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  1. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Especially in how it's always presented: "fatigue was reduced". No, it wasn't even measured, without a baseline and using a non-linear grading of relative meaning framed ambiguously in such a way that the participant is usually not answering the question the same way it is meant by the...
  2. rvallee

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    I don't understand how people can debase themselves this way. Just shameless lying and misrepresentation without consequences. But of course the answer is simple: they are rewarded for it. So the people really responsible for this are the bystanders too cowardly to point it out. It's a proper...
  3. rvallee

    Esther Crawley

    Seems to be based entirely on citations for her research and how her work is overhyped, using a machine learning algorithm that obviously cannot distinguish good research from bad research. So essentially quantity and marketing matter, quality does not.
  4. rvallee

    Audio distraction: podcasts, audio books, radio on demand

    I'll never understand how anyone found this junk convincing, it's far weaker than even the Stanford prison experiment and Milgram's experiment. It's a single case that is completely unconvincing and the facts don't even line up. It takes a completely cartoonish view of human nature to find it...
  5. rvallee

    Making sense of symptoms, clinicians & systems: a qualitative evaluation of a facilitated support group for patients with [MUS], 2021, Marcinow et al

    Asked And answered. Profit-seeking or not, it's to create something for the sake of being able to say that there's already something and it's good enough what more could you possibly ask?
  6. rvallee

    (POTS): Priorities for POTS care and research from a 2019 National Institutes of Health Expert Consensus Meeting – Part 2, 2021, Raj et al

    $10M/y is still peanuts given the size of the economic impact. Not even counting the human impact but that's clearly not relevant to anyone making those decisions. At least some of that Long Covid funding should go for dysautonomia, if it doesn't then frankly the whole thing will probably be so...
  7. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Chances that they are aware that this is the ME they have vilified and disrespected for so long? That this is the worst-case scenario for Simon Wessely's horrible career, his lies revealed? About 0%. Especially as Wessely chaired the last webinar on this topic by the RSM just a few weeks ago.
  8. rvallee

    Stuart Ritchie, science journalist, articles on science fraud and open science

    That actually made me laugh when I saw it because absolutely speed runners are 100x more rigorous in their methodology than almost anything done in medical research, at least wherever technology can't be used (i.e. everything psychosocial). They genuinely care about accuracy and validity in ways...
  9. rvallee

    Management of functional communication, swallowing, cough & related disorders: consensus recommendations for speech & language therapy, 2021, Baker

    Very common in Long Covid so very likely yet another "functional" crap that is actually an immune problem. Many are referred to speech therapists, obviously with little to show for it. These people are completely detached from reality and are either too malicious or incompetent to see that...
  10. rvallee

    The Impact of Post-COVID-19 Syndrome on Self-Reported Physical Activity, 2021, Delbressine et al

    At some point this process where several people work for several months evaluating hundreds of patients to check ONE SINGLE THING is going to have to mature because it's the most extreme form of redundancy I have ever seen. Like 99% of efforts are pointlessly wasted simply because everyone...
  11. rvallee

    Making sense of symptoms, clinicians & systems: a qualitative evaluation of a facilitated support group for patients with [MUS], 2021, Marcinow et al

    Alternative alternative medicine: it doesn't work either but it's much more expensive! What problem does that solve? None. Literally all the "benefits" are simply making up for willful neglect. This is like someone busying themselves doing meaningless chores instead of doing their actual job...
  12. rvallee

    BPS attempts at psychologizing Long Covid

    That seems normal. The modern definition of anxiety may as well be a description of dysautonomia. Naturally people suffering from dysautonomia will find that description fitting. And depression's definition may as well be the definition of feeling ill, at least the more broadly used on, not the...
  13. rvallee

    Characteristics of patients with motor functional neurological disorder in a large UK mental health service (2019) O'Connell, Wessely et al

    I assume they will never make that mistake again. I'm just kidding of course they will do it again because it's fully deliberate and they don't have to care about anything but themselves.
  14. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Just the fact that this is getting such media coverage is incredibly suspicious as to who is abusing their authority here. The only real thing to cover here is how cult-like pseudoscience is being taken seriously by medical authorities. Everything else is irrelevant. Late-stage medicine looks...
  15. rvallee

    Experience with Lightning Process course 2008, Norway

    Yeah so this is 100% a cult and frankly every single medical professional enabling this needs to be fired for cause, zero tolerance. At best it's gross negligence. And good comparison to Scientology, it sounds basically the same.
  16. rvallee

    Experience with Lightning Process course 2008, Norway

    That's usually just there as a warning so they can say "we told you so" when they try to pressure but there is unlikely that there is a basis for this. None of this is technical or proprietary in a formal sense. Not to say it's impossible they would try anything legal but there isn't much of a...
  17. rvallee

    BPS attempts at psychologizing Long Covid

    Long-Haul COVID Brings Long Road to Recovery https://www.webmd.com/lung/news/20210630/long-haul-covid-brings-long-road-to-recovery Despite 90% odds of recovery, somehow a single N=1 case is significant. Yes, it's Garner. With 90% recovery out of millions, it's probably very hard to find...
  18. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Didn't most of the recent LC funding go to GP practices? Which obviously is not even close to be capable of handling this. Even in normal times it wouldn't be, but when you add well over a year of backlogs in basic screening, GPs are the last place where this can be handled properly. Hopes and...
  19. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Why do people keep repeating this obviously false claim? If only we had anything to manage symptoms things would be so much better. Suffering symptoms and managing symptoms are entirely different things, when they are managed it's when you've alleviated at least some of the suffering. "You're on...
  20. rvallee

    Lightning Process study in Norway - Given Ethics Approval February 2022

    That's some Deepak Chopra level crap a few replies down when someone points out to him he clearly doesn't know a damn thing about ME. The level of Deepak Chopra level crap in medicine is too damn high. As we all know, it's when you have nothing but woo-filled thought-terminating clichés that...
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