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  1. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I really don't like where this is going. This is basically the nightmare scenario disguised as a blessing, because 99.9% of health care services would not see it as a problem: a variant that is highly contagious, causes less acute illness of the "needs hospitalization" kind, but is even worse at...
  2. rvallee

    Microbiome–host systems interactions: protective effects of propionate upon the blood–brain barrier, 2018, Hoyles et al

    I don't understand the weird obsession with the "gut-brain axis". Every organ in the body is directly connected to the brain, literally everything has to. Never hear about the liver-brain axis. Or any other combination. The interaction between the brain/nervous system and the immune system...
  3. rvallee

    News from Aotearoa/New Zealand and the Pacific Islands

    Prepare. Pre, meaning: before. Nope, not it. 2 years into this is definitely not before, it's far after.
  4. rvallee

    United Kingdom: Newcastle-upon-tyne Hospital Trust

    And another one for the file of so-called lessons learned from the AIDS crisis. We may be vindicated with time, but we will have been just as hated, if not more because it has lasted far longer. And that anger was explicitly and disgustingly used against us, just like it was. Zero lessons...
  5. rvallee

    Ed Yong: Health-Care Workers With Long COVID Are Being Dismissed

    It's pretty clear that medical information is communicated top-down. The top hasn't communicated this because they are in denial. Medicine is seriously lacking in leadership, there just isn't any.
  6. rvallee

    BPS attempts at psychologizing Long Covid

    He says things his medical peers want to hear. Same as Sharpe and Wessely or Stone. Nothing special, certainly not a luminary. These people are in the marketing business and there's plenty of demand for it, they don't even have to make any effort at it and there's basically infinite money...
  7. rvallee

    News from France

    There is a legislative debate today in the French parliament for a LC resolution, 2nd debate. It appears to have unanimously passed: I don't know much about French politics, legislative resolutions are typically non-binding so I have no idea how much bite this has. I assume none at all...
  8. rvallee

    United Kingdom: Newcastle-upon-tyne Hospital Trust

    You know what they say, when reality conflicts with your model, stick to your model, put fingers in your ears and go LAH-LAH-LAH-LAH! The model is everything and reality is just a pale reflection of it. The ends justify the means, all the means. Oh, wait, no, it's the exact opposite. Although...
  9. rvallee

    4th International Conference on Functional Neurological Disorders, June 2022, Boston University [was originally scheduled for 2020]

    It would be great to bring this to the attention of long haulers, since they will be covering LC as conversion disorder. Seems to be the same idea with vaccine reactions, especially problematic considering how much more serious it is for pwLC and pwME. They have to know about these things and...
  10. rvallee

    Peppermint Oil Treatment for Irritable Bowel Syndrome: A Randomized Placebo-Controlled Trial, 2021, Nee et al

    That's one interpretation. The other, more rational, would be that whatever they use to evaluate clinical significance is not reliable, or natural improvements are common enough to occur, which would be consistent with a more likely microbial infection being dealt with over time, making the...
  11. rvallee

    The relationship between types of life events and the onset of [FN] (conversion) [D] in adults: a systematic review.., 2021, Carson, Stone et al

    Hell I've seen good events being twisted into being bad, like getting a promotion but now that's just too much stress, or something like that, no matter that, no, it's not, in fact it's a very positive thing. They don't care. Ideologues never care about being wrong. Or about what they're doing...
  12. rvallee

    The relationship between types of life events and the onset of [FN] (conversion) [D] in adults: a systematic review.., 2021, Carson, Stone et al

    But they'll keep saying it anyway, it's even the first thing they say in the abstract, they repeat their hypothesis as a fact. Because they don't even trust their own research unless it says exactly what they wanted it to say. There are other papers that suggest otherwise, and as long as they...
  13. rvallee

    New Zealand: Covid-19 vaccinations for people with ME/CFS

    I think the idea may be that vaccine mandates are becoming more common, with consequences for those who do not comply, and to make it a valid justification. But I just can't imagine that exemption actually being taken seriously by health care services. It would be a nice idea but has no chance...
  14. rvallee

    BPS attempts at psychologizing Long Covid

    Meh. Just skimmed and found those gems in the same list: They are simply not listening, at all. Or paying attention. Not even a bit. And yeah there's Alan Carson, where I stopped, so they are just so completely out of their depth it would actually funny if it weren't for the consequences, and...
  15. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Hmm... bummer. It was from a GP running a Long Covid clinic (at Johns Hopkins, I think) saying they are having problems finding physicians to work there because LC simply isn't taken seriously enough, hardly anyone's interested. The first of 2 is still there... But I just noticed this was from...
  16. rvallee

    The biology of coronavirus COVID-19 - including research and treatments

    It's absurd that this late into it, there is still a majority of physicians who still cling to the idea that people can't get infected more than once, or that subsequent infections would be rare and guaranteed to be benign. Or pretend to, I can't tell at this point. The entire premise of herd...
  17. rvallee

    News from France

    It seems that some French long haulers who were hospitalized are being sent ads to participate in a mindfulness thingy by the health services. But wait, there's more: they're charged €400. Because it's not insulting enough, asking people to pay for their own gaslighting is... well, typical, frankly.
  18. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Without addressing the decades of lies overt discrimination, and plain failure, creating a state of hostility to this entire category of disease, this will be a serious problem, it could even derail efforts right at the start, fueling even more denial of the "we don't really see those patients...
  19. rvallee

    Management of Long-COVID Postural Orthostatic Tachycardia Syndrome With Enhanced External Counterpulsation, 2021, Varanasi

    N=1 with a highly fluctuating illness makes this uninterpretable, adding to that the high % of natural recoveries making any attribution basically reaching. If the "placebo" effect were anything but errors of measurement (or more commonly the error of not being able to measure accurately but...
  20. rvallee

    Symptom Presentation and Access to Medical Care in Patients With Postural Orthostatic Tachycardia Syndrome: Role of Sex, 2021, Kate M Bourne et al

    Those numbers are a massive undercount, do not account that the vast majority are never diagnosed. So the misdiagnosis rates and delays to diagnosis are basically a rosy picture that represents the best case scenarios. Denominators are important. What good is awareness and recognition if this...
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