many more, all to say the same thing. This is maximum dysfunction, no one can figure anything out when basic vocabulary is so broken.
  8. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Amazing lack of self-awareness and inability to see consistency for what it is. This is truly a religion, or a religious-type of belief. Blatantly obvious that what they call "attacks" are just basic criticism. It's truly alarming that hardly anyone recognizes how obvious this is. Especially...
  9. rvallee

    Well-known, famous people with Covid-19 and Long Covid

    It's unclear whether related to Long Covid, though suspected, but this description sounds a lot like ME. However for unknown reasons, they are calling it Chronic Immune Response Syndrome, which as best as I can tell is not a thing. There is something called Chronic Infectious Inflammatory...
  10. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    So it really sounds like a vacuum word, used simply because a correct term has not been agreed on. Bit like how fatigue is used to cover every damn possible symptom in existence, stripping away all meaning those words have. Where there is a vacuum for a correct term, people will use another one...
  11. rvallee

    Psychiatry's modern role in functional neurological disorder: join the renaissance, 2021, Begue, Perez et al

    Unfortunately, they don't even trust their own research findings and no one makes them so they will completely overlook those negative findings and in fact continue promoting them. They genuinely don't trust their own research, because it's not research, it's outcome-seeking. So when they don't...
  12. rvallee

    Quality of life in functional movement disorders is as altered as in organic movement disorders, Gendre et al., 2018

    Wait. Sick people ARE sick?? No way. It's almost like inventing a fake category of "things we don't understand yet=fake" is as a bad idea. Almost, because it's a catastrophically terrible idea stemming from incompetence and hubris. And of course more baggage than a large airport terminal can...
  13. rvallee

    Post-Acute COVID-19 Syndrome and the cardiovascular system: What is known?, 2021, Dixit et al

    This is obviously ridiculous. Why are ridiculous statements so common in medical research? Are these people not aware that most people don't exercise regularly and that deconditioning obviously does not fluctuate or occur from a mere week of lower activity? Or of the circumstances that most...
  14. rvallee

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    Is that supposed to be it? This is the "correction"? Which they specifically framed to misleadingly suggest no harm rather than no benefit? Which is obviously not supported and is not the issue and even less of a correction? I mean I expected nothing but still, wow. These people have truly...
  15. rvallee

    NICE ME/CFS draft guideline - publication dates and delays 2020

    I'm genuinely surprised they made something out of it at all instead of pretending it doesn't matter. I fully expected this to be overlooked entirely when she wasn't rejected for having obviously biased views to begin with. Small bit of progress.
  16. rvallee

    Clinical coding of long COVID in English primary care: a federated analysis of 58 million patient records in situ using OpenSAFELY, 2021, Walker et al

    Abstract Background: Long COVID describes new or persistent symptoms at least four weeks after onset of acute COVID-19. Clinical codes to describe this were recently created. Aim: To describe the use of long COVID codes, and variation of use by general practice, demographics and over time...
  17. rvallee

    Clinical coding of long COVID in English primary care: a federated analysis of 58 million patient records in situ using OpenSAFELY, 2021, Walker et al

    Definitely not just in England. GPs in England ‘failing to recognise thousands of long Covid cases’ https://www.theguardian.com/world/2021/jun/30/gps-in-england-failing-to-recognise-thousands-of-long-covid-cases The study: Clinical coding of long COVID in English primary care: a federated...
  18. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Is there a good general one? I've seen some variations of... immune-mediated, immunological or something like that, but they aren't typically used.
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